Tag Archives: peer support

The Challenge of Moderating A Mental Health Peer Support Community

The world of advocating and supporting those fighting the hard fight against Perinatal Mood & Anxiety Disorders holds within it a myriad of challenges. Moderating a community requires a lot – patience, compassion, understanding, and knowing when to properly apply tough love. The last one gets me every time -it is definitely a challenge and very heart-breaking to apply tough love to a struggling mama- but it is sometimes the only option left.

Within the #PPDChat community, some moms may end up being friends, others may just need me for a short period of time on their journey. I have to be okay with either, learning to let go as the moms who contact me move in a very fluid way in and out of my world.

My primary goal, however, is to keep everyone within the community safe above all else. To ensure that they feel respected, empowered, validated, and treated with all the dignity each of us deserves as humans and as adults, something all of us deserve. When someone within the community fails to meet this goal or feels these goals are not being met, I take action.

When there is a threat/disrespect for the community, a member requires more help than I or other members can provide, or threatens the safety of those close to them, I reach out for additional support. Dealing with threats to themselves or to the safety of the group is not a pleasant situation but it is something which is bound to crop up every so often. I must be prepared to provide solace for all involved – the community at large and the struggling member, without divulging too much information regarding either. Even though I am not legally bound by the classic “client/therapist” privilege rule, I hold myself to it unless threats are made. Even then, I only release information to the necessary parties.

Moderating #PPDChat has taught me a few lessons about dealing with people in general:

1) Be kind, for everyone you meet is fighting a hard battle. This one is tough because sometimes, when I would like to be angry at someone, I see their pain. I see the suffering which is causing their anger. I have learned when to dive in and hold a conversation but at the same time I have also learned when to walk away and let them fight their own battles with their dark storms. Sometimes, and this is perhaps the toughest lesson of all, people need to fight the storm on their own and we have to walk away because they are simply not prepared to let others put on their battle armor with them. I have found that if I need to do this, the best way to do so is to leave the door open as I walk out, in case they are ready to have an army by their side.

2) Be kind to yourself, for the battles you face may be harder than you think they are and it’s okay to not be okay. We all do it, tell ourselves that what we’re going through isn’t as hellacious as it should be – a lie. It’s okay to fight, it’s okay to hurt, and it’s okay to be kind to yourself. I say this often: Self-care is not selfish, it’s selfless. There is a fine line between self-care and selfish, however – it’s importance to balance taking care of your responsibilities with taking care of yourself. In the same vein, it’s okay to say no to extras. Things which are responsibilities take priority over things which are “supplemental” to life. To figure out the difference, make a list and ask yourself if life will go on if you skip something. Meal prep is a responsibility. Gotta eat. Making a ton of cookies for the church social? Yeah, saying yes might put you in the good graces but if it’s at the sacrifice of your sanity, it might not be worth it. Instead, choose to spend that time with your family or with yourself.

3) Everyone won’t be happy with the rules…or with what other people in the group have to say about certain topics. We all come to motherhood with different expectations and beliefs about how things should go. We all walk different paths and need to find the right path for us – in the process, remember that the right path for US may not be the right path for those around us. Judging the choices of others is something I DO NOT tolerate in the #PPDChat community because we are already judging ourselves as women, as mothers, and as mothers fighting a mental health battle. The LAST thing we need to add to that full plate is our support community judging us too. When personal attacks happen, tough love knocks down the door dressed up as a Mama Bear.

4) Treating others with dignity goes a long way. We’re dealing with other adults here, not with children. I don’t even see Teen Moms as children. They are mothers now, with very real adult responsibilities. To treat them, or any new mother, as anything less than an adult with responsibilities, is to disrespect them. You’re not helping if you’re constantly holding someone’s hand and telling them what they can or cannot do. It’s not empowering to talk down to them. Mental health struggles do NOT equal incapable. I was an adult prior to my postpartum issues and I was still an adult when I was fighting the beast. I treat others with the same respect and dignity with which I would want to be treated in the midst of my own storm. I believe it lends to confirming to the woman/family seeking help that they ARE still human, they DO matter, and it provides a sense of normalcy, if you will. It’s possible to acknowledge struggles without demeaning or patronizing the person experiencing them.

5) Authenticity is important. Sharing parts of yourself as a peer moderator builds trust. It shows your community that you are indeed human and understand their pain. Particularly online, it is important to not just be a robot spouting self-care-isms, if you will. Mean what you say and say what you mean. My community is perfectly aware of my rather unhealthy obsessions with bacon, football, F1, Star Wars, and a myriad of other things. Why? It humanizes me and therefore humanizes the community as we are able to bond with each other over a myriad of topics. It allows us to talk about things beyond our “labels.”

6) Know when to be light-hearted and when to be serious. There is a fine line between these two approaches, particularly when dealing with mental health issues. Cross the light-hearted line a bit too much and you may end up in the stigma/discrimination zone. That’s never a good thing. We joke a bit more about it in closed group but I am always, always careful about how I phrase things because I absolutely do not put up with any form of discrimination within the community. I see everyone one equal footing – as people fighting like hell to just be themselves, whatever that may be now. We need laughter but we also need respect and tough love. Toeing the line requires finesse, something I work diligently at achieving.

I’m sure there are more lessons I have learned whilst moderating the #PPDChat Community but the six above are perhaps the most important ones.

It is my utmost desire that everyone who reaches out to #PPDChat for support find a community which respects them as a whole person, respects their individual choices regarding child-bearing and child-rearing, and empowers them as they fight with all their might on their journey toward being well once again.

I know people feel that way because I hear it every so often from those who have participated. In fact, just the other day @jenrenpody shared this with me:

“I turned to ppdchat because I felt safe, validated and heard. I needed that validation and support. I found so much more – community and friendships.”

#PPDChat works to do exactly what Jen states and it always will. If for some reason, you have a different experience, let me know and I will do my best to address the issue. You are absolutely not alone, you will be heard, and you are safe. Always.

What would be most important to you in a peer-based community support group and why? Has #PPDChat helped you feel empowered to fight your battle against Perinatal Mood & Anxiety Disorders? Join in the discussion by sharing below!

#PPDChat Topic: Like A Butterfly: Transformational Power of a Perinatal Mood Disorder

ppdchat 09-30-13

Today, we’re focusing on the ways Perinatal Mood & Anxiety Disorders change us. Many of us know all too well the amount of energy it takes to fight through to ourselves during a Perinatal Mood & Anxiety Disorder. As someone who is now able to look back at my experiences instead of being caught in the midst of it, I see how that fight changed my outlook on life as well as changed almost everything inside me. While I have been remodeled, some of the old me remains. Isn’t this the way with all trauma and substantial life experiences? We are constantly growing and changing as life ebbs and flows through us, are we not?

The 1:00pm ET chat will be a prelude to tonight’s chat with @WalkerKarraa regarding the amazing transformational power Perinatal Mood & Anxiety Disorders have in the lives of the women who experience them. I hope you’ll join us as we casually explore and discuss the ways PMAD’s have changed our lives during the afternoon chat.

Then at 8:30pm ET, Dr. Walker Karraa will join us. I am excited about her joining #PPDChat as a guest, particularly on this topic as she has been talking to several women about this very thing, allowing her amazing insight into the overall transformational power of PMAD’s in our lives.

To say I am excited about today’s topic would be a huge understatement. I cannot wait to discuss this with y’all!!! For more information about Walker and today’s topic, go here.

See you at 1:00pm ET and hope you will join us at 8:30pm ET as well!

Question From A Reader: “Will I Ever Feel Like This Is The Best Thing That Ever Happened to Me?”

A reader emailed me earlier this morning to thank me for my “fabulous blog.” But she also had a question about her current experience with her journey through Postpartum Mood & Anxiety Disorders.

Below is her question and my response:

Her Question:

“I’m over three months into recovery – having therapy and taking anti-depressants. Although I have much improved – I’m more bonded with my son, my sleep and appetite is better, my anxiety attacks are reduced etc – I can’t help wondering if I’ll ever feel that true elation, true joy that despite everything becoming a mum is the best thing that’s ever happened to me?

Should I still be hopeful that this will come as part of full recovery or should I be finding a way to accept that although, I now know I love my son, life is always now going to be a little more miserable?”

My reply:

“Sending hugs, first and foremost.

Second, I’m glad to read that your symptoms have lessened just three months into your recovery and you’re feeling more bonded with your son and your appetite and sleep have improved as well. Those are HUGE things.

Think of recovery this way – first, we have to take care of the essentials – the basic things which keep us going – like eating, sleeping, etc. After those things have sorted themselves out, we can then focus on secondary things, such as mood, etc. Mood can absolutely disrupt the primary but as we heal from mood issues, we must heal the primary first.

It took me a long time to get back to being able to truly feel elation and joy, but that journey and the length of it is different for every person, just as physical recovery is different for every person.

Just as with a broken bone or a severe injury, there will always be a “scar” or “phantom pain” but eventually you regain full use of the complete spectrum of emotions, even if it takes some time.”

Add your thoughts, experiences, or support below. Time to rally!

Celebrating Through Giving Back – Today’s Spotlight – @PostpartumHelp (PSI)

Shortly after I decided that I needed to reach out to other mothers as an advocate, I found Postpartum Support International. I ordered the manual Jane Honikman had available through the site about how to organize. She was an angel and shipped it to me before receiving the check for it from my mother (we were struggling at the time and it was a gift my mother decided to provide to me – bless her).

Shortly thereafter, while forming my own in person support group, I also became a Co-Coordinator for the state of Georgia. One of my first calls landed me on the phone with Jane because it was such a doozy and I had no idea what I needed to do – I handled it wonderfully with her support. Jane is warm, caring, and makes you feel at ease instantly. When I had the chance to meet her in 2010, it was all I could do not to cry – you PSI Coordinators know what I’m talking about. Because of this fabulous woman who has walked in our shoes, has hurt, and has decided that NO ONE ELSE SHOULD HURT ALONE, is why PSI exists today.

Without early support from PSI, from Jane, Wendy Davis, and other coordinators who at this point are far too numerous to name (waves at Heidi Koss and Diane Ashton, two very early allies), I would never have started down the road to advocacy. They nurtured an early advocate and provided sage advice along the way.

PSI operates a very large net of volunteer Coordinators, all of who go above and beyond to help the families reaching out to them. The world is a phenomenally better place because of these men & women manning the front lines.

I always refer to PSI for information and support. Go check out their website for information, to locate a volunteer near you, to volunteer, or even to donate to support what they’re doing to help families.

Thank you, Jane, Wendy, and all the past and future Presidents of PSI. Because of you, lives are saved and will continue to be saved. Don’t stop fighting the good fight. We are not alone because you have lit the path for so many and it will never stop shining.

 

Announcing #PPDChat Guest for September 30, 2013 – @WalkerKarraa

PPDChat Walker Karraa Announcement

I am so excited about this upcoming chat with Dr. Walker Karraa. She is quite the force to be reckoned with in the Perinatal Advocacy world. If I had to pick one word to describe her, I would probably use “firecracker.”

I met Walker in 2010 (yes, yes, there’s a repetition to that this week, I know!) at the PSI Conference in Pittsburgh. We hit it off quite well. One of the things I love about meeting other advocates is how fearless we all are in discussing the nitty gritty about the Mood Disorders we fight to help others with every day. Why are we so fearless? Because we have been there and it is something we live and breathe. Telling our stories is how we live our lives now because we know that every time we tell it, one more person may be reached.

Another thing we have realized is the transformational power of Perinatal Mood Disorders. It changes you. I am grateful for my experience because it allowed me to grow in ways I may not have grown were it not for my fall from grace. In falling to the depths of hell, I managed to touch the very height of heaven on my way back up.

Dr. Karraa has been researching this general idea for over a year now and I am thrilled she’s joining us on Monday to discuss this with our community. I sincerely hope you will stop by and share your story with us – how your journey through a Perinatal Mood Disorder transformed your life. By the way, it doesn’t have to be for the better, everyone has a different story and there is VALUE in every single one, happy ending or not.

WalkerBio: Walker Karraa, PhD is a perinatal mental health researcher, advocate and writer. She is currently regular perinatal mental health contributor for Lamaze International’s Science and Sensibility, Giving Birth With Confidence, and the American College of Nurse-Midwives (ACNM) Midwives Connection.

Walker has interviewed leading researchers, clinicians, and advocates such as Katherine Wisner, Cheryl Beck, Michael C. Lu, Karen Kleiman, Pec Indman, Liz Friedman, and Katherine Stone. Walker was a certified birth doula (DONA), and the founding President of PATTCh, an organization founded by Penny Simkin dedicated to the prevention and treatment of traumatic childbirth.

Walker is currently the Program Co-Chair for the American Psychological Association (APA) Trauma Psychology Division 56. She is writing a book regarding her grounded theory study on the transformational dimensions of postpartum depression. Walker is an 11 year breast cancer survivor, and lives in Sherman Oaks, CA with her two children and husband.