Category Archives: postpartum depression

To Empower without Condescension

There is a habit I have witnessed within a multitude of places in the perinatal support realm. It is the habit of treating women who are struggling as if they were instead their infants. The habit of “Oh, she’s not well enough to do this yet, tell her to do x,y, or z instead” or “What is she THINKING” when a mother attempts to regain her foothold in the world at large as a normal human being.

It disgusts me.

Mothers with mental health issues are still adults.

They have a sense of self, intelligence, a sense of the way life is meant to be lived, and they know how to do what needs to be done. Right now, however, they may need a little bit of support. That does not mean, however, that we lay them down, swaddle them, stick a pacifier in their mouths, and treat them as if they are infants who need every thing done for them.

Why on earth is it that we do this to those who are suffering and struggling?

Their very fight is one dedicated to returning to the person they once were and want to be again. When you treat them as an infant, you decry their struggle. You strip the person they once were completely out of the equation, turning it into a pointless battle. In fact, when you treat them this way, you are doing more harm than good.

I would not want to be demeaned when I reached out for support – would you?

When a mother reaches out for help, she has managed to gather enough courage to say “I can’t do this on my own.” Respect her strength and audacity.

When a mother reaches out for help, she expects to be heard. Hear her voice, her adult voice, and respond in kind.

When a mother reaches out for help, she expects to be met with compassion and respect. Do that. Do not belittle her behaviour or her requests. Guide her, refer her, but dear God, do NOT tear her down any more than she has already been torn down.

One of my primary goals when women reach out to me for support is to respect them as adults, as humans, as independent women who are temporarily scared shitless by the dark hole surrounding them. They do not need me to baby them any more than a soldier needs to be babied after being injured during war. They don’t need me yelling at them either, but you get what I mean.

Strike a balance. Be compassionate, respectful, firm, and guiding, but do NOT demean, belittle, or treat a woman as incapable of participating in her own recovery. The second you deem a woman as incapable of participating in her own recovery, you have opened the door to defeat.

If we expect to help others recover, we must empower them without condescension. If we cannot do this, we absolutely should not be in the field of helping others because we are only harming.

Hear, respect, respond, guide, empower, let go.

These are the basic rules by which I operate. Simple. Straightforward. Rooted in compassion.

The next time someone reaches out to you with a mental health issue -postpartum or not- keep these words in mind. You might be surprised at how far it will get you – and how many lives it will save.

Dear Sting, Postpartum Depression is No Joking Matter

Sting played a small venue in Chicago last night to promote ‘Last Ship’, according to this article written by Scott C. Morgan.

The article discusses the process Sting went through to bring ‘Last Ship’, a Broadway musical, to life.

Then at the end, is the kicker.

Though Sting is writing the score for “The Last Ship,” he won’t be appearing in the show. So Seller asked the singer how it will be for him to see other people performing his songs onstage.

 

“I imagine I’m going to have postpartum depression,” Sting joked.

 

Oh, Sting.

I have been a fan since I was a pre-teen and had to sneak off at my grandmother’s house to watch videos on MTV. Yanno, back when MTV actually showed videos.

You’ve been a source of solace for me in my dark times. I used one of your songs in a playlist of mine as I healed from my own bout of severe Postpartum OCD. The rhythm was just right and I liked the emotion it evoked within me.

But now?

I can’t do that.

Because you’ve said this.

In eight words, you have managed to completely undermine the seriousness of what I experienced. What millions of women experience every year. In eight words.

Do you see how easy it is to marginalize someone else’s experience? How easy it is to compare the hell that is a Perinatal Mood Disorder by saying you’ll go through the same thing as you watch other people perform your songs? While it may not be easy to see other people perform your art, I guarantee you that it is a hell of a lot easier than the depths of hell I and millions of other women witness as survivors and warriors in the trenches against PMADs.

We fight, Sting, for our fields of gold, fragile as we are. We fight because maybe, just maybe, tomorrow we’ll see a brand new day filled with hope. We don’t want to be the shadows in the rain, never coming home.

Please, think about what you are saying before you say it. Because when you do not think before you speak, you end up hurting people, minimizing their experiences, and comparing their hell to something which is not even close to their experience.

For now, I am gonna have to do the opposite of Rick Astley and give you up because you let me down.

We Are Advocates – Hear Our Cry

I recently received an email in which it was stated that we, the advocates for women with Perinatal Mood & Anxiety Disorders, often only raise the battle cry when a woman or child dies. That we are hypocrites because we don’t help or raise the cry for women who cry out for help before a tragedy – or after a tragedy they have survived. This is simply not true.

We may raise the cry even louder when a woman or child dies but this is simply because we are angry that our previous cries have clearly not been heard and yet another mother/child dyad has been failed by multiple levels of the system designed to help them survive and thrive.

As I explore in the post “Is the Postpartum Depression Defense a Cop-Out“, the defense in the legal sense, is not at all a guaranteed path to freedom. When used, this defense often leads to a mental health incarceration of some form for a very lengthy period of time dependent upon the severity of the incident.

Often, when mother has harmed herself and/or her young child(ren), before it splashes headlong into the mainstream media, there’s mention of postpartum depression. Once the story hits, the term is bandied about as carelessly as a bubble blown by a toddler on a sunny summer day by pundits, analysts, reporters, bloggers and the like.

What is this phenomenon and why is there such a horrific misunderstanding of the classification of postpartum depression vs. postpartum psychosis? And even more chilling, has postpartum depression become the new go-to for women who commit crimes against their children or families?

First, let’s get rolling with a little definition education here.

Postpartum Depression, a commonly used umbrella term for the mood disorders on the Postpartum Mood Disorder spectrum, is also the term for one of the disorders on the spectrum. Postpartum Depression may consist of but is not limited to: sadness, crying for no reason, lethargy, lack of interest in previous activities/hobbies, distance from baby and family or social activities, anger, irritability.

Postpartum Psychosis, the most serious of the Postpartum Mood Disorders, often involves (but again, is not limited to): auditory or visual hallucinations, the inability to care for oneself and make decisions. Considered a medical emergency requiring immediate hospitalization, this particular disorder also carries the deadliest rate of both infanticide and suicide.

Second, mothers with Postpartum Depression are less likely than mothers with Postpartum Psychosis to harm themselves, their children, or their families. With Postpartum Psychosis there is a disconnect from reality during which the mother is truly unaware of her actions. It is a very scary place in which to find yourself.

So why is it then that when a mother harms her children it must be because of Postpartum Depression? Why the confusion of terms? This happens time and time again. Everyone immediately jumps on the Postpartum Depression bandwagon.

There may be issues related to a Perinatal Mood & Anxiety Disorder for many, as with the recent case of Miriam Carey, who was reported to be delusional to police by her boyfriend not too long after the birth of her now 1 year old daughter, but there are also cases in which the leap is made to a Perinatal Mood Disorder as the root cause where it is not at all the issue.

There are those who feel Miriam’s case, is a difficult one to address. And it is – for a number of reasons. So much is involved. She is far removed from the immediate postpartum period. Then you have the family stating she was hospitalized but other family members minimizing Miriam’s mental health battle despite some strong meds being found in her apartment. Miriam also experienced a head injury which her employer, according to certain accounts, says changed her mannerisms. Miriam also lost her job and had been sued by her townhouse organization. Then there’s race, politics, and the argument regarding the alleged excessive force used by Capitol Police which ultimately ended Miriam’s life.

Bottom line?

We won’t ever know what made Miriam drive to DC with her 1 year old daughter in her car unless someone finds an explicit note somewhere. Even then, there are so many factors that people can extrapolate whatever they want to from it.

Is it right to seize the tragedy to educate the public regarding Perinatal Mood & Anxiety Disorders? Is it okay to talk about Miriam’s life as if we knew her or understood her battle?

There will be people who will say no.

There will be people who will say yes.

There will be people who will say there are no such things as Perinatal Mood & Anxiety Disorders.

There will be people who will claim excessive force was used because of her skin colour.

There will be people who… you get the point by now, right?

We cannot make every one happy with this regardless of how we discuss it.

It happened in the public venue, however, and in a city central to a political firestorm and still reeling from another tragedy just a few miles away from where Miriam died. So it is being discussed. Postpartum has been dragged into the discussion.

So I will discuss it, even if the primary focus cause of Miriam’s action on Thursday is not directly related to a PMAD. Because the media has jumped on the PPD sensationalism bandwagon, I will fight back and educate, I will correct, and I will make sure that I do all I can to keep women from falling through the cracks even when, like Miriam, things continue to stack up against them.

When you’re fighting against a Perinatal Mood & Anxiety Disorder, your best chance at recovery is to focus on recovery. But when you have a snowball effect of things following it, eventually you want to jump out of your life just to get everything to stop – it’s like wiping off a cluttered table, if you will. You either take the time to put things away neatly or you just shove everything to the floor and let it fall where it may because you don’t have the energy to focus on being neat and organized about it.

My goal, the goal of every advocate and survivor I know, is to re-organize their lives into some semblance of normal. For advocates, we are dedicated to providing women who reach out to us with the tools they need to reach their semblance of normal. We know we can only save those who reach out to us and we try to expand that access by any means necessary because when someone like Miriam is failed, we take it personally.

This loss has raised many voices and not all of us agree on how to proceed. That’s okay, though, because we are all going to react the way we need to react. It’s okay to process this how YOU need to process it – if that means you need to write about it, great. If you need to stay quiet, fine. You have every right to do so. We still love you and respect you. You are not alone.

I hope, that through the discussion of this loss, we are able to stay strong, stay connected, and stay passionate, despite our differing viewpoints on how to handle this tragedy. Because our strength, our compassion, our knowledge – it is all we have to fight back against misinformation. If we manage to educate just one person, seizing the tragedy will have been more than worth it.

Saturday Sundries: When Suicide becomes reality

Saturday Sundries Banner

Morning y’all.

I hope you have imbibed at least one cup of coffee because today I am going to get serious. Life and death serious.

Over the course of my time as a peer advocate/support person for women and families struggling with Postpartum Mood Disorders, I have faced suicidal mothers more than once. Each time it is draining. The first time I faced this issue I’ll be honest – I didn’t know what to do. The first time I faced it on Twitter, I recruited people to support me via DM, reached out to emergency contacts, and the mom connected with someone via phone. It wasn’t me but that did not matter. What mattered was that she reached out and held on to hope. She got help and is still here.

Over time I have grown more comfortable at dealing with someone in a suicidal crisis. Each time it still drains me though. But it’s part of what I do. I am very careful to ensure care for myself during and after an intense time of support. I watch a lot of comedy, exercise, and talk with others honestly and openly. I love that my support asks how I am doing if I’ve clearly gone through supporting someone.

I have had to learn how to help others. I have also learned how to help others deal with very real tragedies resulting from the often invisible illness that is a Perinatal Mood & Anxiety Disorder. Right now, our community, those who suffer from, have survived, and fight for those who are struggling, is coming to grips with the events which led to the death of Miriam Carey. There’s a wonderful article over at USA Today dealing with the situation. The article covers PMAD’s respectfully and take the time to differentiate the various types of disorders. If you read any article about what happened, make it this one.

Do you know facts and statistics about suicide? Would you know what to do if someone you loved or knew admitted to active suicidal feelings? Would you be able to recognize the signs of potential suicide? It’s important to be able to do so… think of it as basic first aid for the mind. Just as our bodies can hurt, our minds hurt too. And sometimes? Sometimes we’re not capable of recognizing the extent of the injury until it’s too late.

You are not at all helpless when it comes to suicide. You CAN do something. Start with this list over at the National Suicide Prevention Lifeline. Know how to report suicidal behaviour on Facebook. Program the National Suicide Prevention Lifeline number -1-800-273-8255- in your phone.

Start a discussion about suicide with friends. If someone jokes about it, correct them by saying that it is a serious matter and deserves serious attention, following that statement up with facts and statistics. It is absolutely not something one should ever joke about. Ever.

Despite all this, sometimes we lose people. Even if we know all the signs and know exactly what to do. We can’t put our plans into motion if we do not know the plans and thoughts of those around us. It hurts like hell to lose someone to suicide. It is a pain I know well. It is a pain others I know also know well. We can do everything right and still have suicide implode our lives. How do we cope then?

When we have lost someone to suicide, we are then termed as “survivors of suicide.” People who have survived someone who completed suicide. You are not alone in this, not at all. There are others out there who are going through the anger, the frustration, the sadness, the regret, the what if’s… the entire gamut of emotions one goes through after losing a loved one to suicide. There are a few online resources. The first one is at Suicidology on their Suicide Survivors page. Then there is Alliance of Hope for Suicide Survivors.

There are also friends and family. Some of them may not understand your grief. They may not understand the length of it or the manner in which you choose to grieve. But grief is different for all of us, just as life is different for all of us. Grieve in the manner which feels best to you and don’t worry about what anyone else thinks. Let it out, let it flow through you, and process your emotions in the best possible way for YOU.

Bottom line – suicide is not something we need to remain silent about. It’s not something we should continue shoving in a corner and pretending it doesn’t happen. It happens, to everyone in all walks of life. We ALL are affected by suicide.

Let’s get together and talk about it – open up, let people know they are loved, they matter, and we do care. Today, take the time to smile at a stranger. Say hello and ask how they are and mean it – stick around for the answer, don’t drift off into the crowd. Offer to help someone with something. Do a good deed. You may just be the one thing they’ve been needing to brighten their ever so darkened life.

After that good deed? Start a conversation somewhere about how important it is to discuss suicide and the issues that can cause it but also what to do when the mere thought of it is looming on the horizon. You may just save a life doing both. And that, my friends, is why we all matter.

Why Stigma is Not Like a Band-Aid

Stigma sucks.

So does Stigmata but that’s a whole ‘nother topic.

Thing is, band-aids would do a better job of healing stigmata, as horrific as it is, than it they would to heal the misconceptions about mental illness.

For centuries, people have developed their own fears and prejudices in regards to those of us who struggle with mental illness.

We’re scary.

We’re violent.

We’re stupid.

We can’t function.

We should be locked away.

We are to be feared.

We are to be hidden.

We are to be whispered about.

We are not to be talked about at all.

We are to hide our illness the best we can.

We are an embarrassment to our families.

We can’t have friends.

We can’t have children.

We can make our illness go away.

We choose to be crazy, nuts, insane, loco.

We use mental illness as an excuse to not contribute to society.

We are lazy.

Meet stigma.

Stigma is a heavy blanket which covers all of us who struggle with mental illness. Not only do we fight against whatever illness it is we are diagnosed with, but we fight the blanket too. It’s a thick and heavy blanket society has flung over us to hide us as we try to function within their world. It’s hiding us. Just as a band-aid hides a wound.

Band-aids don’t always heal wounds. Sometimes a wound needs to breathe, to gulp in fresh air, scab over, and continue to grow new skin in order to heal. Fresh air is the equivalent of open conversation of mental illness not laced with stigma. Until we, as a society, are able to sit down at a table together to discuss mental illness without resorting to judging or stigmatizing those who struggle with it, we will never heal.

Stigma is not something which can be pulled off quickly like a band-aid either.

It requires a slow removal because stigma is a wound which has been festering for eons. Lots of tender care is required in order to aid in the wound reaching fresh air. Several layers need to be removed, slowly and carefully. Bold conversations, intense honesty, patience, compassion, and a dedicated desire to convey the truth about mental health are requirements.

It is possible to peel back the layers and allow the wounds to heal. Start with one person and you might be surprised where your ripple of truth ends up. But if you never start that conversation? Stigma will continue to thrive. Don’t hesitate to do something because you believe just one voice doesn’t make a difference. Because your voice, no matter how small, matters.