Tag Archives: postpartum depression

#PPDChat Topic 07.07.14: Celebrating 10 Years of Postpartum Progress

ppdchat-07-07-14On July 13, Postpartum Progress turns 10.

Since inception, Katherine Stone has done quite a bit in the world of Perinatal Mood & Anxiety Disorders. She’s fiercely led us forward, called people out on the error of their ways, and is whole-heartedly dedicated to making the world an easier place to navigate when women are struck with one of the issues on the spectrum of PMADs.

Tonight, at #PPDChat, we’re going to talk about Katherine and what she’s done, what she’s doing, and share memories of how she’s helped us. Did you know she supported #PPDChat when it was just an idea in my head four years ago? She did. She’s supported quite a few of us as we’ve moved into advocacy and we are beyond grateful.

Be sure to join us tonight at #PPDChat as we celebrate the woman, the work, and the sisterhood she has created.

See you tonight at 830pm ET!

Seeking Volunteers for #PPDChat Growth & Management

Hey, y’all!

It’s time to start growing #PPDChat beyond the borders of its current space. To do that, I need some help!

I started #PPDChat in 2010 with the goal of reaching out to women and families through a new medium. To bash stigma in the most public of places, on Social Media. It took off more than I ever imagined it would.

The hashtag has gone places, including trending the week of the National Football Championship.

It’s even transitioned into a closed FB group where over 300 mothers have grown into a close knit community.

But it’s time to take it to the streets and really push the boundaries of growing this community which is centered on the principles I hold so dearly and work to strive in my own life after battling against PP OCD twice:

Self-care: It’s important. As a person, as a woman, as a mother. Self-care is what keeps us going, what fills us up so we can give of ourselves to others. We cannot give to others if we are constantly pouring from an empty pitcher.

Self-respect & respect of others: Just because I have a mental health issue does not mean I am not a person. I absolutely am, you absolutely are as well. We’re just walking a road with a bit of fog on it and for some that fog is a bit thicker than for others. Eventually it will lift and the sun will shine. In the #PPDChat community, respect for others as people is one of the highest priorities.

Self-advocacy and speaking boldly: We are our best advocates. We know what’s going on inside our minds better than anyone else because we live there. Honesty with ourselves, our loved ones, and our professional caregivers is what will help us heal. (With the caveat of sharing with toxic people who shoot us down, of course – that absolutely will not contribute to healing). We empower each other to advocate for ourselves through a shared experience, through personal support, and through locating resources. With #PPDChat, you absolutely are not alone.

With these principles in mind, I am seeking volunteers to join together with me to reach out to new sources of women who would benefit from getting involved with the #PPDChat community. Your involvement may be as involved or as limited as you are able…remember self-care is important here so we do not want to drain you. Marketing, outreach, blog posts, sourcing new places to develop partnerships, etc.

Right now, the only conditions for volunteering are that you must be:

  • A survivor or a partner of a survivor of a PMAD episode (this does include antenatal mood disorders as well)
  • Driven & dedicated to help others who have found themselves in the same boat with this beast
  • Have an internet connection or willing to do footwork in your own community
  • Able to respond to emails calling for action and a minimum of 1 hour of action/advocacy a week

That’s it. Pretty simple. Right now, I’m gathering volunteers. First email will go out on July 15th so fill out the form below to contact me before then if you’re interested in diving right into this with me.

Can’t volunteer? Pass this post on to someone who may be interested as well. This is the year #PPDChat breaks out of the shell it’s grown into and really starts kicking some serious stigma ass.

Who’s with me?

 

#PPDChat Topic 06-23-14: Kicking The Summer Blues to the Curb

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We associate winter with the blues. Everyone stays inside to stay warm.

But summer is the opposite – some of us stay inside to stay cool. Or because it’s too much trouble to tote the little ones outside because OMG WE HAVE TO PACK ALL THE SUNSCREEN and everything else in the house just to go to the pool and dear sweet lord don’t forget that we need swim diapers, formula, a nursing swimsuit (OMG – nursing at the pool…)…the list goes on and on and on and on…you get the point.

Summer blues are just like Postpartum Mood & Anxiety Disorders. We’re supposed to be happy and carefree in the summer. Cheery. WHOOOO!! Water! Camping! No responsibilities. (Have you ever been a parent with three small children home for the summer? HAVE YOU?! I’d rather..well, anything.)

This chat will be chock full of tips and mamas chatting about how to manage the issue of parenting/adjusting to a newborn in the summer months. Summertime creates an entire extra set of issues, issues we all seem to just dance around. Well, tomorrow night, we’re gonna stomp on them and figure them out.

Join me on Twitter at 830pm ET. See you there!

NIMH Gets Failing Grade for Perinatal Mood & Anxiety Disorder Chat

Last week, a friend of mine tagged me in a link on FB to give me a heads up about a NIMH chat this week about Perinatal Mood Disorders. Of course we were looking forward to it and hoping it would be a worthwhile discussion. I nearly missed it on Friday morning (May 16, 2014)  thanks to a nasty case of food poisoning which knocked me off my feet for the better part of this week. But, I managed to dive in just 10 minutes into the chat.

It was…….awful.

Stilted.

Non-engaging.

Spouting of facts and just the facts, according to the NIMH. (They managed to screw up a few things. Don’t worry, I’ll go there. Oh, yes, yes I will.)

Self-promotion and only self-promotion. No real response to the powerful Perinatal Mood and Anxiety Disorder Advocates who showed up until we started really pushing back. Even then, their response was still stilted.

Just when it seemed it couldn’t get any worse, the NIMH began repeating tweets from the beginning of the chat instead of answering the flurry of questions coming in from those participating.

If NIMH handed this chat in as a graded project, it would have received an F.

When I asked what was being done to encourage medical professionals to become better educated about PMAD’s, this happened:

NIMHChat Congress

Yep.

Congress MANDATED we pay more attention to PMAD’s. In fact, it got shoved in with the ACA. And we all know how well that’s going. After this response, I asked a follow up question asking how that was going – asked for hard numbers. Did I get numbers? Nope. BECAUSE THE ATTENTION MANDATED BY CONGRESS LACKS FUNDING AND THEREFORE ATTENTION.

I’m okay, I’m okay. *deep breath*

There was also this lovely moment in chat:

NIMHChat Snafu

I know, right?

Because we ALL got better by staying in bed thanks to depression, right? Right?

Instead of urging moms to get up, move, and care for themselves, the NIMH  provides them with excuses to stay in bed and well, suffer. Way to go, NIMH. WAY.TO.GO. *slow claps*

While I realize it is difficult to manage a large scale chat with several participants (something I have done myself, when #PPDChat was very well attended), there is absolutely no excuse for the following to happen during your chat:

1) Blatantly state misinformation/misleading facts about your topic. Particularly if said topic is subject to entrenched stigma and misinformation (which is why you are having the chat to begin with, right? Not because it’s a hot topic and you’re using it to draw people in…)

2) Not engage those who are participating – this is SOCIAL media, y’all. SOCIAL. ENGAGE. Like Jean Luc Picard on the bridge of the Enterprise. Even if you’re just going at impulse speed, ENGAGE for the love of ALL that is..well, you know.

3) Don’t repeat yourself word for word. It lets people know you’re unprepared.

4) Share resources other than your own. (see number 2 about social media).

5) Do NOT TREAT those participating with disdain, contempt, or as if they are idiots. They are attending your event which would be nothing without participants. Respond accordingly unless they are clearly bashing you (which we were not) and if they are bashing you, ignore them before you stoop to the level of responding with disdain.
Things to do during a Twitter chat:

1) Engage. Be Social. Greet people. Be happy and upbeat. SMILE through your keyboard.

2) Be knowledgeable and approachable.

3) Treat everyone as if they are your equal. They are there to learn, not to be kicked. Acknowledge their words, their struggle, their questions with the same respect you expect from them. You know, do unto others as you would have them do unto you.

4) Offer insight through connections and share resources from others in addition to your own. The only answer is not yours. Crowd-source and use the media at hand to enhance your chat.

5) Do your best to make everyone be heard, even if it’s through just RT’ing what they’ve said. Again, I realize this is difficult on a LARGE scale but if you have known experts participating, acknowledge them.

I truly hate when things like this go wrong because there is such a tremendous opportunity for exposure when a government agency holds a chat like this. I want to say I’m surprised at how things went but sadly, I am not. Instead of raising awareness and building hope, NIMH decimated the chat with a lot of tweets about nothing, leaving at least one person (and possibly more) with the idea that there is in fact, nothing a mother can do to prevent a PMAD:

NIMHChat PPD cause

And that, dear friends, is NOT the taste you want to leave in the public’s mouth when discussing PMAD’s. Because there is hope. There is help. We are not alone.

Go to Postpartum Progress to find women who are fighting back.

Or Postpartum Stress Center’s website.

Or Beyond Postpartum.

Or find me on Twitter @unxpctdblessing. Or search the hashtag #PPDChat. Message me for the private FB group full of women who KNOW this is hell and yet are fighting back against it with everything they have.

We’re all here for you when you’re ready to reach out for help.

(And THAT is how you end a chat about Postpartum Mood & Anxiety Disorders).

*drops mic and hits publish*

#PPDChat: 05.05.14 – The Beast We Don’t Fear with @Alycianeighbour

Alycia is the kind of person every one deserves to have as a friend. She’ll laugh at all the inappropriate things with you, scoop you up when you’re down (even if she’s down too), and then take you to the park where you stomp at pigeons to keep them away. Seriously though, the woman has a very deep heart and has been through quite a bit (you can read her fabulous blog here). She’s the type of friend you can call even if you haven’t talked in awhile and it’s like you never stopped talking. Alycia’s spirit is grounded in her faith in God. It’s constantly challenged by her large (occasionally, okay, mostly chaotic) brood and her menagerie of pets, and soothed by her amazing husband and friends. Somehow, she manages to write and sorta stay sane enough to be friends with the likes of me.

Today’s #PPDChat is based on a post Alycia wrote for me, which appears below. She discusses her dogs (yes, it’s applicable) and how their personalities convey the type of people we might find in our lives. She urges us to find a person like one of her dogs, Tuesday. You’ll have to read the post to discover the details.

This is a chat you don’t want to miss. You’ll laugh, you’ll snort, and most of all, you’ll get some hard truth from both of us about life. See you tonight on Twitter at 830pm ET, 730pm CT, and 530pm PT!

Without further ado, here’s Alycia’s post:

The Beast We Don’t Fear

In our home of 8, there are a lot of beasts we deal with. Recurrent Depression, PTSD, ADHD, and a host of other beasts that show up, because this is Life and sometimes it gets really messy.

This is going to seem like a side note, but is essential in us learning to not fear when the beast shows up.

I have 4 dogs. Their names are Fat Tuesday (160lb English Mastiff) Black Friday (wanna- be alpha male husky 70lbs) Lady Monday (35 lb Shepherd recovering from a broken leg and tentative) and Walter (40lb total mix and MY dog)

I observe them a lot and do a lot of training with them, but never to take away from their inherent nature. The dogs also serve as emotional conductors in my house where nerves get raw and sometimes we need to snuggle and pet something.

(Yes you are seriously reading about dog posturing on a blog that focuses on mental health – hang with me)

Friday has a tendency to get mad easily and will try to take it out on the two smaller than him. Monday will cower and pee on the floor unless cornered and then she takes the teeth out. Walter won’t take his crap at all. But he’s outweighed. So both of them have learned to avoid Bad Mood Friday.

Unless Tuesday is around.

(This sounds like a three stooges routine huh?)

Tuesday is our negotiator and protector when there is a problem, or she perceives an impending problem. Children or dogs beginning to argue, she physically puts herself between them and will nudge the offender or bigger away from the innocent or weak. When someone new is around, she stands guard and on the ready for the unexpected and her services are needed.

Not much gets past a 160lb mammoth dog that is clearly ready to put you in your place.

We all need a Tuesday. I don’t mean we all need a dog as big as a horse, but we need people who will be our Tuesday as we sludge through our mental illness.

We need that one person (or a group is better – but a group dynamic can add emotions which confuse the initial purpose) who we know when we are having a weak day, getting picked on or having an angry day; will lean on us and steer us away from the attack (real or perceived – hurt is hurt, pain is pain – no sliding scale of judgment).

But as great as online groups are and their support can be immediate, we need to find someone tangible, someone who can hold us. Perhaps a relative, friend, family, counselor, etc. just somebody you can touch. Never discount the simple act of your hand on someone’s shoulder who is about to cave.

Alycia & TuesdayGo find yourself a Tuesday and give that person orders to protect you in your fight. You won’t be shunned, I can guarantee that despite your bleak view of the world right now, you will be embraced and you will be safe.

 

#PPDChat Topic: #Semicolonproject416 – Life Goes On

#PPDChat Topic - ; and Life Goes On There’s a fabulous group bringing attention to those who live with mental health issues – The Semicolon Project. Their mission statement:

“The Semicolon Project is a Non-Profit Organization dedicated to presenting hope, help, and support to the people and communities suffering from mental health issues. We are here to address depression, anxiety, self-harm, addiction, and suicide. We aim to inspire and encourage people to do one of the hardest things imaginable: ask for help when they need it most.”

These are similar goals to #PPDChat. We are here to encourage people to reach out, address issues, and educate those who are fighting against this specific set of mental health issues. Our passion is dedicated to helping new families thrive as they find their way through new parenthood and for many of them, a new struggle with mental health challenges along the way.
According to The Semicolon Project’s Twitter profile, the meaning behind the semicolon is this:
“A Semicolon represents a sentence the author could’ve ended but chose not to. The author is you and the sentence is your life.”
Life is challenging with twists and turns. The toughest challenge, however, is to place a semicolon where you feel like there should be a period. Join me tonight as we talk about choosing to move past the tough and continue the sentence into the rest of our lives.
If you, or someone you love, are in crisis right now, there is help and there is hope. Reach out, seek help. If you need to call someone who understands and can help you, dial 800-273-TALK (8255). You are never alone.

A Different Breed

She sighs, in the dark, as her baby snuggles closer to her neck, his chubby fists opening and closing as he exhales and relaxes his body with a small whimper. She waits, supporting him, waiting for that moment when the weight of sleep brings a random tingle or two to her forearm. Stands up slowly, using muscles in her thighs to lift her upper body as she does so, careful to not a muscle touching her now sleeping infant. Eyes flutter shut as she puts one foot in front of the other, heading for the crib. Baby shifts, stutter sighs, and moves, nuzzling further into her neck. She moves her hand to the back of his head, rubbing it softly as she hums their song.

She manages to lay him down and leave the room. As she crawls into bed, her calves sink into the mattress first, then the exhaustion surges upward until her eyes slam shut until morning, all of an hour and a half away when she will wake up to a hungry baby, a dog with a full bladder, and a toddler who has probably strewn cheerios over half the house because she needed to feed the dog.

Motherhood.

It changes us.

Mentally.

Physically.

For some, motherhood is a warm field on a sunny day filled with laughter, babbling brooks, playful deer, and an intoxicating joy.

For others, motherhood is a dark room in the bottom of the keep, covered with bars, the key well beyond our reach. We fight, we scream, we rage against the thick door but it won’t budge. We see the warm field in the sun from the window a the top of our room and long for it – long to talk walks with our little ones as the sun beats down upon our faces and a smile spreads across our face but instead, we are trapped inside our own special hell.

Motherhood without a mental illness is not the easiest road to tread, either. Heck, life in general requires some level of tenacity. One of the most frustrating things I am faced with is not discounting the struggles that each of us go through – respecting the journey of every single mother without demeaning the journey of another. And yet, it’s my goal.

Over the past several years, I have been privileged enough to meet some of the most amazing and resilient parents. Parents who fight for themselves, for their children, for their relationships, for life. Parents who work through even deeper hells than I can even imagine and still manage to parent their kids, all the while, worrying about how their experience will affect their kids, their marriage, their jobs, their lives. Yet, every morning, they wake, get out of bed, and take another step forward toward healing, even if they are absolutely exhausted.

A friend of mine posted on FB a quip about hockey players being a different breed. He was commenting on Rich Peverly’s alleged desire to get back into the game despite having experienced a cardiac event on the bench. Any other sport and the player wouldn’t be thinking about getting back in the game, right?

The same is true of mothers battling against mental illness, whatever form it may take for them. We want to get back in the game. We want to play, we want to laugh. We want to be free to just…be…without the burden or restraint of our mental health on our souls. This is why we cherish the good days and wade through the bad ones. Why we hold on so tightly to every single glimmer of hope crossing our hearts.

We are a different breed.

We aren’t worse.

We aren’t better.

We’re just different and we want to be loved for who we are, not what you think we should be or could be.

We just are.

Love us anyway?

Reblogged: Honesty Is The Best Policy

There are people on Twitter I seem to have “known” for quite awhile. As it often is with Twitter, I am never sure how we “met” but there are a few I feel a stronger connection to than others. We may not talk often, but they are the ones I check in with from time to time. This post is from one of those people and it’s a really insightful and honest post about Postpartum Depression and Anxiety.

All too often we do not reach out for help because of stigma or because we think this is just the way things are supposed to be. This time around, she’s doing it differently. Go show her some love as she steps out into her brave new world.

#PPDChat Topic 02.03.14: The Five Senses Challenge

ppdchat-02-03-14

Life is lived through the senses, isn’t it? Memories are not just thoughts put on shelves in our brains, they are remembered best through sights, sounds, tastes, touch, and scents, right?

I remember my grandmother’s perfume. I could not, for the life of you tell you the name of it (I want to say Charlie, but I think I am horribly wrong) but whenever I briefly smell something similar, I think of her. Well, that and bouillabaisse but perfume is far more common.

The scent of ink takes me back to my childhood spent in the family print shop. That’s a cascade of memories – the sound of the presses whirring, the cutter chopping stacks of paper, the cement in the alley outside, the giant cardboard boxes and pallets of paper we would hide behind. Or the darkroom filled with massive amounts of chemicals I’m sure weren’t safe for me to be around but bring a dizzying memory of darkness glowing in the bath of a red light to the forefront of my mind.

Ocean waves crashing make me smell the salt spray drifting through the air, I hear the seagulls overhead, and the warm sun slowly baking me into a loaf of human bread. If I focus just enough, I hear the chatter of other people playing at the beach over the humdrum of the ocean waves.

The wafting scent of a cigar reminds me of my grandfather. He always had one chomped in his mouth as he puttered around outside, it seemed. Mix that with the scent of wet leaves in the fall and the memory of my grandfather is complete. Weird, yes, but that’s him.

Don’t even get me started on the deliciousness that is Entenmann’s or an Eggplant Parmesan sub because YUM. Oh, and delicious saltwater Taffy. OH the memories as it would melt in my mouth and stick to my teeth. Gah, I miss being a kid.

Right now, there is snow falling outside, floating and dancing as it drifts to the ground where it has collected en masse to add up to a minimum of 7 inches for now. It is a good healthy wet snow which means we get to make a snowman at some point. But for now, it is quite peaceful to just sit here and watch it silently and gracefully cover the entire landscape as if it were a bride preparing for her groom. Everything is draped in white, laden with heavy snow.

This week’s #PPDChat will focus on the senses and how living life mindfully helps you navigate your view away from the negative toward the positive. There is beauty in everything, it just takes a few extra minutes to tune in to the heart of it all. Once you do, you will find, however, that you can’t possibly miss the beauty in even the smallest of things.

I hope you will join me at 830pm ET tonight for this fabulous chat. Stay tuned for the worksheet to go along with tonight’s chat – I think you’re gonna love it!