Tag Archives: strength

The Great Return

Tomorrow we go to Atlanta with Charlotte for follow up with the Cleft Palate Clinic.

I would be lying if I said I was not nervous.

This appointment was supposed to have taken place when she was nine months old.

She’ll be three years old next month.

Charlotte in the NICU

Charlotte in the NICU

It took me this long to get to the point where I could even think about facing the hospital where she spent her first 21 days of life without having an anxiety attack.

This is the same hospital in which I tucked myself into a corner of the sleep room in the NICU area, blasted Linkin Park over the MP3 player and checked out. No desire to come back. Just wanted to stay curled up under the blanket and pretend none of this was happening. Nope. Not to me. I didn’t have a baby in the NICU. She wasn’t downstairs having major jaw surgery at just nine days old. We weren’t doing this. I was stuck in the middle of a really bad dream and I’d wake up at home with a normal baby.

I can still see that hallway, that sleep room, my nostrils fill with the scent of the surgical soap that killed my hands as I washed them every time we went into the NICU, every time i pumped, every time I went to the restroom there.

I remember the pumping rooms in which I spent most of my time staring at the clock wishing I could nurse my daughter instead of shoving my breasts into hard cold flanges, flicking a switch on a massive antique pump, adjusting the suction to just below Holy Crap that Friggin Hurts.

But tomorrow is the day we finally go back.

Chris is going with me as a safety. I don’t know how I will handle this. I’m hoping for the best. Praying for the best. I keep thinking about how far we’ve come since then and how lucky we are that we don’t have a lot of the problems a lot of parents have with their Pierre Robin kids. She’s talking, using sentences nonetheless. She’s breathing on her own. She eats – oh lord, she eats – she’d eat herself sick (and has) if we let her. No oral aversions here.

But she does have a fistula – an opening in her palate repair. It’s at the back of the throat. And her enunciation is off – it’s nasal. She can’t say “s” without blowing air through her nose. Chris and I understand maybe 75 – 80% of what she says and it breaks our hearts that we can’t even understand our own child all the time. It’s led to frustration on both sides and is now turning into a discipline issue.

I’m afraid we’ll be told she needs surgery. I’m afraid of what that will mean for us and for her. I’ve talked with her about the possibility of surgery. She knows that they would give her some medicine to help her go to sleep and fix her mouth while she was asleep. That she might be owwwy when she wakes up and that they’d have medicine ready to help with the owwwy.

She seems cool with it.

I’m not.

I have forgotten how to let her go with the doctors – I got so good at it when she was in the NICU but she’s been all ours for almost three years now. I don’t want to hand her over to be taken to surgery. I want to go with her! That’s my baby you’re taking!

But now I’m thinking too much and need to stop and let God do all this worrying for me.

Please pray for us as we face tomorrow.

Pray for a peaceful heart and soul for me.

Pray for a pain-free and comfortable day for Chris as he goes with us.

Pray for a positive evaluation.

Pray that I am able to handle any news of surgery with strength and grace and truly give it to God.

The One Flaw In Women

A good friend of mine sent this to me today. Good thing she did because I really needed to read it. Enjoy.

By the time the Lord made woman,
He was into his sixth day of working overtime.
An angel appeared and said,
‘Why are you spending so much time on this one?’
And the Lord answered, ‘Have you seen my spec sheet on her?
She has to be completely washable, but not plastic,
have over 200 movable parts, all replaceable
and able to run on diet coke and leftovers,
have a lap that can hold four children at one time,
have a kiss that can cure anything from a scraped knee to a broken heart
-and she will do everything
with only two hands.’

The angel was astounded at the requirements.
‘Only two hands!? No way!
And that’s just on the standard model?
That’s too much work for one day.
Wait until tomorrow to finish.’

‘But I won’t, ‘ the Lord protested.
‘I am so close to finishing this creation that is so close to my own heart.
She already heals herself when she is sick
AND can work 18 hour days.’

The angel moved closer and touched the woman.
‘But you have made her so soft, Lord.’
‘She is soft,’ the Lord agreed,
‘but I have also made her tough.
You have no idea what she can endure or accomplish.’

‘Will she be able to think?’, asked the angel.
The Lord replied,
‘Not only will she be able to think,
she will be able to reason and negotiate.’

The angel then noticed something,
and reaching out, touched the woman’s cheek.
‘Oops, it looks like you have a leak in this model.
I told you that you were trying to put too much into this one.’

‘That’s not a leak,’
the Lord corrected,
‘that’s a tear!’
‘What’s the tear for?’ the angel asked.

The Lord said, ‘The tear is her way of expressing her joy,
her sorrow, her pain, her disappointment, her love,
her loneliness, her grief and her pride.’
The angel was impressed.
‘You are a genius, Lord.
You thought of everything!
Woman is truly amazing.’

And she is!
Women have strengths that amaze men.
They bear hardships and they carry burdens,
but they hold happiness,
love and joy.
They smile when they want to scream.
They sing when they want to cry.
They cry when they are happy
and laugh when they are nervous.
They fight for what they believe in.
They stand up to injustice.
They don’t take ‘no’ for an answer when they believe there is a better solution.
They go without so their family can have.
They go to the doctor with a frightened friend.
They love unconditionally.
They cry when their children excel
and cheer when their friends get awards.
They are happy when they hear about
a birth or a wedding.
Their hearts break when a friend dies.
They grieve at the loss of a family member,
yet they are strong when they think there is no strength left.
They know that a hug and a kiss
can heal a broken heart.
Women come in all shapes, sizes and colors.
They’ll drive, fly, walk, run or e-mail you
to show how much they care about you.
The heart of a woman is what makes the world keep turning.
They bring joy, hope and love.
They have compassion and ideals.
They give moral support to their family and friends.
Women have vital things to say and everything to give

HOWEVER, IF THERE IS ONE TINY FLAW IN WOMEN,

IT IS THAT THEY FORGET THEIR WORTH.

Depression Sucks – One Dad Shares His Story

This morning as I was checking out The Father Life.com, I noticed a link about depression. Well of course I clicked on it – and I was rewarded with one of the best pieces I’ve read in awhile about a personal journey through depression. Click here to read it for yourself. Kudos to the dad who wrote this story – I know the emotions behind putting your journey into words and the power that comes with it. I hope he has found his strength as he moves past depression and onto a new and brighter world!

When is too much really TOO MUCH?

I have often wondered at times, heck, even marveled at women who seem to take on the world and appear to excel in all they do. How do they do it? How on EARTH do they keep up with everything and appear so calm and suave? Even with all that I now do and have been through, I have no idea.

There are days that go just right. No one screams or fusses, no one has an potty accident, don’t have to clean up after the girls (or the dogs), and the day just flows.

Then there are days like today where from the moment that I roll out of bed, it’s all downhill. Breakfast snack wasn’t the right thing, Alli got out of her room and got the ice pops out of the freezer, proceeded to yell and scream and throw fits the entire day to the point of being put in her room and left there so I could calm down before dealing with her zillionth tantrum in two hours. Cameron bit me twice today while nursing so he didn’t nurse much today at all, Charlotte needed to go potty every 5 seconds and of course it was gray, humid, and wet from yesterday’s storms so we couldn’t go outside to play, no TV show was the right one for us to watch, the girls wanted to play with what the OTHER one had – of course! Why would it be any different? Oh, and Maggie almost pooped on the couch right next to Charlotte as we all cuddled up to watch TV that we had actually agreed on! *sighs*

I know the whole nursing/supplementing thing is getting to me. It was so hard not to blame myself. After all, I have been Cameron’s ONLY source of food since birth. How do you not blame yourself? And now that we’re weaning (even though I’ve decided to keep nursing as long as he’s interested even with the formula), I know I’ve got a whole ‘nother issue with the prolactin and hormones coming ’round. To be honest, last Monday I was pissed. Pissed because I had finally been doing really well again – had been happy, confident, cheery – more than I had been in quite some time and then WHAM! the whole issue with Cameron and POP goes my happy bubble. I felt guilty about being pissed over my happy bubble being popped. I mean, c’mon – I should be concerned about my son – and I was, I am – but instead there I was, moping about my happy bubble. Everyone kept telling me that I couldn’t blame myself that there was a myriad of reasons that he wasn’t doing well – to which I replied – Yeap, got the flow chart in my head already, you’re not telling me anything new. I almost made the flow chart. Thinking that may have been a bit over the top.  I moved through my emotions on Monday pretty quickly, or so I had thought. I am so hoping this is PMS and not PPD that’s been lying in wait, ready to pounce at the first sign of honest vulnerability. I’ve got a lot going on elsewhere too and as crazy as it sounds have been so busy that I haven’t even had time to do a to-do list. It’s on my mental to-do list to do a to-do list (try saying THAT three times fast) but I just haven’t gotten around to doing it. i’ve got to otherwise this is just not going to get any better and I will become even more lost in the forest of tasks that seem to be springing up around me, especially if I keep having days like today.

I feel like a deflated clown punching bag after a state fair.

Just toss me in the corner and leave me to be covered in hay and dirt and Lord only knows what else.

I’m pissed. I’m apathetic. I’m just well – here. I don’t really want to be awake but not quite ready to go to sleep yet. I can’t think of a darn thing to cheer myself up besides coming here and just letting it all hang out in naked honesty. I need to pray. I need to go lay down and read the Bible and find my answer there.

Hey – Chris is listening to the radio on his computer and it’s my favourite uplifting song – Unwritten by Natasha Bedingfield. Starting to feel better already. :-)

Here’s to hoping tomorrow will be a better day. It has to be. Alli will be starting music camp so she’ll be gone from 9a – 12n every morning through Friday. I’m ready for another break.

Sharing the Journey with My Husband

As I sit here having just read this interview, I am blown away by how far we have truly come since the birth of our first child. We have overcome so much and I know it is because neither one of us is afraid of staring adversity in the eye. Chris and I met November 2000 while we worked at the same company. We’ve been inseparable ever since, no matter what the storm brought to our world. Relying on each other’s strengths and shoring up each other’s weaknesses, we’ve managed to build an extremely strong marriage that has been tested time and again in the short six years of wedded partnership. And you know what? We’ve come out of each storm stronger and closer than before. There’s a quote by Louisa Alcott:  “I am not afraid of the storm for I am learning to sail my ship.” Together we are not afraid of the storm and have slowly begun to master sailing our ship through whatever mighty waves come our way. I hope you enjoy this honest and compassionate look into my PPD experience from my husband’s perspective.

Would you share your experience of watching the woman you love suffer from Postpartum Depression? What were some of the emotions you went through as you watched me spiral downward and what was the hardest part for you?

Wow, thats tough. I guess it is hard because I have blocked that out of my mind. I think the best way to answer that question is to just explain what PPD looks like from the outside from the perspective of someone who is uneducated in the signs, because that is where I was when it all began. Honestly I really didn’t know what to think. All I knew is that the woman that I married and loved was gone. You were reclusive and moody most of the time. All I really wanted to do is just tell you to snap out of it, and I think that I did a couple of times. I thought you had become lazy and selfish. I knew something was wrong, but I thought it was more of a problem with lack of motivation and lack of discipline. It made me angry. After our second daughter was born, I had educated myself. I found that even though I got frustrated with you, I understood. I probably didn’t show it all the time, because I had my own stresses going on with sixty hour work weeks and the hospitalization of our daughter. The hardest part of it all though was watching you hurt. I just wanted so bad for you to be happy and it just didn’t seem to happen.

Looking back, would you agree that the lack of diagnosis/treatment of my first episode compounded my second episode?

Definitely. I actually believe that it just carried over into the second pregnancy. You never really recovered from the first episode. It wasn’t until nearly a year after the birth of Charlotte that I even began to recognize you as the same woman that I married.

You recognized my PP OCD the second time around well before I was able to admit there was a problem. In fact, you even made the call to my OB’s office for initial treatment. What were some of the warning signs that alerted you to the beginnings of this episode?

You had become anti-social. You were sad most of the time. You did a lot of cleaning, and please don’t take this the wrong way because you really are a great housewife, but neither one of us is Mary Poppins when it comes to keeping the house clean. What really tipped me off though was that you just didn’t seem well. You wanted to sleep a lot and you also seemed to snap very easily at the smallest things.

My hospitalization absolutely frightened me but ultimately became the turning point in my recovery. Would you share your memories and feelings surrounding my hospitalization?

Honestly, I was scared to death as well. I didn’t know what I was going to do. I was working sixty hour work weeks with a two year old and newborn at home and I didn’t know how I was going to take care of them. And how would I juggle having to make the hour drive back and forth to the hospital that you were in to bring you the things that you would need and to get milk for Charlotte? I didn’t know how long you would be there. I was really scared. I was also concerned for you. I love you and didn’t want to see you hurting. I was also thankful for the fact that you were getting the help you needed. When you called me at work and told me that you were having intrusive thoughts, I couldn’t get home fast enough. Who knows what the outcome would have been had you not gone to the hospital that day? That thought still crosses my mind today. I am so grateful that you understood the severity of your problem and took the help that was given to you. I think it all goes back to education.

We worked very hard together to prevent PPD after Cameron’s birth. What were some of the differences in how we approached the postpartum period this time around?

Well, I know that you took antidepressants during your pregnancy, but we also had a set of written guidelines as to what to look for and for how we would respond if certain events took place. We tried to educate (there’s that word again) our families about the signs to look for and also what were the right and wrong things to say and do in the event that PPD reared it’s head again. During your second bout with PPD I really think that we were better educated, but our families were not. This caused a lot of tension and strife. With the whole family knowing what to look for, it helped make everyone sympathetic to the situation. Boy do I wish we had that in place when in the throes of your second episode.

What is the biggest lesson you feel you’ve learned from my PP OCD episodes?

I always viewed mental illness as something that happened to other people. I viewed people with mental illness as weird or abnormal. The biggest thing I learned is that mental illness can strike anyone, at any time. I suffer from ADHD, depression and anxiety and would have never sought help with my issues had I not educated myself about yours.

What has it been like to watch me grow from mother suffering from PPD to the PPD Advocate I am today?

First I would like to say how proud I am of you. You have turned adversity into triumph. I have been amazed at the transformation. Most people just take their hard knocks and then move on, but you have taken up a cause and have made a difference in other peoples lives. I am inspired and in awe. I love you and encourage to keep up the great work that you are doing.

Share with us what you find to be most challenging about fatherhood. The Least challenging.

I have always been a rather impatient person. Fatherhood is teaching me patience. That is a challenge since I tend to want instant results. Maybe that is just the ADHD in me. Kids sort of move at their own pace, and I have learned that they are learning all along the way. To rush them along is not only detrimental to their growth and development, but it is also unfair to steal those learning experiences away from them. The least challenging is loving those precious kids. I just can’t seem to get enough of them and can’t give enough hugs and kisses. That is not a challenge at all.

How important do you feel it is to hold onto a sense of self once you become a parent? What are some ways a father can provide some much needed alone time?

You must know who you are before you can help someone else, namely your children, discover who they are. The best way to do that is to have some “me time”. It is very difficult to get when you are a parent between diaper changes and cleaning mud (or other mud like substances) off the walls, but is essential. Sometimes I will stay up late to get some alone time or will go to the store. Don’t forget though that you and your spouse need some time together too. Also, it is ok to ask your wife to take the kids for a few hours while you go get some coffee. Just remember though that you need to provide her with that same luxury as well. Ask the Grandparents to take the kids too. Even if it is just for an hour or two, you and your spouse can have a nice dinner or just go home and work on some of those household projects that you have on your “honey do” list.

And last but not least, if you had one piece of advice to give an expectant father (new or experienced), what would it be?

Educate, educate and when it’s all through educate some more. You can never fully prepare yourself for everything that fatherhood throws at you, but knowing some of what to expect takes a lot of the anxiety away and relieves a lot of the stress on you and your spouses relationship