Category Archives: survivor

Just Talkin’ Tuesday: The MOTHER’S Act

LegislationOn February 23, 2001, Melanie Stokes gave birth to a baby girl. Just three months later, she committed suicide. Melanie’s death gave birth to a very dedicated activist – her mother, Carol Blocker. Frustrated with the failure of physicians to appropriately care for her daughter, Carol worked endlessly to keep Melanie’s tragic death from becoming meaningless. Through Carol’s tireless advocacy and work with Representative Bobby Rush (IL), the Melanie Blocker Stokes Act has now become The MOTHER’S Act.

The MOTHER’S Act as it reads in the current version would provide funds for a public awareness campaign, education campaign for caregivers, increase availability of treatment options and entities as well as require the current Secretary of Health & Human Services to conduct a study regarding the validity of screening for Postpartum Mood & Anxiety Disorders.

More and more research is slowly uncovering potential underlying causes and risks related to Postpartum Mood & Anxiety Disorders. More and more women and caregivers are becoming educated as more of those who have survived a PMAD speak up to share our story.

If passed, The MOTHER’S Act would further reduce the stigma surrounding new mothers not ensconced in the Johnson & Johnson glow of infantdom. If passed, the MOTHER’S Act would increase funding for research and possibly open even more doors to understanding the cause and more importantly, the potential for truly preventing Postpartum Mood & Anxiety Disorders. If passed, the MOTHER’S Act has the potential to prevent tragic deaths like that of Melanie Blocker Stokes.

Much of the debate surrounding the MOTHER’S Act has centered on the word “medication.” Medication does not necessarily mean Anti-depressants. It does not mean this is the ONLY way to treat a PMAD. It is merely listed as an option for treatment. And frankly, if one has a doctor with a quicker draw on his/her prescription pad than Billy the Kidd, I’d run away. I’d run away faster than a cheetah.

Another key point of the opposition has been that the MOTHER’S Act mandates screening. In the current version, there is no mandate for screening. The only mention of screening is to require the Secretary of Health & Human Services to conduct a study regarding the validity of screening for Postpartum Mood & Anxiety Disorders. The current standard for screening is the Edinburgh Postnatal Depression Scale, which you can learn more about here.

You can read a copy of the current bill by clicking here.

Go read it. (Don’t worry – it’ll pop up in a new tab/window – I’m cool like that here)

Seriously. Read. The. Bill.

Then read it again.

And then come back here. Be honest.

Unlike this week’s TIME article which failed to present both sides, I promise to allow unedited comments in support of or opposing the bill as long as they are civil. (Any comments including personal attacks will NOT be allowed!)

So let’s get to Just Talkin’ Tuesday already!

TIME Magazine misfires debate on MOTHER’S Act

Awhile back, I was contacted by Catherine Elton regarding an article which was to examine Postpartum Depression and the Mother’s Act. The email somehow got buried and I did not get a chance to participate in the discussion.

It seems that it would not have mattered if I had been able to discuss my story with her.

Time published the story this week. While the online version has been modified to correct an error with Ms. Amy Philo’s story, you can still see the original version in the hard copy. (Which by the way, I am personally asking you to boycott – even asking if you can take the copy of TIME home from the doctor’s office in order to keep other moms from reading it! And make sure you ASK – because just taking it would be stealing and that’s illegal.)

The original version, entitled “The Melancholy of Motherhood” includes one quote from Carole Blocker, the mother of Melanie Blocker Stokes, a mother who tragically committed suicide after unsuccessful treatment for severe postpartum depression after the birth of her daughter. The quote reflects Ms. Blocker’s confusion as to how someone could oppose the MOTHER’S Act, a bill which is designed to increase public and professional education regarding Postpartum Mood & Anxiety Disorders. Frankly, I’m confused right along with Ms. Blocker.

The only survivor story featured in this article is that of Amy Philo, one of five recipients of an Outstanding Achievement for Mothers’ and Children’s Rights awards from the Citizens Commision on Human Rights or CCHR. CCHR was founded in 1969 by none other than the Church of Scientology, well-known to oppose the entire psychiatric field.

Amy has tirelessly worked against this bill for quite some time now but continues to be tragically misled. Few discussions with her have led to quite the round robin with Amy unable to come up with legitimate research to back up her claims. When asked for said research, Amy refers to her own websites instead of to specific research articles supporting her claims.

I happen to know that Ms. Elton did indeed interview fellow survivors who support the bill. One has to wonder then, why did their stories not make it into the article? Was it length? Was it editing? Or was it intentional? Regardless, the finished piece as published presents a very frightening and deceiptful picture of what new mothers face is this bill is passed. To begin with, the MOTHER’S Act no longer mandates screening. It requires a study to be completed by the Secretary of Health and Human Services (Kathleen Sebelius) as well as funds for an educational campaign for both caregivers and the general public.

I agree that just because a new mother shows emotion she should not immediately be diagnosed as having a PMAD. I also believe that a woman should have free choice when it comes to her treatment decisions and should NOT be judged for those choices. I chose to take Anti-depressants. My first prescription did not work out. But my second one did. Just as with any other medication, sometimes they don’t work so well with your system. So you try another one. You don’t suddenly take your own care into your hands – that’s ridiculous. Would you try to heal a broken leg or diabetes on your own? No? I didn’t think so. So why would you rely solely on self-care when it comes to mental illness? Self-care should be part of the picture but it shouldn’t be the ONLY part of the picture.

I am so tired of being judged and accused of not having informed consent. You know what? When I made my decision to go on Anti-Depressants, I had carried around an informational packet about AD’s & Breastfeeding given to me by the NICU Lactation Consultant with me for a week. I read that thing through and through. I was exclusively pumping for my daughter at the time and did not want to jeopardize her receiving my milk if I ended up having to take something. But I couldn’t function. I couldn’t take care of my family, I couldn’t take care of myself, and a lot of the same thoughts were coming back. Negative, scary thoughts about knives and hurting myself and my family. Yet I wasn’t on anti-depressants. I needed to be able to function. So I made a very informed decision to do so, one I do not regret to this day.

TIME – I am very disappointed in your lack of sharing both sides of this debate. Very very disappointed.

Just Talking Tuesday 07.07.09: Anti-depressants or Not?

original photo by thegirlsmoma @ flicker

original photo by thegirlsmoma @ flicker

Today’s topic was inspired by a post over at Postpartum Progress: You don’t NEED Anti-depressants, Do You?

In this post, Katherine discusses the lack of stigmatization regarding pharmeceutical treatment for medical conditions in response to a ScienceBlogs post you can find here.

Anti-depressants are stigmatized. Period. Nitro-glycerin or insulin? Not so much. Why? Just as Anti-depressants may work for me, they may not work for you. And if you have the wrong heart condition and take nitro-glycerin, things may not go your way either. But you don’t hear people judging others for being on nitro-glycerin, now do you? And insulin? Many Diabetics require this life-saving medication. Even pain medication after an injury – do you question that prescription? Most don’t and certainly aren’t stigmatized for taking it because let’s face it – a broken leg hurts – something we all understand.

Mental illness hurts too. It hurts the person suffering. It hurts the people around them. And if the right medication is paired with the right therapy, it can make a world of difference. Why then, are we stigmatized or accused of not understanding informed consent for deciding (of our own free will) to take medication as we heal? What makes the scaffolding of Anti-depressants any different than pain medication as a broken leg heals?

So I’m posing a pretty big question today. And I expect there will be a bit of debate about it – which is good…our different opinions are what keep us interesting! Just keep things polite. No hateful, judgemental or fear-centered comments will be approved.

Do/did you or don’t/didn’t you take Anti-depressants? Why? Why not?

And more importantly – IS it your place to tell someone else they absolutely SHOULD not take them if you don’t believe in them or have had a bad experience? Or should you calmly refer them to research that explains the risks vs. benefits and let them make the decision on their own WITH a professional on board?

Let’s get to Just Talkin’!

Just Talkin’ Tuesday: Religion/Spirituality & Perinatal Mood and Anxiety Disorders

Just talkin tuesday logo

(Yes, I know it’s Monday. Realized that AFTER promoting at Twitter & Facebook. I was just so darn excited about this post I had to put it up an entire day early!)

Welcome to the very first “Just Talkin’ Tuesday!” Glad you could make it.

Have a seat! Share some thoughts!

Over the past few years, I have come to embrace my own Christian faith as what has carried me through my experience with Postpartum Obsessive Compulsive Disorder. A favorite quote of mine is by Mother Theresa – “God will never give you more than you can handle. I just wish he didn’t trust me so much!” (I paraphrased so not sure if that’s the precise wording or not!) And over the past few years, somehow, I’ve managed to earn a LOT of God’s trust. I don’t quite know how I achieved such a feat but alas, I did and here I am.

The past week has had a couple of interesting things tossed my way. The first was the inclusion of a link to an Islamic forum post dealing with postpartum depression. It’s specifically about a woman who’s husband has recently passed away but someone used the term Postpartum Depression in one of their discussions so Google quickly catalogued it for me. (Ain’t I lucky?!) You can read the post here. I found it quite fascinating because there is not a lot of information out there for the general public in relation to Islam and Depression. In fact, one of the posts includes a link to a PDF version of a book entitled Don’t Be Sad written by Aid ibn Abdullah al-Quarni. I skimmed through the table of contents and the introduction. Seems fascinating.

The other topic I found fascinating was coming across Stacey’s blog. Stacey is an atheist, a belief she has every right to hold, but I find personally hard to understand, especially given the role that faith and God has played in my own recovery. It’s really got me thinking about some things. (You can learn more about atheism via wikipedia by clicking here.)

And that brings us to the topic for today.

As you (or a loved one) journeyed through Postpartum Mood or Anxiety Disorder, what role, if any, did your faith/spiritual belief play in your recovery? Was it minimized or maximized? Did you completely change course? What are some of the sentiments your faith expresses about mental illness? Were you outcast because of your struggle or decision to treat with medication? How were you expected to treat your illness?

Let’s get to Just Talkin’ here!

Sharing the Journey with Helen Ferguson Crawford

I met Helen at Facebook. (Yes, I spend entirely TOO much time there) She’s a wonderfully brave soul who is opening up about her recent experience with Postpartum Depression and Thyroiditis. Did I mention her daughter also had kidney reflux? Helen is one tough chick and I can’t wait to share her journey with you. In fact, let’s get started now!

HFC

Tell us a bit about yourself. Who is Helen Crawford when she’s just HELEN?

Hey Lauren! I am a happy, confident, empathic soul.

Every day I am a being that is – a mother, wife, architect, artist, advocate, gardener, speaker, and big city lover. Our children, Joe (age 5 1/2) and Nora (age 19 months) are hilarious, engaging little people.

Did your pregnancy and birth go as you expected or were there some unexpected experiences thrown in for good measure?

Both pregnancies were good! You know normal stuff – morning sickness, back aches. I was busy doing things that I love to do both times.

My due date for both my children was the same day, October 16th. Ironically, it is also the day my husband asked me to marry him. Now, were they born on that day? Of course not!

With just about every pregnancy and post-natal period there are unexpected experiences large and small. With my son Joe, it was a c-section, and a lousy bout of mastitis afterward. I did not have PPD following his birth. However, after the birth of my second child, Nora in Oct 2007, everything was great until the fourth month post-partum. I started feeling tired, overwhelmed, and my hair was falling out. I was always cold, and my skin was rashy. I was anxious and sluggish. Thus began a very confusing, insidious spiral downward, a complete descent into more than one post-partum related illness.

You too have tread down the bumpy cobblestone avenue of Postpartum Depression. Just how bumpy was that road for you? How did your journey start out?

Severe bumps. I have seen clinical depression up close many times, as a witness. Depression runs in these genes, and having it myself was one of my biggest fears.

In March 2008, my OBGYN tested my thyroid. The numbers were off and I was sent to an endocrinologist. I was diagnosed with (temporary) Post-Partum Thyroiditis. Post-Partum Thyroiditis mimics symptoms of depression and anxiety. Since I had wacky blood work – that must have been it right? The source of the anxiety attacks and lost feeling? That proved to be wrong. It took 6 months for my thyroid to return to normal, and when it did the panic attacks increased. In late August 2008 when my daughter was 10 1/2 months old, I stopped sleeping and eating entirely. And then I knew, PPD was here. Full, clinical post-partum depression/anxiety had been here the whole time, hiding behind abnormal blood work, an thyroid in overdrive, increasing anxiety about my daughter’s kidney reflux, and my role as a mother and practicing architect.

What were some of the things you did to get through your darkest days? How were you received when you sought help?

I pulled myself together as best as anyone in the scariest place they have ever been could. Used every inch of energy I had to find a psychiatrist that would see me immediately. I found a great one and also called my therapist, whom I had not seen since Nora’s kidney diagnosis in June. She met me after hours immediately. I saw the psychiatrist 36 hours later and started medication. Medication was and still is necessary for me. On that day I went the the psychiatrist, I called my office and was honest. My office was accepting. And then crawled back into bed to begin recovery, whatever it would become, and is becoming.

Oh – Practiced breathing. Meditation. I accepted what was now – this depression and that I was doing everything in my being to crawl out of it. Once the medication started working and my appetite nourished my strength, I started painting and writing again. I wrote about what it felt like to have this monster. I drew strength from these words and images. Here is a diary entry that I read and reread often:

Dear Post Partum Depression,

After the birth of my daughter, you silently slipped in, and settled down. I recovered from birth, hugged my family, and watched autumn change to winter, while you slowly grew. You hid behind other temporary, post partum illnesses, undetected. You fed on stress. You fed on fear, until I found myself in a black hole so deep, dark and terrifying. The sides were wet, damp and crumbly dirt; the width of my arms. Up far above, the sky was barely visible. Sometimes I could feel the sun for seconds. There in that place, I accepted that you were here. With intense fear, I stood up and gathered my army – friends, family, therapist and psychiatrist. But even at night, when I lay on the cool floor of my porch, listening for anything – birds, trains, wind – waiting for the anxiety attacks to stop, waiting weeks for the medication to work, waiting for sunlight, sleep and appetite to return, I knew you were not me. Depression, you are something that happened along the way – a situation. I accept this. You do not define me. I laugh, sleep, play with my children, talk with my husband, draw, paint, smile, pray, cry, spend days with friends and live. I climb, inch by inch, fingers dug in the sides, pulling myself up. Each inch I climb is a triumph. I am on this path that is life. My light shines from within.”

Support from a spouse/partner or family and friends is invaluable during recovery from a Postpartum Mood Disorder. What was your experience with family and spousal support as you recovered?

Everyone needs an army. My parents came for 3 months to take care of us. My in-laws supported us in many ways. My husband went to therapy with me and took care of the children every night for 4 months, as I was getting stronger. I am truly blessed. It’s been 8 months since I sought treatment, and I am heading towards remission. I’ll still be on medication for a while and that’s OK.

Name three things that made you laugh today.

I overheard the 19 month old say to her big brother, “stop whining Joe Joe.”

A Jon Stewart clip.

My son break/karate dancing like a pro.

What do you find the most challenging about parenting? The least?

The dynamics are always changing – this is the hardest. The least challenging of course is loving the pure joy these two bring us. Beats all the hard work!

Self-care is so important. Often we forget to Mother the most important person in our lives – OURSELVES. Share with us what you do when taking time for yourself.

Every mother knows that this is one of the hardest things to do, find time. I realized with the help of my husband and therapist that I always sabotaged my own free time. I didn’t let free time for me happen, because I did not know how. Now I paint and practice yoga – by myself. I see my friends more.

At Facebook, you host a group encouraging the support of the MOTHER’S Act. Tell us about your support of this legislation.

I am still amazed that there is not much understanding of this illness including in the medical profession. Research and public awareness are necessary! This is REAL. It’s not momentary sadness, weakness or weepy, female emotions. The women whom get through this are the bravest, strongest women in the world. Listen to their voices.

The Facebook group is starting to take off. Its called “Sign This- Post Partum Depression Mothers Act.” All the names are sent to the national petition list that Susan Dowd Stone is compiling. Names are sent per state, so remember to let us know where you live!

On the group page there is an opportunity to contact your individual senators.

And last but not least, let’s say you have an opportunity to share some advice with an expectant (new or experienced) mom about Postpartum Mood Disorders. What would you tell her?

There is no shame in having this illness or possibly having this illness. Sometimes it just happens along the way. It is awful, but treatable, and temporary with help. I would hug her and remind her she did nothing wrong, EVER. She just had a beautiful baby and the body is having bumpy time trying to recover. Speak up, seek help and find peace within, even if it means medication and an army of support. My daughter is the happiest girl I have ever met. As I recover, I laugh out loud about how I gave her all my happiness to go forth in the world. So now I’m in the process of re-growing mine!