Category Archives: research

On Speaking with Katherine Stone & D. Jeffrey Newport

Today I was a panelist along with Katherine Stone at a Community Lunch and Learn sponsored by Mental Health America and Skyland Trails of Atlanta.

Dr. Jeffrey Newport was the keynote speaker while Katherine and I both shared with attendees our story and how we had been moved to share with others about our experience. Katherine was wonderful and I thoroughly enjoyed meeting her. (Look for an upcoming interview soon!) Dr. Jeffrey Newport was also terrific and is a great speaker – wonderful sense of humour and very down to earth. His presentation was terrific and once I have a chance to read over and edit my scribbled notes into something coherent, I will certainly be sharing some of them with you!

We had several attendees thank us for sharing our stories afterwards, including a woman recently diagnosed with PPD. That alone made the journey worth it. To be able to reach out not only to women who are currently suffering but to also provide a personal insight to those in the field who are directly dealing with this disorder is an amazing and powerful opportunity. I sincerely look forward to not only continuing with my current work but to being able to have additional opportunities like the one today. God has truly blessed me and I am very thankful!

(Oh, and I also enjoyed having the day off from kiddie-care too! I was gone from about 9a-4p today. Oh the heaven! LOL)

MOTHER’S Act Rumors – Breaking the Silence

I consider this post to possibly be one of the most emotionally charged and important posts that I have written to date. Katherine Stone recently addressed this issue and having received a comment here at Unexpected Blessing, I am following suit.

On February 11, 2008, I received notification of a comment in response to one of my MOTHER’S Act posts. This comment blatantly challenged and negated the necessity for the bill and raised an alarmist point of view by claiming that new mothers would become trapped by the system and forced to take anti-depressants, masking the “root” of the problem. This comment also claimed that there is no “valid or concrete evidence proving the existence of such a disorder…” going on to point out that the disorders in the DSM-IV are “voted on….” (see: http://www.acnp.org/g4/GN401000082/CH081.html)

Infuriated with this comment and feeling first hand the ignorance of the individual that wrote this, I remained silent until I could calmly and rationally respond.

First, let me assure you, I have LIVED the valid and concrete evidence that proves the existence of this very disorder. It has disrupted my life, it has disrupted my family’s life, and it has changed me as a person. Through this challenge, I have found my way out of the rabbit hole and I have found many others who have also found their way out or are currently working their way out.

I have also suffered without treatment – because my first doctor decided that I didn’t fit the criteria for PPD – and was refused treatment based on this and the fact that I refused to stop nursing – something I was asked to do WHILE MY INFANT WAS SCREAMING TO BE NURSED! I knew from research and contact with others that I could be treated with medication. I also know now that I needed medication – because I tried to recover on my own but was unable to so, resulting in Progressive Postpartum Depression that continued into my second pregnancy, leading to early delivery and ultimately to my hospitalization when I was unable to do anything but curl up in the fetal position and rock back and forth, staring out my window, praying that I wouldn’t do anything to my children.

I believe in this bill because I have lived through the very depths of the condition it is fighting to uncover and remove the stigma of so that the next mother who suffers will not have to suffer in silence, will not have to go to her doctor and be rejected and told to “suck it up” and that this is a normal part of motherhood, something that she should get over, something that shouldn’t be happening because she is more than 6wks postpartum and therefore all her hormones should be back to normal by now. Clearly if a woman is seeking treatment (which by the way, is the HARDEST step), she has a reason to do so. And anti-depressants are not always the answer – there are plenty of other therapies that can be explored and may work for certain individuals.

The point is that mothers should feel as if they can work with their physicians as part of a team and not be disregarded nor dismissed when they finally push the tears and anxiety far enough away to make that plea for help. And let’s not forget that these are innocent victims – the mothers, the infants, the fathers, the families that are plagued by this tragic disease every day. It turned our world completely upside down and does even more to other families. I know I was lucky – I got help, I encountered physicians who were open to my plight and willing to lend a hand to help me climb out of my dystopia, encouraging me to turn and fight, making me believe that I could beat this. And I did beat it. I refuse to let anyone fight this alone as a result. If my story saves just one life, it will all have been worth it. I will fight for women and families to have access to fair and non-judgemental care until the day I die.

Ultimately I am pleading the case FOR the MOTHER’S Act. But I will tell you what I tell any woman in the midst of a postpartum crisis I come in contact with. Educate yourself. Get the facts, get them straight, verify them, and then speak. This is a free country and everyone is entitled to their own opinion, but everyone should also be entitled to fair and just healthcare and not be afraid to make that phone call for fear of being dismissed or shrugged off. Postpartum Depression IS real. I have been there. I know a LOT of other women who have been there – it has been with us for thousands of years and yet we still live with the stigma. It is only with openness and research that acceptance and fair treatment will come. Please don’t deny new mothers the access to proper care that they deserve and so desperately need. So many times I have heard of doctors passing on bad advice or being dismissive, even in my hometown I have heard stories of women being told “Well if you’re not suicidal or thinking about hurting your baby, you’re fine” Excuse me??? So you want me to call you back AFTER I’ve done something. NO!!!! Preventive care is the best care – any cardiologist or oncologist would tell you that if this were heart disease or cancer we were discussing. But it’s not. It’s a mental illness. A DISEASE of the mind that these new moms did NOT ask for and want to be free from so they can enjoy their new babies and roles as mothers. Trust me, if we could free ourselves from these bonds on our own, we would.

So go forth, educate yourselves, read the text of the MOTHER’S Act, contact your Senator, ask questions, contact Senator Menendez. Contact PSI (who, by the way is NOT funded in any way shape or form by the pharmaceutical industry!), contact your local mental health advocacy group. But please, before you buy into what these naysayers have to cry from their mountaintops, check out the facts for yourself.

100 Postpartum women needed for research!

(Note to other bloggers: Please post this at your blog as well to help with this important research!)  

The Postpartum Stress Center announces the second phase of our research project!

WE NEED YOUR HELP

To All PPD Advocates:
As many of you know, I have been collaborating with a research team at the University of Pennsylvania School of Medicine who have expertise in postpartum distress and scale design. We have performed an initial statistical analysis on a new postpartum distress scale. 

At this stage, we would like to re-test our proposed scale items, along with established measures, such as the Edinburgh Postpartum Depression Scale  (EPDS).

We need approximately 100 postpartum women (with babies up to 12-months old) to complete this phase of the study.  I am hoping that you will post a link to the questionnaire, which is offered online, for your members or your clients, to help us further validate this measure.

Below you will find links to the survey that you can copy and paste into emails or your websites.

As always, thanks for your participation.

-Karen Kleiman, MSW
For an e-mail link to the survey, copy and paste:
http://www.surveymonkey.com/s.aspx?sm=buxYKYtfEAHnSfb5wJSJwg_3d_3d

To place the link on your webpage, copy and paste:

<a href=”http://www.surveymonkey.com/s.aspx?sm=buxYKYtfEAHnSfb5wJSJwg_3d_3d”>Click Here to take survey</a>

To enter the survey from here, click on the link:
http://www.surveymonkey.com/s.aspx?sm=buxYKYtfEAHnSfb5wJSJwg_3d_3d

_______________________________________________________

THE POSTPARTUM STRESS CENTER
www.postpartumstress.com.

Providing support, counseling and education to women and their families who experience difficulties related to pregnancy, pregnancy loss and the postpartum period.

The Postpartum Stress Center was founded in 1988 by Karen Kleiman, MSW.  The Center was established to provide a better understanding and comprehensive clinical intervention for perinatal mood disorders.