I finally got around to completing a Facebook page for My Postpartum Voice at Facebook!
I hope to continue to improve on it as time goes by but right now it is a work in progress.
You won’t regret it.
I finally got around to completing a Facebook page for My Postpartum Voice at Facebook!
I hope to continue to improve on it as time goes by but right now it is a work in progress.
You won’t regret it.
All across the globe, there are Researchers dedicating their lives to exploring all aspects of Postpartum Mood Disorders. Many of these researchers work in clinics, some are purely academic, and others review the research of others and present a compilation to conclude results.
Clinicians (for our purposes here) are trained in a variety of professions from therapists to psychiatrists to psychologists. These are the professionals on the front line. Some may be trained specifically in Postpartum Mood & Anxiety Disorders while others may be largely unware of the nuances of these conditions.
Medical Professionals often see Postpartum Women prior to a Clinician is involved. These are General Pracitioners, Family Practice doctors, Pediatricians, Obstetricians, Midwives in some areas, ER doctors, nurses, etc. These professionals again, may or may not have additional specific training in Postpartum Mood & Anxiety Disorders yet it is highly unlikely they are familiar at all with the nuances involved.
Peer Support Advocates are in the trenches. These may be made up of survivors, passionate and informed Clinicians, nurses, pediatricians, IBCLC’s, doulas, and a number of other people various walks of life. They become Peer Support Advocates for various reasons but largely due to personal experience from either a lived experience or the experience of a loved one.
Struggling Patients are in the thick of a Postpartum Mood & Anxiety Disorder, often navigating the system for the very first time. Many of them have never had a mental illness before giving birth or pregnancy. They are not familiar with their rights, the issue of medication, diagnosis, follow-through, or where to turn for help. They are filled with guilt, shame, and fear. These families and patients are often afraid to speak up and reach out for help. But their voices are increasing. Yet they are still echoing into an empty cavern as they scream out for the help they so desperately need.
Peer Support Advocates often are the first to hear the cry of the struggling patients. We work with them to find knowledgeable support in their locale. While the possibility of connecting these patients with knowledgeable or compassionate care is increasing, often times, we find ourselves up against a brick wall riddled with barriers to treatment. The biggest barrier is lack of knowledgeable local referrals. Primary referral in many areas is often to an uninformed or untrained Medical Professional.
An uninformed Medical Professional may do more harm than good with a Postpartum patient. He or she may erroneously take the DSM guidelines to heart, refusing to acknowledge a Postpartum Mood Disorder if the patient had her baby more than four weeks prior to presenting with symptoms. Nevermind that the APA itself admonishes the usage of the DSM in such a manner. If the non-mental health trained Medical Professional is informed, then the patient may find herself ushered higher up the ladder into the office of a professional Clinician trained to deal with psychiatric illness and disorders.
Clinicians are not always trained in Postpartum Mood & Anxiety Disorders. Therefore, it’s important for the patient to know what questions to ask when making an appointment with a specialist in the psychiatric field when seeking help for a PMAD. Questions like “Have you been trained in Perinatal Mood Disorders?” or “By whom have you been trained?” or “How long has it been since you were trained?” or “What is your approach to treating PMADs?” are all excellent questions someone who has been trained in Perinatal Mood Disorders would be comfortable in answering. A good clinician will answer honestly that he/she has not been trained but is willing to learn. He/She should offer her viewpoint on treatment and not force you into accepting their way or the highway. A good (and informed) clinician will also keep up with the latest research regarding PMADs.
Researchers are often not in the field with patients. On rare occasion they are clinicians themselves. Many are academic researchers. These researchers study everything from epidmeology to treatment to type of Perintal Mood Disorder, to risk factors, to contributing factors, birth trauma, etc. The issue with Researchers comes in when their research is manipulated, funded by Pharmaceutical companies, involves retro-data, a small data group, or a limited field in which some factors are not viable simply because the size of the group or source of the group is inherently flawed or for some other various reason. This is not to say that all research should be thrown out the window. It shouldn’t be at all. BUT it is important to be able to distill the research with a keen eye and apply some common sense to the outcome.
This is where Clinicians, Medical Professionals, and Peer Suppport Advocates come into play. Anyone trained or in contact with experts in the field of Perinatal Mood Disorders will be able to help you recover. Even those not well-trained but well-meaning and open-minded will be able to help you. If your Clinician, Medical Professional and Peer Support Advocate is willing to help formulate (or find) help which fits your personal lifestyle and belief system, your chances of recovery increase. But if you have a Clinician, Medical Professional or Peer Support Advocate who is closed off to certain avenues of treatment due to a certain aspect of your own life such as breastfeeding, other children, pregnancy, etc, then you may want to continue looking for help elsewhere.
In light of the new guidelines in the DSM-5 which will keep the Postpartun Depression Identifier at 4 weeks, we need to work to get those involved in care for Postpartum Women struggling with disorders talking with each other instead of at each other or indirectly with each other via research, peer support survivors, and trainers, etc. But how do we do this?
How do we get the researcher to share with the Clinician their goals, interests, and conclusions? How do we then get the Clincian to spark interest in the Medical non-specialist Practioner to learn about Perinatal Mood & Anxiety Disorders? Then how do we plug in the Peer Advocate and the patient? How do we open the discussion between Professional, Peer Advocate, and patient? How do we keep the communication going once it’s started? What will it take? How many more tragedies must we endure before everyone involved is ready to talk and on the same page?
Enough is enough. We need to stop talking at each other, around each other, to each other and instead talk WITH each other. Until we do, innocent women, children, and families will continue to struggle, suffer, and possibly even die. I am not willing to let that happen. Are you?
Speak up. Say something. EVERY Word makes a difference. Every.Word.
I loved this piece not only for the beautiful and talented writing but for the inclusion of Christianity into the battle this Mom is currently fighting.
When I was first struggling through Postpartum OCD, I had a Christian background but did not consider myself to be Christian at the time. As I started my support group, I shied away from starting it at a Church so as not to make potential attendees uncomfortable. Then I met Tara Mock, the founder of Out of the Valley, a faith-based Postpartum site. Tara led me to Sue McRoberts and eventually I met Rebecca Ingram. While we all haven’t met in person yet, I admire all three of these women for their strong faith and know in my heart of hearts that God put them in my path to help my own faith grow.
And grow it has.
I was baptized (again) this past April. I have no doubt that whatever has come my way is for a reason even if I do not believe it a the time. It has been so very comforting to finally be in a place where, if something goes wrong, I know I can lean hard on God to take care of it all. Even when I was not at this place, it was not because I had not prayed enough. It was not because I had been a bad “Christian.” It was not me. It was God, carrying me through a storm because He knew what was down the road for me. I am finally grateful for my experience. Do I wish it had never happened? Sure. But it did. So I deal with it I must.
Today’s voice hid her depression for five long years despite having noticed not feeling right after the birth of her daughter, Sarah. She observes her reason why so many struggle in isolation with depression:
Depression is a subject that many people do not like to talk about, especially in the church, which is very unfortunate for those that face this day in and day out. We should be able to come to one another, as brothers & sisters in Christ, and share one another’s burdens. But yet so many people face depression alone.
I believe the cause of this is due to what is being said from pulpits, what is written in books, blogs or spoken amongst friends. I once believed the lie, that if you are struggling with depression 1) you have sin in your life, 2) you have turned your back on God 3) God is punishing you for past sins.
As she moved forward to seek help, she also struggled with these very issues.
I started searching online, found a sickness that I thought I had, went to the doctor, told him what I thought was wrong, and wanted him to fix it. I can’t remember exactly what I told him I thought I had, something about blood sugar. When he told me he thought I was dealing with depression, I fought him on it, and then I broke down in his office. He told me, basically, I was dealing with PPD (postpartum depression) I wouldn’t let him speak the word depression, he finally started calling it postpartum anxiety so I would listen to what he had to say.
She found herself on and off medication for the next few years. This past April she stopped taking her medicine again.
A couple weeks/month later I hit the bottom. Hard. I literally could not think straight, make a decision, or go a day without having a meltdown. I didn’t want to leave the house, I felt terrible, sick, all the time. To make it worse, all the thoughts I’d had previously, came back. The guilt alone was enough to push me over the edge. Looking back, I don’t know why it took me so long to go back to the doctor. I think I was still clinging to the lies, in fact, I’m pretty sure that was it. I started questioning my salvation. I started doubting everything I knew to be true. I hated myself, who I’d become. I felt like a liar and cheat. I hated that people thought me better than I was, who said kind words about me, I actually, to put it nice, wanted to hit, and yell at them. Those who told me they wish they could be like me, stay at home, do it all, I wanted to take them up on it, but I just smiled and said, thank you.
I applaud her for speaking up about her experience even if it took her so long to do so. Her story will undoubtedly touch women of faith as they too struggle with their own brushes with depression. We are just human, even if God is on our side. He is there to lean on in the hard times, and will always be there when we need Him most. And ladies? HIS opinion is the only one that matters. He will always love us. Always.
Now go read the whole piece over at Raising Little Women: The “D” Word.
Tonight, before I broke Twitter and received a 503 error message, I received the above question in my Direct Message inbox.
It caught me off guard.
140 characters did not provide nearly enough space in which to respond.
Why she felt she had to DM the question also caught me off guard. Why not just ask in public? It’s not an intensely private question and certainly not one (obviously) I mind answering in public.
A series of mini-episodes or thoughts – hrm.
Let’s see.
My first brush with Postpartum involved OCD, which yes, involves thoughts. Rushing thoughts that liked to run through my head like crazy streakers intent on tackling me to the pavement. I had to either duck or face plant the cement. (FYI, Cement? Tastes like rubber glue. Also makes really dangerous shoes, I hear.)
That OCD fed into depression during pregnancy. THAT was fun. But it didn’t involve those fun face-planting thoughts. Just day after day of darkness with the weight of a blue whale latched to my ankle that I couldn’t shake. Darkness that kept me from eating, playing with my toddler, interacting with my husband, participating in life. Darkness which overtook my life faster than I could outrun it. Darkness that swallowed me whole with a vengeance.
Then my daughter was born with a birth defect. The face-planters returned with a vengeance and brought their friends, P,T, S, and D. Together, they hooked up with Party City and threw one helluva party in my head. I got lost in the fog. Very, very, very lost.
If I could have escaped the darkness, the fog, the insanity, by just changing my next “series” of thoughts, I would have done so in a heartbeat. If that’s the way it really is, then someone should have clued me in a long time ago. Someone should clue in all those suffering moms out there right now. Or give the moms to come a heads up. Hey – if you just DECIDE to be happy with your next thought, guess what? YOU WILL BE!
There’s power in positive thinking. While there may be, it certainly isn’t a quick fix. It takes time to heal from Postpartum Mood Disorders or any mental illness for that matter. Some may never heal as the root of their illness may be biological or something they have to live with for the rest of their lives. There is recovering and there is coping. I coped while I journeyed toward recovery. But I most certainly did not jump from mini-episode to mini-episode or from thought to thought (okay, so maybe the thought thing but underneath the thoughts there was a deeper issue at hand causing those thoughts to emerge from the depths of hell and torment me.)
I believe for some Postpartum Mood Disorders are a major event in life, one which forever alters the course of any life left to live. My own brushes with PMD’s have been a very important part of who I am today. As I journeyed on the road to recovery, (by the way, someone should really repave that road. The bumps? Atrocious!) I held on to life with every fiber of my being. It took everything I had most days NOT to drive my car into on-coming traffic. I did not – (obviously) because I had kids to care for – kids who love me, trust me, and look forward to spending time with me each and every day. But to be honest, there were days way back when where my kids? Weren’t really a reason to stick around. To be that far gone is scary. To not care if you see your kids grow up – to not have them as a reason to stick around – wow. (These days I am madly in love with my kids and wouldn’t dare think about leaving them in forever terms on purpose!)
Ultimately though, life IS a series of thoughts. Sometimes these thoughts get stuck in the lows. Some days, they get stuck in the clouds. And sometimes? There’s a traffic jam. And that’s an event. Sure, sometimes a traffic jam clears up on it’s own. But other times? Other times we need professional help to get it all cleared up. We don’t hesitate to accept the help of professionals to clear up the traffic, right? So why would we hesitate to accept the help of professionals when our brain has a traffic jam? Doesn’t make sense, does it?
Bottom line though – it’s your Postpartum Mood Disorder to define as it fits you, your lifestyle, your perception. You may feel that your PMD is a series of mini-episodes or thoughts. It ultimately doesn’t matter how anyone else defines Postpartum Mood Disorders as we all bring our own stories and baggage to the plate.
What are your thoughts? ARE Postpartum Mood Disorders just a series of events or thoughts? Or are they something major? What was it for you?
I would be a hypocrite if I did not take time for myself. After all, that’s what I firmly advocate for moms who contact me. We absolutely need time for ourselves so we can thrive and our families can then thrive.
Lately, it’s been hard for me to do just that. Not so much because I don’t want to but because I have been awful at making time for myself. But I’m having to shuffle my priorities and force myself to do so.
Sometimes, the blog may go quiet for a bit. It’s not because I don’t care. (I’ll never stop caring) It’s not because I don’t want to blog. It’s because I need a break.
I know life gets crazy for everyone. Here lately, it’s been very crazy as of late.
The trip to Austin for the PSI fundraiser was a lovely break. However, the craziness started before my journey to Texas.
In late April, my husband was laid off.
Sick kids.
School got out for the summer.
Back on government assistance. Which, by the way, is NOT easy to qualify for as they want every single last document under the sun and it’s all due 10 days before they send you a letter (and yes, I got a letter like that). They really work against you to keep you off the system. And what really sucks is that with hubs’ job, we were finally phasing out of needing the assistance.
He gets unemployment but it’s not nearly enough to support a family of five. So I’m looking for a job. And that means I may have to cut what I do here unless I can find some sort of financial support for the blog soon. Sadly, it may even affect my ability to participate in #PPDChat. That makes me very sad. It makes me especially sad because I know I won’t be happy doing anything else but supporting moms. I truly feel it is what I was called to do and I know in my heart I am good at what I do here at Postpartum Voice, Twitter, and other websites.
Hubs is working at getting his own computer biz started. He’s great at repairing and working on computers so he’s getting that on the road right now. He has one regular business client at the moment and some random individual clients as well. It’s growing but again, it’s tough going out there these days.
This summer also saw a very stressful situation between myself and a family member. I am not going to go into details but suffice it to say it led to some of my worst days since the depths of hell with my Postpartum mood disorder. The end of that week found me in tears and watching four and a half hours of stand up comedy. That was followed by a severe adrenaline withdrawal.
The next week was Austin. Austin was great. Until I came home. My original flight was canceled and I did not leave the airport until nearly 6 hours after that flight. I have never been so happy to be back in Atlanta!
The following day, my 4yo started Pre-k.
The next day, my 6yo had her tonsils out so she was home for a week.
Then my 4yo got sick this past weekend.
Now hubs is sick, 2yo is showing signs of getting sick, I’ve got PMS, the dog is scratching and licking places she really shouldn’t be on a constant basis because of her allergies (and no, Benadryl doesn’t work – bathing her a minimum of once a day does), our washer is on the fritz and will flood the back porch in the blink of an eye if you leave it alone at the wrong time, and… ugh. See the damned snowball in Georgia? That’s my life. And I am not coping well with it right now.
Today though, the girls are back in school. Hubs just left for a computer job for his business client and Cameron is (somewhat) playing independently as I type this.
I had a huge vision for this blog when I revamped it and am hoping to get to these changes soon – I really want to start posting a vlog for my Just Talking Tuesday posts. And WordPress has recently introduced this new service which allows us to PHONE in our blog posts. How cool is that???
I also want to start a forum for readers to share with one another.
But right now, I need to take care of me before I can take care of others. So if I don’t post for a few days, it’s not because I don’t love you. It’s not because I’ve stopped caring. It’s because I’m simply practicing what I preach and taking care of me so I CAN take care of others. I don’t deserve any less. And neither do you.
Most nights lately have found me passed out on the couch after the kids are in bed. Last night my husband tried to wake me up and get me to go to bed. I fell asleep in the middle of tweeting, y’all. In the middle of TWEETING! That’s tired.
Please pray for us as we move through this tough time in our lives. Pray that my husband is able to expand his business quickly. Pray that somehow I manage to get financial support for the blog worked out. I’ll be putting up a page soon specifying a wish-list of needs. First things first, I’d have to go to self-hosted in order to do any sort of ads. If I do run ads, rest assured that I will vet any and all support for moms and will NOT under any circumstances allow the placement of ads for any medication or supplements on my blog. I will remain committed to supporting moms in whatever choices they have made without judgment. We all have to walk our own path and deserve to do so without guilt brought on by the judgment of others.
Thanks for reading.
I’m going to close my laptop after I hit publish and go talk my son out of wearing his sister’s tennis shoes.