Tag Archives: mental health

#PPDChat Topic 06.16.14: Faces of #ClimbOut

#PPDChat Topic 06.16.14: Faces of #ClimbOutLast week, A’Drianne (@addyeB) hosted #PPDChat. She shared all about the upcoming #ClimbOut for Postpartum Progress (which, by the way, has surpassed the 100k goal!). If you’re interested in finding out more about this event, which happens this Saturday worldwide, you can read all about it here.

Tonight’s #PPDChat welcomes leaders of various Climbs throughout the world. Get to know the women who have fought through their own battles with Postpartum Mood & Anxiety Disorders and are now doing something to help raise awareness of this insidious issue which affects 1 in 8 new mothers.

The two primary leaders joining us tonight are:

Susan Petcher, who is leading a COTD team of 6 up Mt. Washington in New Hampshire on June 21st.  She blogs at Learned Happiness about motherhood and mental illness, writes for Postpartum Progress, crochets compulsively, and loves Minecraft. (You can find her on Twitter @learndhappiness)

and

Courtenay Petracca, leading the COTD Team Rhode Island. She is a mother of a 2.5 year old girl. Suffered from perinatal depression silently until my daughter was born. The best decision of her life was to call the hospital and get help when her daughter was 5.5 months old. (You can find her on Twitter @Cxs918)

I am SO excited to chat with all these passionate women tonight. I sincerely hope you’ll carve out an hour to join us at 830pm ET. See you then!

 

NIMH Gets Failing Grade for Perinatal Mood & Anxiety Disorder Chat

Last week, a friend of mine tagged me in a link on FB to give me a heads up about a NIMH chat this week about Perinatal Mood Disorders. Of course we were looking forward to it and hoping it would be a worthwhile discussion. I nearly missed it on Friday morning (May 16, 2014)  thanks to a nasty case of food poisoning which knocked me off my feet for the better part of this week. But, I managed to dive in just 10 minutes into the chat.

It was…….awful.

Stilted.

Non-engaging.

Spouting of facts and just the facts, according to the NIMH. (They managed to screw up a few things. Don’t worry, I’ll go there. Oh, yes, yes I will.)

Self-promotion and only self-promotion. No real response to the powerful Perinatal Mood and Anxiety Disorder Advocates who showed up until we started really pushing back. Even then, their response was still stilted.

Just when it seemed it couldn’t get any worse, the NIMH began repeating tweets from the beginning of the chat instead of answering the flurry of questions coming in from those participating.

If NIMH handed this chat in as a graded project, it would have received an F.

When I asked what was being done to encourage medical professionals to become better educated about PMAD’s, this happened:

NIMHChat Congress

Yep.

Congress MANDATED we pay more attention to PMAD’s. In fact, it got shoved in with the ACA. And we all know how well that’s going. After this response, I asked a follow up question asking how that was going – asked for hard numbers. Did I get numbers? Nope. BECAUSE THE ATTENTION MANDATED BY CONGRESS LACKS FUNDING AND THEREFORE ATTENTION.

I’m okay, I’m okay. *deep breath*

There was also this lovely moment in chat:

NIMHChat Snafu

I know, right?

Because we ALL got better by staying in bed thanks to depression, right? Right?

Instead of urging moms to get up, move, and care for themselves, the NIMH  provides them with excuses to stay in bed and well, suffer. Way to go, NIMH. WAY.TO.GO. *slow claps*

While I realize it is difficult to manage a large scale chat with several participants (something I have done myself, when #PPDChat was very well attended), there is absolutely no excuse for the following to happen during your chat:

1) Blatantly state misinformation/misleading facts about your topic. Particularly if said topic is subject to entrenched stigma and misinformation (which is why you are having the chat to begin with, right? Not because it’s a hot topic and you’re using it to draw people in…)

2) Not engage those who are participating – this is SOCIAL media, y’all. SOCIAL. ENGAGE. Like Jean Luc Picard on the bridge of the Enterprise. Even if you’re just going at impulse speed, ENGAGE for the love of ALL that is..well, you know.

3) Don’t repeat yourself word for word. It lets people know you’re unprepared.

4) Share resources other than your own. (see number 2 about social media).

5) Do NOT TREAT those participating with disdain, contempt, or as if they are idiots. They are attending your event which would be nothing without participants. Respond accordingly unless they are clearly bashing you (which we were not) and if they are bashing you, ignore them before you stoop to the level of responding with disdain.
Things to do during a Twitter chat:

1) Engage. Be Social. Greet people. Be happy and upbeat. SMILE through your keyboard.

2) Be knowledgeable and approachable.

3) Treat everyone as if they are your equal. They are there to learn, not to be kicked. Acknowledge their words, their struggle, their questions with the same respect you expect from them. You know, do unto others as you would have them do unto you.

4) Offer insight through connections and share resources from others in addition to your own. The only answer is not yours. Crowd-source and use the media at hand to enhance your chat.

5) Do your best to make everyone be heard, even if it’s through just RT’ing what they’ve said. Again, I realize this is difficult on a LARGE scale but if you have known experts participating, acknowledge them.

I truly hate when things like this go wrong because there is such a tremendous opportunity for exposure when a government agency holds a chat like this. I want to say I’m surprised at how things went but sadly, I am not. Instead of raising awareness and building hope, NIMH decimated the chat with a lot of tweets about nothing, leaving at least one person (and possibly more) with the idea that there is in fact, nothing a mother can do to prevent a PMAD:

NIMHChat PPD cause

And that, dear friends, is NOT the taste you want to leave in the public’s mouth when discussing PMAD’s. Because there is hope. There is help. We are not alone.

Go to Postpartum Progress to find women who are fighting back.

Or Postpartum Stress Center’s website.

Or Beyond Postpartum.

Or find me on Twitter @unxpctdblessing. Or search the hashtag #PPDChat. Message me for the private FB group full of women who KNOW this is hell and yet are fighting back against it with everything they have.

We’re all here for you when you’re ready to reach out for help.

(And THAT is how you end a chat about Postpartum Mood & Anxiety Disorders).

*drops mic and hits publish*

#PPDChat: 05.05.14 – The Beast We Don’t Fear with @Alycianeighbour

Alycia is the kind of person every one deserves to have as a friend. She’ll laugh at all the inappropriate things with you, scoop you up when you’re down (even if she’s down too), and then take you to the park where you stomp at pigeons to keep them away. Seriously though, the woman has a very deep heart and has been through quite a bit (you can read her fabulous blog here). She’s the type of friend you can call even if you haven’t talked in awhile and it’s like you never stopped talking. Alycia’s spirit is grounded in her faith in God. It’s constantly challenged by her large (occasionally, okay, mostly chaotic) brood and her menagerie of pets, and soothed by her amazing husband and friends. Somehow, she manages to write and sorta stay sane enough to be friends with the likes of me.

Today’s #PPDChat is based on a post Alycia wrote for me, which appears below. She discusses her dogs (yes, it’s applicable) and how their personalities convey the type of people we might find in our lives. She urges us to find a person like one of her dogs, Tuesday. You’ll have to read the post to discover the details.

This is a chat you don’t want to miss. You’ll laugh, you’ll snort, and most of all, you’ll get some hard truth from both of us about life. See you tonight on Twitter at 830pm ET, 730pm CT, and 530pm PT!

Without further ado, here’s Alycia’s post:

The Beast We Don’t Fear

In our home of 8, there are a lot of beasts we deal with. Recurrent Depression, PTSD, ADHD, and a host of other beasts that show up, because this is Life and sometimes it gets really messy.

This is going to seem like a side note, but is essential in us learning to not fear when the beast shows up.

I have 4 dogs. Their names are Fat Tuesday (160lb English Mastiff) Black Friday (wanna- be alpha male husky 70lbs) Lady Monday (35 lb Shepherd recovering from a broken leg and tentative) and Walter (40lb total mix and MY dog)

I observe them a lot and do a lot of training with them, but never to take away from their inherent nature. The dogs also serve as emotional conductors in my house where nerves get raw and sometimes we need to snuggle and pet something.

(Yes you are seriously reading about dog posturing on a blog that focuses on mental health – hang with me)

Friday has a tendency to get mad easily and will try to take it out on the two smaller than him. Monday will cower and pee on the floor unless cornered and then she takes the teeth out. Walter won’t take his crap at all. But he’s outweighed. So both of them have learned to avoid Bad Mood Friday.

Unless Tuesday is around.

(This sounds like a three stooges routine huh?)

Tuesday is our negotiator and protector when there is a problem, or she perceives an impending problem. Children or dogs beginning to argue, she physically puts herself between them and will nudge the offender or bigger away from the innocent or weak. When someone new is around, she stands guard and on the ready for the unexpected and her services are needed.

Not much gets past a 160lb mammoth dog that is clearly ready to put you in your place.

We all need a Tuesday. I don’t mean we all need a dog as big as a horse, but we need people who will be our Tuesday as we sludge through our mental illness.

We need that one person (or a group is better – but a group dynamic can add emotions which confuse the initial purpose) who we know when we are having a weak day, getting picked on or having an angry day; will lean on us and steer us away from the attack (real or perceived – hurt is hurt, pain is pain – no sliding scale of judgment).

But as great as online groups are and their support can be immediate, we need to find someone tangible, someone who can hold us. Perhaps a relative, friend, family, counselor, etc. just somebody you can touch. Never discount the simple act of your hand on someone’s shoulder who is about to cave.

Alycia & TuesdayGo find yourself a Tuesday and give that person orders to protect you in your fight. You won’t be shunned, I can guarantee that despite your bleak view of the world right now, you will be embraced and you will be safe.

 

#PPDChat Topic: #Semicolonproject416 – Life Goes On

#PPDChat Topic - ; and Life Goes On There’s a fabulous group bringing attention to those who live with mental health issues – The Semicolon Project. Their mission statement:

“The Semicolon Project is a Non-Profit Organization dedicated to presenting hope, help, and support to the people and communities suffering from mental health issues. We are here to address depression, anxiety, self-harm, addiction, and suicide. We aim to inspire and encourage people to do one of the hardest things imaginable: ask for help when they need it most.”

These are similar goals to #PPDChat. We are here to encourage people to reach out, address issues, and educate those who are fighting against this specific set of mental health issues. Our passion is dedicated to helping new families thrive as they find their way through new parenthood and for many of them, a new struggle with mental health challenges along the way.
According to The Semicolon Project’s Twitter profile, the meaning behind the semicolon is this:
“A Semicolon represents a sentence the author could’ve ended but chose not to. The author is you and the sentence is your life.”
Life is challenging with twists and turns. The toughest challenge, however, is to place a semicolon where you feel like there should be a period. Join me tonight as we talk about choosing to move past the tough and continue the sentence into the rest of our lives.
If you, or someone you love, are in crisis right now, there is help and there is hope. Reach out, seek help. If you need to call someone who understands and can help you, dial 800-273-TALK (8255). You are never alone.
ppdchat-03-24-14

#PPDChat Topic 03.24.14: Say This, Not That

ppdchat-03-24-14

Language. It’s how we communicate with one another. It’s what I’m using right now to convey a message. We have so many -isms and quotes about how to use language in polite company, don’t we?

“If you can’t say something nice, don’t say anything at all.”

“Sticks and stones will break my bones, but words will never hurt me.”

“Think before you speak.”

“Keep the communication lines open.”

“The pen is mightier than the sword.”

But those contradict each other, don’t they?

Yes, and no.

If you think before you speak, you won’t say anything horrible, therefore you won’t hurt anyone, but then the communication lines may be closed unless you only allow the positive out, right? And heaven forbid you grab a sword instead of a pen. A pen – writing – allows us to THINK before we “speak” – to work out what it is we want to say and to edit our thoughts carefully before sharing them with others.

My father drove home the point of thinking before I speak. My mother, on the other hand, emphasized keeping the communication lines open.

Do you have ANY idea how difficult that is to bring to a happy middle? DO YOU?

Sometimes I can’t help but laugh at my inability to speak up or comment on something because I know exactly what I want to say but can hear my father’s voice in my head telling me to “think before I speak” immediately followed by my mother’s voice telling me to “keep the communication lines open.” So sometimes I speak, other times, I remain silent. When I do speak, I do try to be succinct, compassionate, and non-accusatory. Does it always work out? Hell no, I’m human for crying out loud and to err is to be human or something along those lines.

But here’s the thing.

Language does matter. Tone matters. Perception matters.

That’s what we’ll be addressing tonight. Language. Tone. Perception. Not just our own, but that of those around us. Every single one of us has our own baggage. What someone says about you or how they choose to react TO you is not necessarily about you, or even about them. It might be something they’ve been dragging with them for years and it merely slips out at the wrong time. Or at the right time.

Language makes or breaks stigma. So do actions. This morning, I read this wonderful post over at Brain Pickings: The Unaddressed Business of Filling Our Souls: Mood Science and the Evolutionary Origins of Depression. It is a brilliant post in that she examines a book entitled “The Depths” by Jonathan Rottenberg (which is now on my MUST READ list). One of the points she mentions that Rottenberg makes is that emotion/mood are terribly languagecentric.

Think about it – we assign positives and negative stigmas to words which describe moods. Are we supposed to find “joy” when someone is depressed? No, of course not, but what if instead of reacting with pity, we instead dove in and asked if we could do anything to help? Or we saw it as Rottenberg sees non-severe depression (ie, paralyzing depression), just as part of the ebb and flow of the cycle of life?

How we describe ourselves and how we allow others to describe us affects our self-view and therefore affects our moods. It matters how much weight we ascribe to the words swirling around us in the dark.

Tonight’s chat will examine words commonly used to describe depression and those who are depressed or living with mental health battles raging inside them. It is up to us, the survivors and the warriors, to change the language we use to describe ourselves and our battles. Until we do so, the language used by others will not change.

I hope you’ll join in on Twitter tonight at 830pm ET to discuss this with me as we create a list of things for those who loves us to say…and not to say as we fight for ourselves.