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Tag Archives: twitter
@karma_D finds her Postpartum Voice
@karma_D, Lisa, found me via the #PPDChat at Twitter. At this week’s Just Talkin’ Tuesday, she expressed a desire to share her story but said she wasn’t ready to do so on her own blog yet. Lisa wanted somewhere to share her story anonymously in order to help other moms. I offered her a place here at My Postpartum Voice. This is truly what I want this site to be about – the power of sharing our stories to help one another find our own Voice as we journey through recovery.
Lisa’s story is powerful. Her NICU start reminds me of my own postpartum after the birth of my second daughter. It’s a rough start for sure and I hope Lisa finds the same strength as I have as she journeys towards recovery. Please don’t hesitate to send @karma_D some love. And if you’re a mom in need, you can follow me by clicking here. You can also visit Postpartum Support International to find a Coordinator near you. You are not alone, you are not to blame, and you will be well.
I have post partum depression. That might be a shock to friends and family, but no one was more unprepared for it than I was. My pregnancy was incredible. I felt amazing, better than I have in years, both physically and emotionally. I felt strong, hopeful, like a dream a lifetime in the making was finally coming true. Those months were full of planning, anticipation, expectation, all culminating in the beautiful instant my son was born. It was the best moment of my life, euphoric almost in the sudden absence of pain and joy of meeting him.
Within hours of his birth, he was taken to the NICU for breathing difficulty, and so began the downward spiral, full of broken expectations. Instead of bonding with a newborn in the hospital room surrounded by adoring guests, we shuffled back and forth to the NICU to stand around a helpless baby attached tubes and wires.
The night we came home from the hospital without our son was horrible. Pulling into our neighborhood late that night I vividly remember looking out the car window and feeling like I was witnessing life from another person’s body. Reality seemed unrecognizable. We arrived home to flowers and hospital bags dropped off earlier by our parents, mountains of gifts and food cluttering the house. In that moment I couldn’t see this wonderful outpouring for the blessing it was, but instead as anxiety inducing clutter. Exhausted, my husband went to bed but I stayed up and cried. I felt alone, scared, not myself. It was not at all the homecoming I had anticipated.
When we finally did bring our son home a week after his birth, things didn’t get better. Breastfeeding difficulties often left one or both of us in tears. It was not at all the bonding experience I had hoped for. I pushed through because I wanted so desperately to do the right thing, to act like a good mother even if I didn’t feel like one. I was tearful and scared because I didn’t feel like myself, and when I did manage to communicate this to my husband all I could muster was, “It’s so hard.” He did his best to reassure me and I tried to reassure myself it was just “baby blues” and sleep deprivation. I minimized my symptoms to the OB and Pediatrician, who screened me for PPD but didn’t pick it up early on. I tried to will it away and hoped things would get better, and kept acting like everything was fine.
Months went by and it never did get better, and the mood swings actually got worse. One moment I was okay, the next agitated or enraged, then crying and despondent. I yelled a lot, mostly at the dogs or my husband. One afternoon when my son was crying I yelled at him to “SHUT UP! JUST SHUT UP!” The guilt of yelling at him was awful. I believed it was going to be burned in his psyche forever and he’d always think I was crazy. Still not wanting to think the mood swings could be PPD, I blamed it on my IUD. Eventually I did tell my OB about my symptoms (though admittedly I glossed over them again), and she said she “wasn’t getting a good read on (me).” She agreed it could be the IUD but convinced me to give it some more time, and encouraged exercise and DHA supplements. Finally I demanded the IUD removed as I wasn’t getting better, but even then no one diagnosed me with PPD.
I spent 6 months of maternity leave waiting for things to look up. I kept hoping to turn the corner but never did. Instead, the mood swings continued, and intrusive thoughts began. I pictured horrible things happening to me and my baby and felt helpless to prevent them. I often lacked motivation – even the simplest tasks seemed too much to manage. Once I went an entire week without leaving the house because it was just so overwhelming. My mood wasn’t always down. There were lots of times I felt fine, happy even, and capable, but they never lasted long. These moments of calm made me think I was okay. I never wanted to harm myself nor my baby, I got up and dressed every day, and I didn’t really feel like what I believed depression to be, so I never admitted what was happening in my head and never asked for help.
Returning to work was a blessing and a curse. It gave me a much needed break but the guilt was crushing. The mood swings got progressively worse until one night (Valentine’s Day), I got so worked up over my son’s difficulty going to sleep that I exploded. After slamming the door to his nursery I went and hid under the covers, my body buzzing and feeling like I might explode out of my skin. My thoughts raced and I just wanted to go away. I didn’t want to die but I didn’t want to exist either, at least not then. Later that night I had another fit when the baby woke up. My husband asked, “What is wrong with you?” in a tone I’ve never heard from him, one that suggested disgust. That was my rock bottom. I couldn’t hide it anymore. The next day I finally told my husband I thought I had PPD and made an appointment. I saw a different doctor and started treatment.
The improvement has been rapid. I feel hopeful again, motivated, more clear headed. I can reason rather than shutting down. The anger is better, the crying is better. The anxiety still creeps in and I do have setbacks. On those days I just try to survive until tomorrow. I’m learning to recognize triggers and figuring out coping mechanisms – Blair’s STOP has been helpful, as has reading and chatting with other moms who’ve experienced PPD. (At the same time, I feel the need to control what I’m exposed to so I’m careful about following blogs and such and limiting potentially upsetting material.) I’m trying to let go of expectations and enjoy the moment more. My bond with my son is growing and I am starting to appreciate those wonderful Mommy emotions I had hoped to experience immediately. I wear a locket every day and inscribed on the back is “Before I understood your words, I understood your love.” I have an amazing son and I know he understands the bond, too.
I think a lot about what it will be like next time – the “do over” as I call it. In the darkest moments of PPD I swore we would be “one and done” – I couldn’t fathom ever going through this again. Now, I am hopeful. Things will be different. Per my doctor, I’ll likely start meds immediately. I’ll make a strategy for how I’m going to get support, something like a birth plan but for postpartum, and share it with my “team.” I am almost certain I won’t breastfeed. The stress of nursing was a huge trigger, even after all the initial issues as I worried about pumping and supply. I’ll also know I’m not alone. I wish I had believed that months ago.
Have you been to #PPDChat yet?
Two weeks ago, on May 3, the very first #PPDChat took place @Twitter. (Don’t worry if you’re confused, I’ll explain what I just said in a few minutes!)
We had a few attendees at both chats. Overall response was very warm, excited, and generally thrilled about this new avenue of support available for new moms struggling with postpartum mood disorders.
This week’s attendance was even stronger, especially in the evening. Women were sharing, supporting, getting brave about seeking help (two even made doctor’s appts!), and even more exciting to see was that they were STILL chatting about it this morning! Attendees continued to encourage and support each other well after the official chat was over. Last night’s chat was so phenomenal it had tears streaming down my face. The sheer POWER of social media at it’s finest – truly doing what it’s build to do – help us connect and support each other. Speechless!
Imagine my surprise to see folks like @marchofdimes and @60secondparent spreading the word about #PPDChat!
I am so excited to see what is in store for #PPDChat and can’t wait to see you there!
I promised to share how to participate.
First, you need a Twitter account. It’s free and easy to sign up. Just go to http://www.twitter.com to get your account.
Once you’ve signed up, you’re good to go.
Our “chat” is held every Monday. There are two chats. The first chat takes place at 1:00pm EST with the second chat taking place at 830p EST. Both chats last about an hour but if they’re going strong or there’s someone who really needs to continue discussing, we won’t cut you off. Ever. We promise. Even though we call it a “chat,” it’s really a serious of tweets (those are messages sent on Twitter) with a specific hashtag (phrase which follows the # symbol). Our hashtag is #PPDChat.
There are a few ways to follow the chat.
If you’re already on Twitter and have a program like Tweetdeck or use Seesmic or HootSuite, you should have a way to follow specific #hashtags.
If you’re just on Twitter via the web, type in the hashtag (#PPDChat) into the search box. The search page will update to show you additional tweets and you can click on them to see the new messages. There is a message/Tweet box at the top of this page so you can participate directly from the tweet page.
There’s also http://www.tweetchat.com. You do have to authorize this to work with your Twitter account and then type in PPDChat up top next to the hashtag. (it’s a little hard to see – I had a rough time with it) The nice thing about using tweetchat is that it automatically hashtags all of your tweets for you so you don’t have to remember.
If you have any further questions, please leave a comment here or find me on Twitter. I’m still @unxpctdblessing there. Click here to follow me: http://www.twitter.com/unxpctdblessing
I do have lovely co-hosts assisting me in this endeavor and I am SO happy they are because without them it wouldn’t work as well as it has so far! Thank you ladies!
Co-hosts are:
@postpartumprogr
@ivyshihleung
@Atlantamom
@helenfcrawford
Just Talkin’ Tuesday 08.25.09: Sharing the PPD news with your parents
Communication today is often done via email, text, twitter, facebook status updates. It’s become much less personal and much less formal. For some, this is good. For others, not so good. Some things get lost in translation. It’s easy to type something and hit send without thinking. It’s also easy to apply this short communication style to every day life, leading to quick judgments, misunderstandings, and worse, the planting of grudges and beginnings of the end of relationships. The art of the thoughtful conversation seems to be drifting by the wayside.
Many women and families with whom I’ve worked have expressed to me that the biggest challenge they face is enabling those around them to understand what is going on without increasing stigma or losing their formerly close relationships. It’s a struggle to go through a Postpartum Mood & Anxiety Disorder let alone try to explain the complexity of it to a loved one from whom you need support.
When I spoke with my parents about PPD, they were understanding, compassionate, and actually did their own informative research. The one thing that stood out to me when I was hospitalized came from a phone call with my dad. He said something simple yet profound (my dad is full of those – I LOVE him for it). My father told me not to let anyone tell me I was “crazy” for the way I was feeling given my situation. My situation was that two months prior I had given birth to our second daughter who was then subsequently diagnosed with a cleft palate and by then had undergone two surgeries, one major to help lengthen her jaw in order to allow her to breathe safely. I held it together as long as I could but finally collapsed on day 56. Turns out for me, falling apart was precisely what I needed in order to pull it back together.
I’ve spoken with Mothers and their Parents alike who are frustrated and upset by the lack of information, communication, and the subsequent misunderstandings that follow all too often in the wake of a Postpartum Mood & Anxiety Disorder. Often these very issues only serve to compound a family’s recovery.
Today, I would like to take the opportunity to check in and see how (or if) you told your parents (or in-laws) or kept up appearances with them. Did you let them see inside the dusty window or did you keep the shade pulled down and pray no one would accidentally flip it up?
Let’s get to Just Talkin’!
From the trenches…
Today I’d like to focus on the real faces and true stories of Perinatal Mood Disorders.
These are the stories of everyday people who have ferociously fought to survive this insidious illness.
These are the people who realize the true value of The Melanie Blocker Stokes MOTHER’S Act. They passionately support the legislation.
Many of them are also now ardently dedicated to supporting others as they tread on this dark and lonely path.
Got a few minutes?
C’mon in – grab a cup of tea and sit down.
Let me introduce you to a few of them.
Meet Heather. Her brush with Postpartum Depression began during the pregnancy of her first child. Anxiety and intrusive thoughts settled in, causing her to obsess about birth defects of her unborn infant. Things went from difficult to worse when Heather experienced a reaction to a pain medicine administered during labor. She awoke at 7 hours postpartum only to witness her son receiving oxygen. Once home, she stopped sleeping, going days without rest. Her milk supply dried up as a result of the intense stress she was experiencing. Heather and her family moved in with a family member as it was no longer safe for her to be on her own. With an intolerance to all medications (including antibiotics), she sought help via talk therapy and a kinesiologist. After a few months of therapy, she was given a clean bill of health. Heather now serves as a moderator at the Online PPD Support Page and finds helping others very rewarding and meaningful. You can read more of Heather’s story by clicking here.
Then there’s Helena Bradford, one of the most amazing women I have ever had the privilege of knowing. Her daughter Ruth Rhoden Craven tragically ended her life after struggling with Postpartum Depression. Doctors were unable to help and some bad internet advice led the family to believe all Ruth needed was a vacation. How wrong they were! Helena works each and every day with a determination to prevent what happened to Ruth from happening to others. She is deeply rooted in her faith and believes without a doubt that the Lord has used Ruth to further the cause of PPD awareness. Helena has an amazing will. She is standing strong despite her tragic loss. Read an interview with Helena by clicking here.
Another parent who has joined the battle is Bob Gibbs. Bob lost his daughter and grandson, Jennifer Gibbs Bankston and Graham Bankston on December 19, 2007. This particular story is very hard for me to write about. I gave birth to my son on December 18, 2007, just a day before Jenny and Graham lost their lives. Even in the face of this tragedy that would cause most to buckle and falter, Bob and family have instead garnered strength and power. They have turned their loss into a powerful outreach program which has garnered national recognition. Jennyslight.org is a powerful and energetic new force within the Postpartum Advocacy landscape, one we hope will continue for a very long time. While we are saddened for their loss, we are thankful for their dedication and passion to families struggling with Postpartum Mood Disorders. Get to know Bob Gibbs in his own words by clicking here.
Meet Cheryl Jazzar. She experienced a psychotic break after the birth of her first child and was subsequently hospitalized. The break destroyed her marriage and she lost her child as a result. Five years later found her remarried with another child on the way. She experienced a depression a few months after birth. Using self-care, she rebounded quickly and knew she had something to share. Cheryl began to educate herself regarding alternative and complementary methods of treatments available to mothers during the perinatal period. She quickly became quite knowledgeable regarding non-traditional methods of treatment with a strong desire to share this with other mothers. Cheryl is a passionately dedicated volunteer for PSI and also blogs at Wellpostpartum regarding alternative and compassionate care. You can read Chery’s interview here.
Now I’d like to provide a different point of view. A mom is not the only one affected by a Postpartum Mood Disorder. Her husband is also affected. Meet Dan Scott, a father who has stood by his wife as she struggled three times with a Postpartum Mood Disorder. Each time was a unique experience, one that tested their marriage and their faith. Dan states that the second time around was the worst – there are moments they don’t even remember because the circumstances were so dark. As a result of his journey, he finds himself more sensitive towards new mothers. He recognizes the hard times the birth of a child can bring. He advocates for new fathers to step up and take their vow of “for better or for worse” seriously. Dan believes he is a better man for having been through this with his wife. Want to read more about Dan’s story in his words? Click here.
Last but not least, I’d really like to introduce you to a mom named Jamie. She’s a mother to one daughter and is due to give birth in June. Is she scared of experiencing Postpartum Depression again? Absolutely. Has she had issues with mood already during pregnancy? Yeap. But she is bravely speaking up about her experience and is being very pro-active this time around. Her first episode found her not wanting to bond with her child. Instead of being the blissful new mom society tells we should be, Jamie cried, lashed out, and wanted to pack her bags to run away. She finally sought help after her father questioned her constant negativity. Jamie has one piece of advice for new moms. Get help – the sooner the better. Want to read more about Jamie’s story in her own words? Click here.
Now that you’ve had a chance to read some of the true stories of survival, I hope you’re picking up your phone and calling the H.E.L.P. Committee.(If the line is busy, call the next member but keep trying until you’ve spoken with every office!)
Have you emailed Susan Stone yet with permission to be added to a list of supporters? If not, email her with your name, state, and any credentials or organizational affiliations at susanstonelcsw@aol.com right now! (Seriously – you’re already on your computer, right? It takes five seconds!)
I hope you’re blogging to raise awareness and support for The Melanie Blocker Stokes MOTHER’S Act. Got a twitter account? Raise your voice there too. Share this on Facebook! DIGG it! Don’t let these voices go to waste. Raise yours with them.
Remember in the children’s book, Horton Hears a Who, it wasn’t until the tiniest Who raised his voice that the jungle animals finally believed in the existence of the Whos. We need ALL of your voices. Now.


