Tag Archives: Postpartum Mood Disorders

#PPDChat Topic 07.07.14: Celebrating 10 Years of Postpartum Progress

ppdchat-07-07-14On July 13, Postpartum Progress turns 10.

Since inception, Katherine Stone has done quite a bit in the world of Perinatal Mood & Anxiety Disorders. She’s fiercely led us forward, called people out on the error of their ways, and is whole-heartedly dedicated to making the world an easier place to navigate when women are struck with one of the issues on the spectrum of PMADs.

Tonight, at #PPDChat, we’re going to talk about Katherine and what she’s done, what she’s doing, and share memories of how she’s helped us. Did you know she supported #PPDChat when it was just an idea in my head four years ago? She did. She’s supported quite a few of us as we’ve moved into advocacy and we are beyond grateful.

Be sure to join us tonight at #PPDChat as we celebrate the woman, the work, and the sisterhood she has created.

See you tonight at 830pm ET!

On Not Wanting To

I’m tired, y’all.

I’m so damn tired of reading about women splashed across the front page because they’ve done something horrible to themselves or their children.

I’m tired of immediately wondering who let her down. I’m tired of wondering at what point did she fall through the cracks. I’m fed up, to be honest.

It happens way too often, these worst case scenarios splayed across the front page for all to read and shake their heads in disgust or sigh in exasperation because yet another mom has lost her mind.

I’m tired of this bullshit.

I get that drama sells and when it comes to sales or clicks, it’s all about the what will draw people in so OF COURSE LET’S SHARE A STORY ABOUT A MOM WHO FAILED.

Where the hell are the stories about the doctors who failed to screen? Where the hell are the stories about the partners who told these new moms to just suck it up? Where are the stories about their loved ones who didn’t show up to help them when they cried out for help? WHERE THE HELL ARE THESE STORIES?

It takes a damn village, people.

Our village is in peril. Our village? FELL THE FUCK APART AND NO ONE GIVES A DAMN.

In America, we have a pitiful excuse for maternity leave. We are bombarded by stories of celebs who gave birth and look AHMAZING in less than three weeks after giving birth. We are insanely comparing ourselves to women who are a) genetically blessed and b) have crazy access to things like trainers, nutritionists, nannies… and then there are the way we compare ourselves to each other. Stupid idiotic milestones of when we went back to work, how much we manage to get done every day, pushing ourselves to be better than the next mom and still have it all pulled together.

It’s no wonder we are screaming out for help and some of us are doing so through extreme measures.

There was a push for screening but it’s buried in the ACA and we know how well that’s been going with implementation, right?

Then there’s the complication of who will screen. Maternal mental health care crosses so many specialties it’s not even funny. OBGYN, midwives, doulas, Pediatrician, General Practitioner, Lactation Consultants….so who screens? Does the OB? The midwife? The doula? The Pediatrician? The GP? The IBCLC? WHO? Once they screen, what happens? Is the woman informed of her results? Is she successfully referred to the proper care? Is that care knowledgeable about Perinatal Mood Disorders? Will they dismiss her as an exhausted mom instead?

What about the potential physical issues which can masquerade as PPD? Like anemia, thyroid issues, vitamin D deficiencies, etc? Will those be ruled out before she’s put on medication? Or is the doctor just going to toss a script at her and leave her all alone on her skiff in the middle of a hurricane at sea?

Where is this information in childbirth classes? Why are we not informing new moms about this? Why are we not telling them that it can happen, dear caregivers? WHERE ARE YOU? WHY ARE YOU FAILING US? WHY ARE YOU GLOSSING OVER THE DANGER???

Wake up.

Women are dying.

Children are dying.

Families are being destroyed.

And you, you are sitting there claiming “It’s not my place.”

But it is.

Your move.

Get it right.

On Walking Through Life as a Postpartum Mood Disorder Survivor

I had a very interesting discussion yesterday as part of an interview with a woman who is putting together a proposal for a book about Perinatal Mood Disorders. Both of us struggled with PP OCD and for the first time, I think we nailed it when we discussed how Postpartum becomes part of your life, even after the initial “crisis” phase passes.

You see, struggling with a Perinatal Mood & Anxiety Disorder affects your entire life. It affects how you function, how you relate to everyone and everything around you, and it ultimately changes your outlook on life. This change, this transformation, at least for me, is directly related to know just how far down I slid when it struck me from out of the blue the first time around.

Diagnosis is one of the first steps toward healing. Diagnosis leads you to help and regaining your footing on the proper path. We all walk different paths and for some of us, our diagnosis becomes our mask. For others, it becomes just one part of us. Or for others, it becomes the very definition of who we are as a person, a mother, and whatever else we are…some become the personification of a PMAD. One of the things we hit on is how women who do not define themselves completely as their diagnosis find it easier to heal because for them, it’s essentially a broken leg instead of a full body cast if that makes sense. It doesn’t take as long to heal just one part vs. the whole thing. Even then, there are always mitigating factors affecting the pace of individual healing.

When you fight back, you develop coping mechanisms to pull yourself through. These look different for everyone and depend on how defined you allow your sense of self to be by the diagnosis of a Perinatal Mood & Anxiety Disorder. It is also important to note that these coping mechanisms may continue to be part of your life for the remainder of your days. It takes 21 days to develop a new habit. Therefore, it makes sense that if you continue something for longer than 21 days, it will become a habit. Whether this habit is healthy or not is up to you and your physician to decide. If it’s minor, no worries. But if it affects your normal day-to-day functioning, it might be time to evaluate things and consider breaking this “habit” as it isn’t healthy.

Do I still carry some of my OCD habits with me from my Postpartum days? Absolutely. But I know they are not a sign that I am still fighting the beast. They are there because they were a part of who I was for a very long time. There are still signals that speak to me and let me know that I am spiraling down the dark path once again, however. My habits tend to increase and begin to interfere with my day to day living when this happens. For instance, I will obsessively brush my hair, stop listening to music, and start looking for things to be upset about if I start to feel overly stressed. Learning to recognize these is a huge leap forward and learning to accept that little quirks you developed with Postpartum are just that, quirks, is also a huge leap forward.

Today was a huge milestone for me. I cleaned and organized the entire first floor of our town house because it needed it, not because I needed to do it. Yes, the clutter was bugging me but not to the point that it made me twitchy. To clean and not “need” to clean felt fantastic. In fact, I’m sitting here, basking more in the accomplishment of having cleaned NOT because of my OCD and because it needed it than in the fact that the downstairs (including the front closet) is completely spotless.

Our habits stay with us after Postpartum because we have immersed ourselves in them for so long as a coping mechanism. Sometimes we have thoughts that carry us back to those dark days and it is important to recognize them as such – just thoughts, not an actual fall back into the dark hole (unless they persist for more than a week or two – then you may want to seek help). Some of us may move on to a deeper, lifelong diagnosis of a daily fight against mental health. But the thing to remember is that you are YOU. You are not your diagnosis, you are not your habits. You are YOU and YOU are amazing, even when it is darkest.

The Challenge of Moderating A Mental Health Peer Support Community

The world of advocating and supporting those fighting the hard fight against Perinatal Mood & Anxiety Disorders holds within it a myriad of challenges. Moderating a community requires a lot – patience, compassion, understanding, and knowing when to properly apply tough love. The last one gets me every time -it is definitely a challenge and very heart-breaking to apply tough love to a struggling mama- but it is sometimes the only option left.

Within the #PPDChat community, some moms may end up being friends, others may just need me for a short period of time on their journey. I have to be okay with either, learning to let go as the moms who contact me move in a very fluid way in and out of my world.

My primary goal, however, is to keep everyone within the community safe above all else. To ensure that they feel respected, empowered, validated, and treated with all the dignity each of us deserves as humans and as adults, something all of us deserve. When someone within the community fails to meet this goal or feels these goals are not being met, I take action.

When there is a threat/disrespect for the community, a member requires more help than I or other members can provide, or threatens the safety of those close to them, I reach out for additional support. Dealing with threats to themselves or to the safety of the group is not a pleasant situation but it is something which is bound to crop up every so often. I must be prepared to provide solace for all involved – the community at large and the struggling member, without divulging too much information regarding either. Even though I am not legally bound by the classic “client/therapist” privilege rule, I hold myself to it unless threats are made. Even then, I only release information to the necessary parties.

Moderating #PPDChat has taught me a few lessons about dealing with people in general:

1) Be kind, for everyone you meet is fighting a hard battle. This one is tough because sometimes, when I would like to be angry at someone, I see their pain. I see the suffering which is causing their anger. I have learned when to dive in and hold a conversation but at the same time I have also learned when to walk away and let them fight their own battles with their dark storms. Sometimes, and this is perhaps the toughest lesson of all, people need to fight the storm on their own and we have to walk away because they are simply not prepared to let others put on their battle armor with them. I have found that if I need to do this, the best way to do so is to leave the door open as I walk out, in case they are ready to have an army by their side.

2) Be kind to yourself, for the battles you face may be harder than you think they are and it’s okay to not be okay. We all do it, tell ourselves that what we’re going through isn’t as hellacious as it should be – a lie. It’s okay to fight, it’s okay to hurt, and it’s okay to be kind to yourself. I say this often: Self-care is not selfish, it’s selfless. There is a fine line between self-care and selfish, however – it’s importance to balance taking care of your responsibilities with taking care of yourself. In the same vein, it’s okay to say no to extras. Things which are responsibilities take priority over things which are “supplemental” to life. To figure out the difference, make a list and ask yourself if life will go on if you skip something. Meal prep is a responsibility. Gotta eat. Making a ton of cookies for the church social? Yeah, saying yes might put you in the good graces but if it’s at the sacrifice of your sanity, it might not be worth it. Instead, choose to spend that time with your family or with yourself.

3) Everyone won’t be happy with the rules…or with what other people in the group have to say about certain topics. We all come to motherhood with different expectations and beliefs about how things should go. We all walk different paths and need to find the right path for us – in the process, remember that the right path for US may not be the right path for those around us. Judging the choices of others is something I DO NOT tolerate in the #PPDChat community because we are already judging ourselves as women, as mothers, and as mothers fighting a mental health battle. The LAST thing we need to add to that full plate is our support community judging us too. When personal attacks happen, tough love knocks down the door dressed up as a Mama Bear.

4) Treating others with dignity goes a long way. We’re dealing with other adults here, not with children. I don’t even see Teen Moms as children. They are mothers now, with very real adult responsibilities. To treat them, or any new mother, as anything less than an adult with responsibilities, is to disrespect them. You’re not helping if you’re constantly holding someone’s hand and telling them what they can or cannot do. It’s not empowering to talk down to them. Mental health struggles do NOT equal incapable. I was an adult prior to my postpartum issues and I was still an adult when I was fighting the beast. I treat others with the same respect and dignity with which I would want to be treated in the midst of my own storm. I believe it lends to confirming to the woman/family seeking help that they ARE still human, they DO matter, and it provides a sense of normalcy, if you will. It’s possible to acknowledge struggles without demeaning or patronizing the person experiencing them.

5) Authenticity is important. Sharing parts of yourself as a peer moderator builds trust. It shows your community that you are indeed human and understand their pain. Particularly online, it is important to not just be a robot spouting self-care-isms, if you will. Mean what you say and say what you mean. My community is perfectly aware of my rather unhealthy obsessions with bacon, football, F1, Star Wars, and a myriad of other things. Why? It humanizes me and therefore humanizes the community as we are able to bond with each other over a myriad of topics. It allows us to talk about things beyond our “labels.”

6) Know when to be light-hearted and when to be serious. There is a fine line between these two approaches, particularly when dealing with mental health issues. Cross the light-hearted line a bit too much and you may end up in the stigma/discrimination zone. That’s never a good thing. We joke a bit more about it in closed group but I am always, always careful about how I phrase things because I absolutely do not put up with any form of discrimination within the community. I see everyone one equal footing – as people fighting like hell to just be themselves, whatever that may be now. We need laughter but we also need respect and tough love. Toeing the line requires finesse, something I work diligently at achieving.

I’m sure there are more lessons I have learned whilst moderating the #PPDChat Community but the six above are perhaps the most important ones.

It is my utmost desire that everyone who reaches out to #PPDChat for support find a community which respects them as a whole person, respects their individual choices regarding child-bearing and child-rearing, and empowers them as they fight with all their might on their journey toward being well once again.

I know people feel that way because I hear it every so often from those who have participated. In fact, just the other day @jenrenpody shared this with me:

“I turned to ppdchat because I felt safe, validated and heard. I needed that validation and support. I found so much more – community and friendships.”

#PPDChat works to do exactly what Jen states and it always will. If for some reason, you have a different experience, let me know and I will do my best to address the issue. You are absolutely not alone, you will be heard, and you are safe. Always.

What would be most important to you in a peer-based community support group and why? Has #PPDChat helped you feel empowered to fight your battle against Perinatal Mood & Anxiety Disorders? Join in the discussion by sharing below!

#PPDChat Topic: Like A Butterfly: Transformational Power of a Perinatal Mood Disorder

ppdchat 09-30-13

Today, we’re focusing on the ways Perinatal Mood & Anxiety Disorders change us. Many of us know all too well the amount of energy it takes to fight through to ourselves during a Perinatal Mood & Anxiety Disorder. As someone who is now able to look back at my experiences instead of being caught in the midst of it, I see how that fight changed my outlook on life as well as changed almost everything inside me. While I have been remodeled, some of the old me remains. Isn’t this the way with all trauma and substantial life experiences? We are constantly growing and changing as life ebbs and flows through us, are we not?

The 1:00pm ET chat will be a prelude to tonight’s chat with @WalkerKarraa regarding the amazing transformational power Perinatal Mood & Anxiety Disorders have in the lives of the women who experience them. I hope you’ll join us as we casually explore and discuss the ways PMAD’s have changed our lives during the afternoon chat.

Then at 8:30pm ET, Dr. Walker Karraa will join us. I am excited about her joining #PPDChat as a guest, particularly on this topic as she has been talking to several women about this very thing, allowing her amazing insight into the overall transformational power of PMAD’s in our lives.

To say I am excited about today’s topic would be a huge understatement. I cannot wait to discuss this with y’all!!! For more information about Walker and today’s topic, go here.

See you at 1:00pm ET and hope you will join us at 8:30pm ET as well!