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Just Talkin’ Tuesday 10.13.09: I’m OUT with my PPD – are you?

JTT in or outWithin the past couple of weeks I read a great article by a columnist down in Palm Beach, Florida. Of course the article is from February 2008 but still relevant. The author waxes over various reactions she’s received as a result of coming clean about her mental struggles and illness. But in the end she decides that shes would not change a thing about coming “out” about her struggles.

I started this blog as a way to cope with my third and very unexpected pregnancy on the heels of a nasty episode of Postpartum OCD which landed me in a psych ward. While there, several of the nurses specifically told me I did not have to share with anyone where I had been or why I had been there. Even at the time I remember thinking that was an odd thing to say. Why would I want to hide what had happened to me? Why would I do such a thing when all I wanted was to talk with another mom who was struggling just like me? Wouldn’t it make sense to reach out to other moms? To open up? What good would hiding my “light under a bushel” do?

So here I am.

Out. Shining. And still struggling from time to time. I have stages – right now I’m struggling a bit with not having the same bond with my girls as I do with my little guy. You see, I didn’t have PPD with him so we got to have the fun bonding way it’s supposed to be according to the books experience. Which, by the way, I found a little weird considering I had never done it that way before. But now I find myself saddened and angry that I never got to bond as strongly with the girls as I have with my little man. But alas, I digress.

Let’s get to just talkin here!

If you’ve “outed” your PPD whether it be through a blog, a book, a news story, sharing with a friend, loved one, co-worker, etc, tell  us about the experience. Was it positive? Negative? What you expected? Has the experience of “outing” your PPD changed your life? For the better? For the worse? Let us know!

Sharing the Journey with Natalie Dombrowski

Not too long after launching The Postpartum Dads Project, I received a comment from a reporter based in Illinois requesting contact from someone with the project. I emailed and finally touched base with her last week. While doing research for an article about Natalie Dombrowski’s experience, she came across the Postpartum Dads Project site. I began to notice some traffic being directed to Unexpected Blessing from The SouthTown Star’s website and decided to check it out. This is how I discovered Natalie. Like me, she’s experienced Postpartum Depression but to a much higher level. She is also SPEAKing out about her experience and has written a book detailing her journey. I hope you enjoy reading her interview here and if you’re interested in reading her husband’s point of view, I’m happy to tell you his interview is available at The Postpartum Dads Project! You can also keep up with Natalie at her blog.

Thank you Natalie for being brave and courageous in sharing your story. It’s because so many more of us are SPEAKing up and out that the stigma is slowly being stripped away from this very real illness that rips at the very heart of so many American families.

Natalie and son Brian

Natalie and son Brian

Tell us a little bit about Natalie. What does she love to do when no one’s looking?

Well I am thirty-four years old. I am very happily married with one child presently. I love to read when I get a moment, most of the time it’s before I go to bed. I’m usually asleep after fifteen to twenty pages. Currently I am reading ‘The Memory Keeper’s Daughter” for my book club. My mother-in-law is teaching me to crochet. I thought it would be nice to learn. When I was little I used to do latch key kits. I love going to the movies. I love to shop when it is feasible; however I always pamper myself by getting either a pedicure or massage once a month. And, I enjoy having an occasional glass of wine.

As both of us know, motherhood isn’t always smiles and kisses. For some of us it gets very dark with no sign of light and the whispers we hear aren’t search parties setting out to rescue us. How dark did your experience get and what finally brought the light back into your life?

My illness was so advanced that I had to be hospitalized for twelve days. If I think back now I can still remember the immense internal pain. I was so hopeless, I felt like anything would be better than feeling the way I felt. I believe that was the darkest part of my experience. I had never felt like that in my entire life. I certainly didn’t understand why I would feel this way when I just had a baby. A baby that I planned for and wanted. Wanting to end my life was scary, but not as scary as the intrusive thoughts I had to harm my baby. At one point I imagined my son to dying from SIDS. I could not understand these immoral thoughts, but they would not stop coming. I have always fought my way through things. Between the choice of fight or flight; fight always won. This time I saw no way to fight. I didn’t know that I was sick and that I needed someone else to fight for me. That someone ended up being my husband. I remember the first time after my baby Brian was born when I truly felt hope. It was on the Fourth of July. We were going to host the Fourth but decided it wasn’t a good idea. Brian already bought fireworks, so that night I had my own personal fireworks show. Outside, monitor on the front porch, an ear’s length away from my baby, fireworks and my beautiful husband made the hope in me ignite! That is when I knew it was all going to be ok.
You also experienced a traumatic childbirth. Do you think this contributed to your experience? How have you reframed your experience?

I absolutely know that the traumatic birth contributed to my illness. I was not medically diagnosed with PPPTSD. But if more physicians were better equipped to understand and deal with mood disorders, I certainly believe it may have been my medical diagnosis. I can’t say that I have reframed my experience. What I have done is educate myself. I understand what happened to me. With this, I believe I have reframed my previous thought ‘I don’t want to have anymore children.’ I want to give myself and my husband another chance at a happy and healthy postnatal experience. And I want to have more children like I always did.

Back to You, your book about your struggle is now available at Amazon.com. What made you decide to write this book and share it with the world?

The book was originally a journal I set out to write as part of my own therapy. I had replayed everything over and over in my mind. I wanted to move on. I believed if I wrote it down I could. When I was finished I read it out loud to my husband; he encouraged me to share it with others.

What are three things that made you smile today?

Well, today, my son repeated what I said, “what happened.” He had his hands out stretched and had a look of confusion on his face! It was adorable. I smiled when my little brother, not so little – he is 31, told me that he was going to Virginia to visit a girl he met on his New Year’s cruise. I know it’s early but I love weddings. I also smiled today because I know my husband was happy to have completed a long and difficult job.

What do you find the most challenging about motherhood nowadays? The least?

I find motherhood very exhausting. I am a stay at home mom, and by the time my husband gets home I am seriously exhausted. I am thankful that he takes our little guy off my hands for an hour or more before dinner. This is an underestimated profession and lifestyle. The least challenging thing about motherhood is in the pure fact that your child makes it all worth while.

I am a strong believer that Postpartum Mood Disorders affect more than just Mom. They disrupt the entire family balance. How did your husband handle your diagnosis and hospitalization?

My husband handled my diagnosis and hospitalization in a very mature and understanding manner. He was truly my rock. However, when I was better he began to get very angry. At first I didn’t understand, but as time went on, I realized what had happen. He had to stop living his life too; not only because we had a child, but because I was sick. He certainly was not prepared for that. He was only supposed to be off for two weeks. One of which was spent with us in the hospital for the first five days of little Brian’s life. He was supposed to go back to work, his life like normal. I think this whole idea of back to work, back to normal should be redefined. New baby = a new life & change.
I read in the news article at the South Town Star that you posted notes all over the house to yourself about how you were a good mother, not to blame, etc. What were some of the other little things you did to help yourself recapture a positive mindset and come back from the dark?

That was a big one. I truly needed to replace my negative thoughts, with positive ones. Even if I didn’t believe them right away. This technique in therapy is called CBT Cognitive Behavioral Therapy. This was the approach I was given to follow. Also, the home-health care nurse we hired was a very big part of my recovery. She was my coach, cheering me on and teaching me the challenges of motherhood. We really didn’t have the money for her but we decided to use money from our wedding.
Tell us about SPEAK. What does it stand for and what are your hopes for this project?

SPEAK… stands for (Spread Postpartum Education & Awareness Kinship…) It is a five point presentation intended to educate women. I have created this from my own personal experience and my active role in learning about postnatal mood disorders. I intend to SPEAK… I taught middle school math, algebra, and geometry for almost seven years. Now my goal is to teach moms-to-be, new moms, family members directly involved with the care of a mother, everyone about this under diagnosed and under recognized disorder. Women and babies have lost their lives to this illness. I almost did. This is pointless. I know, from the conferences and books I have read that a lot of people and organizations are taking the much needed steps to push the Mother’s Act through the Senate, hopefully with the new 09’ Congress. In the meantime I feel those that do know about postnatal disorders have an obligation to help all women right now. We need to educate all women about the possibility of postpartum depression after birth. And I am not talking about the brief 15 seconds that were allotted in my own birthing class. I am talking about dedicating 50 minutes or more about the myths of motherhood, the risk factors, the screening tools that are available on-line, signs & symptoms, the law and what they can do to advocate for their health & care right now and finally I offer suggestions of how to treat this devastating illness if it happens to them. Awareness is the key.

Last but not least, what advice would you give to an expectant mother (new or experienced) about Postpartum Mood Disorders?

My advice would be to attend a SPEAK… presentation; however, they may not be in the Chicagoland area, so therefore I would advise them to be aware of the different types of mood disorders. They should know there are screening tools that can be requested especially if they have some risk factors. Her family and friends should be knowledgeable of symptoms as well. (These people closest to her need to be aware!) And in the case that she has a mood disorder, she needs help. A treatment and/or support plan can and should be in place ahead of time. A care calendar should be set up in advance for the mom. The calendar should be for no less than six weeks of care after the birth of the baby. (The mother needs to be cared for too. If she had surgery, a caesarean birth, she is unable to move around even less. Meals and infant care should be a huge part of the care calendar.) Also, the name and number of a therapist in the area that has experience with women’s health needs to be available. This is not an illness that should be learned about after the fact. Measures need to be in place ahead of time. This is the best advice I could ever give. Just like some of us may have forgotten to plan our marriage when we were planning our wedding, we really need to plan for more than just the birth of our child.

I want to thank you for the opportunity to SPEAK… :)

Sincerely, Natalie

Sharing the Journey with Michael Lurie

I first saw Michael Lurie on a Fox Morning program and immediately thought how wonderful it was for him to be sharing his story as it is very rare indeed to get a glimpse into the postpartum experience from a father’s perspective. In his book, My Journey to Her World: How I Coped with My Wife’s Postnatal Depression, Michael is transparently open and honest with the events as they unfolded. Familiar with his wife’s previous depressive episodes, her postnatal experience and his subsequent depression went well beyond anything either of them could have ever fathomed. I am honored to share his words with you here and sincerely hope that you will share them with the men in your lives. Michael has been extremely gracious and kind (we’ve had technical difficulties in pulling this together – our emails weren’t the greatest of playmates!) in completing this and I thank him for his patience. I also thank him for his bravery in forging such a valuable addition to resources available for fathers with partners suffering from postpartum depression.


Click here to purchase your own copy of
My Journey to Her World

My Journey to Her World by Michael Lurie (cover)

How hard was it for you to witness your wife’s struggle with Postpartum Depression? What were some of the emotions you went through?

Very difficult to heartbreaking. Some emotions I went through were:

Helplessness- not being able to make things better quickly

Disbelief- I couldn’t believe things hag gotten so bad

Anger- Angry with G-d for Kate’s illness. Anger at family and friends who I felt did not fully understand the severity of the situation

Fear- that Kate may harm herself and the baby

At what point did you decide to write your book, My Journey to Her World?

Following several months of watching Kate deteriorate, I started brainstorming my thoughts on a piece of paper t try and get some cathartic release. A I wrote down my thoughts, I realized that this was a story that needed to be told to others in order to help others and avoid the frustration I felt at not having a resource spec ifically aimed for men.


Has becoming a Father changed you?

It has given me a sense of unconditional responsibility and love to my children which will last the rest of my life.

What aspect of being a Father is the most challenging? The Least?

Most challenging- the constant feeling of responsibility for another human being who is totally dependent on you.

Least challenging- the ability to unconditionally love your child.

How difficult was it to accept your own experience with depression during this time? Do you feel it brought you closer to your wife and allowed you to better understand her?

It was very difficult to accept my position and I need it confirmed by a third party (doctor) before acknowledging it. It did bring me closer to my wife as I got a small ‘taste’ of what a sufferer of depression goes through.

What are some things you did to actively support your wife during her episode of Postpartum Depression?

I ensured that she was functional even at her worst point and asked her to do even the smallest of chores- e.g. help m e fold the laundry.

I acknowledged her feelings and let her release emotions without questioning whether they were rational or not.

I ensured that on a practical level, there was nothing to worry about

I respected her need at times to be alone

I made her feel 100% comfortable to tell me how she was feeling at any time of day or night

Just as women with PPD learn that taking care of themselves is important, this is a lesson that Fathers should heed as well. What do you do on a regular basis to feed your soul and ensure that you stay in a good place?

Nurture and develop your hobbies and interests. Remember that you are first and foremost an individual who needs to look after them self in order to look after others.

Did PPD strengthen or weaken your marriage? Do you feel that you both are in a better place now than prior to PPD?

It strengthened it as it made us more committed to one another.

It made me appreciate my wife more for overcoming it and being such a fantastic mother

I would not say we are in a better place now as we were in a good place beforehand. I would say we are in a different place now as we have the realization and experience of PPD and its devastating effects.

What do you find to be the best part of being a Father?

The privilege of providing love and care for a child and seeing them develop into fulfilled and content people


If there was one piece of advice you could give to an expectant father (new or experienced), what would it be and why would this be important for him to hear?

Talk to people and if there is a problem – seek help. Don’t suffer alone.

A Closer Look at Charlotte Perkins Gilman

Charlotte Perkins Gilman

 

Why write about Charlotte Perkins Gilman at a blog about Postpartum Depression you might ask. She suffered a near nervous breakdown after the birth of her first child, leading her to author The Yellow Wallpaper, an intense short story about a woman’s treatment during a nervous breakdown, a story that one led a Boston Physician to state in The Transcript that “Such a story ought not to be written, he said; it was enough to drive anyone mad to read it.” Possibly so, but a physician from Kansas also wrote that “it was the best description of incipient insanity he had ever seen, and–begging my pardon–had I been there?” (Perkins Gilman)

Sadly, her nervous breakdown led to divorce and leaving her daughter in the custody of her ex-husband. Turning to writing as a way of earning money,  Gilman eventually found herself as a spokesperson regarding “women’s perspectives on work and family.” Perkins Gilman believed that men and women should share household duties and particularly that women should be taught to be economically independent from a very early age (DeGrazia, Jodi), a topic she focused on in her work, Women and Economics, penned in 1898.

The Yellow Wallpaper has been a favorite story of mine since first read, love at first words. I identified with the main character well before experiencing motherhood and my own brush with insanity shortly thereafter. Perkins Gilman did an exquisite job of breathing a realistic insanity into her main character as well as exposing the mental health diagnoses and “cures” of the day for what they truly were – sadly insufficient and ignorant of treating the illness and instead closeting away those who suffered in hopes of recovery or at least not be part of mainstream society and  therefore remain to be a “figment” of one’s imagination, the dark family secret.

In 1887, Perkins Gilman sought treatment for continuous nervous breakdown from the best kThe Yellow Wallpapernown nervous specialist in the country. The rest cure applied and she responded well physically; however, the physician then declared all was well; sending her home with “solemn advice to ‘live as domestic a life as far as possible,’ to ‘have but two hours’ intellectual life a day,’ and ‘never to touch pen, brush, or pencil again’ ” for the remainder of her days. Gilman then writes regarding the effectiveness of this advice, saying “I went home and obeyed those directions for some three months, and came so near the borderline of utter mental ruin that I could see over.” (Perkins Gilman)

Engaging the help of a close friend and gathering what strength she had left, Perkins Gilman picked up her artistic work again and began to recover, finding strength within her work and “ultimately recovering some measure of power.” This experience is what led her to write The Yellow Wallpaper. Perkins Gilman admits to embellishments, stating she “never had hallucinations or objections to my mural decorations”. Written as a celebration of return to her success, her true motivation behind sharing her story, albeit in a fictional world, lay within the hope of saving others from her fate of mistreatment and the nearly paralyzing insanity following soon after.

In Perkin Gilman’s own words regarding her authorship of The Yellow Wallpaper, she states:

It has, to my knowledge, saved one woman from a similar fate–so terrifying her family that they let her out into normal activity and she recovered.

 But the best result is this. Many years later I was told that the great specialist had admitted to friends of his that he had altered his treatment of neurasthenia since reading The Yellow Wallpaper.

 It was not intended to drive people crazy, but to save people from being driven crazy, and it worked.

The number one reason I hear when women have chosen to share their experience with a Postpartum Mood Disorder is the hope that it will provide comfort to another as she travels down the same road. It is with the same spirit Perkins Gilman penned The Yellow Wallpaper that I share my story. Recovery is a hard road and sometimes a lonely road. I said from the very beginning of reaching out to others with a helping hand that if I could help even one woman, it would all be worth it.

The screaming, the agony, the tears, the lifting of the fog – it would all begin to somehow make sense and instead of continuing to drag me down, it would lift me up. The fog did not begin to lift until I reached out for help and found it – drenching myself in the stories of others who had been where I no longer wanted to be and read with new understanding and an intensity I had never known before just how they were able to escape the depths of depression and reach the light, breathing in sweet fresh air again.

Determined to shine a light on the path for those behind me and around me, I dove full force into sharing my story. Every time I shared my experiences with a woman who believed she had no hope left and found herself ashamed of her condition and witnessed what an impact my openness and vulnerability had on her, I knew supporting Mothers was my calling.

So I write about Charlotte Perkins Gilman in order to better explain my mission here at this blog and in life. I refuse to let another woman suffer alone and in silence. Not on my watch.