Tag Archives: peer support

Just Talkin’ Tuesday: The Power of Peer Support

When I was in the darkest days of my Postpartum, I found myself at the hospital, wandering, wishing for another mom to talk with about the thoughts in my head.

Yet, there I was. All alone. Deflated. Lost. Confused. Worried. Scared. Frustrated. Numb. Angry. Trapped in a giant whirlwind of emotions with no map out.

What the hell? How did I get here? How would I leave? I was drowning.

I knew one thing beyond a doubt though – Moms struggling like me needed to be connected to other moms.

As I began to recover, I searched and searched for a way to begin to support other moms. Through this search, I found the wonderful Jane Honikman and Postpartum Support International. Jane encouraged me. So did Wendy Davis, now the Program Director with Postpartum Support International. These two strong and amazing women nurtured me as I grew in my capabilities and strengthened my skills in peer support. There was a time when I questioned my abilities. Wendy assured me I was a natural at social support. Pec Indman would do the same down the road.

Then, I became pregnant. It was not a planned pregnancy. To be honest, not even a wanted pregnancy at the beginning. As I stated last week, I used to pray my doctor’s office wouldn’t find my baby’s heartbeat and then weep with guilt when I felt disappointment at hearing the normally reassuring thump thump of my unborn child’s heart. What should have brought me joy instead filled me with pain and heartache. Eventually this was replaced with joy and happiness as I blogged, continued with therapy, and medication. One of my biggest turning points was the opportunity to interview Karen Kleiman for my blog. Her book, What Am I thinking: Having a Baby After Postpartum Depression inspired me to start blogging to begin with as I attempted to reframe my pregnancy. Interviewing her was almost full circle for me.

During all of this, I also became Community Leader over at iVillage’s Postpartum & Pregnancy Depression Board. I had been a CL before but found myself unable to relate to moms with “normal” lives after my own life had suddenly turned upside down and scattered all over the floor. As I scrambled to pick up the pieces, it felt like those moms were busy eating bon bons as they looked down on me scurrying about to pick up the shattered china. I also served as a moderator at the Online PPD Support Page for a bit.

Connecting with moms like me saved me. It saved my sanity. It provided a camaraderie which I no longer had with normal moms. It became my calling and purpose in life.

I wake each and every day with the goal of helping at least one family.

I have yet to fail.

I have no plans to stop anytime soon.

So….

Do you have a special someone in your life who has provided invaluable peer support as you went through Postpartum? Tell us about it here. Have you helped someone? Did it help you recover? Why do you help others? What drives your passion?

Want peer support? Have a question or concern? Leave it in the comments. Someone’s bound to read it and respond.

Did you miss out on in person peer support? Need help finding peer support? Leave a comment. You’re not alone anymore.

Let’s get to just talking!

A Note about #PPDChat today

For those of you who regularly participate in #PPDChat at Twitter, there is the possibility of a technical difficulty with the 1pm chat today.

I’ve already seen my buddy Mr. Fail Whale (ie, the Whale that shows up when Twitter is Over Capacity) twice this morning. According to Twitter, “We’re seeing periodic high rates of errors on Twitter.”

As of right now, chat is scheduled as planned at 1pm. IF for some reason, Twitter goes down and we are unable to chat, please email me at ppdacceptance(@)gmail.com for an alternative chat site. And of course, there is chat again tonight at 830p EST. Hopefully Twitter will no longer be seeing high error rates this evening.

Just Talkin’ Tuesday 05.18.10: How did you first share your Postpartum Mood Disorder story?

Today is a mash-up of posts.

It’s the APA’s Mental Health Blog Party day and my weekly installment of Just Talkin’ Tuesday. (If you’re interested in reading other entries for today’s Blog Party, the APA is rounding them up here.)

Today, the APA is asking all mental health (and not) bloggers to raise our voices in order to shatter the stigma which surrounds mental illness and disorders. In that spirit, I had to give quite a bit of thought to the topic for today’s Just Talkin’ Tuesday post. It had to be a topic we had not covered recently as well as one that fit the blog party spirit. And wouldn’t ya know it, inspiration strikes right as I am seriously craving some time with my bed. This topic has been meandering about upstairs for a few days but decided to wait until the last second to make a mad dash for the door, er, keyboard. So here I sit, at 1215am EST, words pouring onto my blog. I make no promises as to the length of this ramble. Proceed at your own caution and time restraints.

It started with a simple phrase uttered to me while at psych ward on a suicidal/harm to others hold during my second postpartum experience.

“You don’t have to tell anyone where you were this weekend.”

Why?

Why would I want to keep this experience a secret? What reason would I have for not wanting to share my struggle?

My mother raised me to keep the communication lines open no matter how deep the trauma. And my father taught me to always, ALWAYS think before I spoke. So you see, I strive to keep a balance between the two. Sometimes this means holding my tongue or my thoughts for a bit longer than I should and missing out on opportunities to speak up. But then I figure maybe it is for the best I didn’t say anything in the first place.

"Raffles Resort Beach"by fpugirl @flick

More than anything though, I believe strongly in both values. And these values are what caused me to question why on earth the nurse told me I didn’t have to tell anyone about my visit to the psychiatric wing. And what pray tell, would I have told them? That I had won a trip to the Carribean? Been waited on hand and foot? Slept the weekend away on pillows flatter than ironed Martha Stewart Linens? C’mon, people!

From the very beginning of my downfall, I was vocal about my experience. I asked questions. I sought answers. I wanted to talk to other mothers. I needed, desperately, to know that I was not alone in this new pitch black rough and tumble sea.

There was something I clung to as a lifesaver in the midst of my temporary insanity. And I don’t think I have ever properly thanked him for saying it to me right when I needed to hear these words the most.

“You are reacting no differently than anyone else in your shoes would be. Don’t let them tell you any different!”

My father spoke those words to me during a phone call from the hospital. I clung to that phone like a lifeline. My father’s words echo through my mind every so often but back then, when I needed to hear them most, they were a shiny buoy of hope in my dark dark sea. I never let go. Thank you Dad, thank you for knowing just what to say right when I needed to hear it. I am sorry if I have not thanked you before now but THANK YOU. From the very depth of my very healed heart.

If I could be on the phone, by golly, I was on the phone. Talking. Sharing. Being HONEST about where I was and how I had gotten there. And every last person on the other end accepted me, loved me, did not judge me. I know how fortunate I am to have that kind of support. Believe me, I am above and beyond grateful for the support which exists in my world. There are others who exist and fight with no support, no place to turn, alone in their dark sea upon which they are now sailing. Sailing with no compass, no supplies, lost.

There are mothers out there who struggle in the darkness for a very long time. So long, in fact, that Dr. Arlene Huysman coined a term, Progressive Postpartum Depression, an undiagnosed Postpartum Depression which gets darker and darker as time marches forward, dragging the darkness along for the ride. So long that there’s an entire Scientific American article dedicated to the topic and a ton of research on the impact of untreated Maternal Depression if you should care to go looking for it via Google or med journals. Why do they stay quiet? Why do they not seek help? It does not make sense. If your throat is sore, you see the doctor. Heart attack, ER. So why not this? Is it not the same? It should be treated as such.

But it is not.

Many believe you should be able to snap out of a depression. That Happiness is a choice. That somehow, we are choosing to be sad, insane, or conjure up these intrusive thoughts to get out of being a mother. That it’s all a conspiracy. But it’s not. Oh, it is SO not a conspiracy. There’s no dark back room to which we all retreat in the middle of the night and agree on what symptoms to exhibit the next day to escape the humdrum of domesticity. We don’t choose straws to see who gets to be the happy housewife and who gets to curl up in a ball muttering to herself. There are no auditions for this. IT.JUST.HAPPENS. And guess what? We don’t like going through it anymore than you enjoy watching us go through it.

A Postpartum Mood Disorder is sheer hell. First, there’s the myriad of symptoms from anxiety, to depression, to not eating to not sleeping to obsessing, to thinking horrific thoughts about what might happen to baby, what we might do to baby, etc, so on and so forth. And then there’s the guilt. OH the guilt. The guilt of not wanting to have anything to do with our baby. The guilt over not gushing over baby or not snapping back as quickly as celebrities or not coping like the suave women in the Johnson & Johnson commercials. The suave women who invade our homes every day as we sit in front of the TV with a screaming infant as our hair becomes ratty and our bathrobes and slippers wear thin because we haven’t changed our clothes in over a week. And then, there’s the judgment. We are supposed to be happy. Anything less than happiness is unacceptable in most families. Suck it up. Get over it. Yeah, motherhood is hard but I just did it. I didn’t get sad. I didn’t curl up in a ball. I don’t remember.

We are all different.

We are ALL beautiful.

And there is a quiet power in each and every one of our stories. An important power. One we must protect and share so that others will listen, learn, and understand.

"Stormy Sea" by Xeubix @flickr

When I was in the thick of my Postpartum sea with waves crashing all around me, I dreaded sharing my story. I hated having to explain to yet another person what had brought me to my knees. I hated answering questions.  At some point, that changed. At some point, it became liberating to tell others how I had managed to escape and heal. The mode of transportation whether it be natural, pharmaceutical, physical, spiritual – does not matter. All that matters is that you find what works for you, for your personal philosophy and situation. And damn anyone who dares to judge your choices. YOU are in charge of you – don’t ever forget that. It is your path to wellness and not that of anyone else. Take command of your decisions and let no man judge you for them.

When I first shared my postpartum story with power behind my words, it was with Wendy Davis of Postpartum Support International as I applied to be a Coordinator here in the state of Georgia. At the time, there was only one other Coordinator. There are now four of us, a statewide support network, and two support groups in operation according to the PSI Georgia webpage. That’s a lot of growth in just three years. Since then, I’ve operated my own support group (which has stopped meeting due to lack of local interest and support), began blogging to reframe a third pregnancy, and also become the Community Leader for two iVillage message boards dedicated to helping both Postpartum and Pregnant women who are depressed or struggling with mental illness. I’ve also recently started a #PPDChat at Twitter. Turnout there is still small but it has been powerful. I believe in quality vs. quantity when it comes to peer support. Every time I share a piece of my story, I empower another woman, another family. I continue to empower myself through my sharing. I am always healing, a work in progress.

There are power in your words. Share them but share them wisely and carefully.

How did you finally share your Postpartum Story? What made you decide to share your story? Was it with a loved one? With a colleague? A complete stranger? In person? Online? Or have you held it in for years, filled with shame because there was no one to tell who wouldn’t judge you?

Let’s finally get to just talking – and beat the crap out of PMD stigma while we’re at it, ladies and gents!

Have you been to #PPDChat yet?

Two weeks ago, on May 3, the very first #PPDChat took place @Twitter. (Don’t worry if you’re confused, I’ll explain what I just said in a few minutes!)

We had a few attendees at both chats. Overall response was very warm, excited, and generally thrilled about this new avenue of support available for new moms struggling with postpartum mood disorders.

This week’s attendance was even stronger, especially in the evening. Women were sharing, supporting, getting brave about seeking help (two even made doctor’s appts!), and even more exciting to see was that they were STILL chatting about it this morning! Attendees continued to encourage and support each other well after the official chat was over. Last night’s chat was so phenomenal it had tears streaming down my face. The sheer POWER of social media at it’s finest – truly doing what it’s build to do – help us connect and support each other. Speechless!

Imagine my surprise to see folks like @marchofdimes and @60secondparent spreading the word about #PPDChat!

I am so excited to see what is in store for #PPDChat and can’t wait to see you there!

I promised to share how to participate.

First, you need a Twitter account. It’s free and easy to sign up. Just go to http://www.twitter.com to get your account.

Once you’ve signed up, you’re good to go.

Our “chat” is held every Monday. There are two chats. The first chat takes place at 1:00pm EST with the second chat taking place at 830p EST. Both chats last about an hour but if they’re going strong or there’s someone who really needs to continue discussing, we won’t cut you off. Ever. We promise. Even though we call it a “chat,” it’s really a serious of tweets (those are messages sent on Twitter) with a specific hashtag (phrase which follows the # symbol). Our hashtag is #PPDChat.

There are a few ways to follow the chat.

If you’re already on Twitter and have a program like Tweetdeck or use Seesmic or HootSuite, you should have a way to follow specific #hashtags.

If you’re just on Twitter via the web, type in the hashtag (#PPDChat) into the search box. The search page will update to show you additional tweets and you can click on them to see the new messages. There is a message/Tweet box at the top of this page so you can participate directly from the tweet page.

There’s also http://www.tweetchat.com. You do have to authorize this to work with your Twitter account and then type in PPDChat up top next to the hashtag. (it’s a little hard to see – I had a rough time with it) The nice thing about using tweetchat is that it automatically hashtags all of your tweets for you so you don’t have to remember.

If you have any further questions, please leave a comment here or find me on Twitter. I’m still @unxpctdblessing there. Click here to follow me: http://www.twitter.com/unxpctdblessing

I do have lovely co-hosts assisting me in this endeavor and I am SO happy they are because without them it wouldn’t work as well as it has so far! Thank you ladies!

Co-hosts are:

@postpartumprogr

@ivyshihleung

@Atlantamom

@helenfcrawford