Category Archives: prayer

MOTHER’S Act Rumors – Breaking the Silence

I consider this post to possibly be one of the most emotionally charged and important posts that I have written to date. Katherine Stone recently addressed this issue and having received a comment here at Unexpected Blessing, I am following suit.

On February 11, 2008, I received notification of a comment in response to one of my MOTHER’S Act posts. This comment blatantly challenged and negated the necessity for the bill and raised an alarmist point of view by claiming that new mothers would become trapped by the system and forced to take anti-depressants, masking the “root” of the problem. This comment also claimed that there is no “valid or concrete evidence proving the existence of such a disorder…” going on to point out that the disorders in the DSM-IV are “voted on….” (see: http://www.acnp.org/g4/GN401000082/CH081.html)

Infuriated with this comment and feeling first hand the ignorance of the individual that wrote this, I remained silent until I could calmly and rationally respond.

First, let me assure you, I have LIVED the valid and concrete evidence that proves the existence of this very disorder. It has disrupted my life, it has disrupted my family’s life, and it has changed me as a person. Through this challenge, I have found my way out of the rabbit hole and I have found many others who have also found their way out or are currently working their way out.

I have also suffered without treatment – because my first doctor decided that I didn’t fit the criteria for PPD – and was refused treatment based on this and the fact that I refused to stop nursing – something I was asked to do WHILE MY INFANT WAS SCREAMING TO BE NURSED! I knew from research and contact with others that I could be treated with medication. I also know now that I needed medication – because I tried to recover on my own but was unable to so, resulting in Progressive Postpartum Depression that continued into my second pregnancy, leading to early delivery and ultimately to my hospitalization when I was unable to do anything but curl up in the fetal position and rock back and forth, staring out my window, praying that I wouldn’t do anything to my children.

I believe in this bill because I have lived through the very depths of the condition it is fighting to uncover and remove the stigma of so that the next mother who suffers will not have to suffer in silence, will not have to go to her doctor and be rejected and told to “suck it up” and that this is a normal part of motherhood, something that she should get over, something that shouldn’t be happening because she is more than 6wks postpartum and therefore all her hormones should be back to normal by now. Clearly if a woman is seeking treatment (which by the way, is the HARDEST step), she has a reason to do so. And anti-depressants are not always the answer – there are plenty of other therapies that can be explored and may work for certain individuals.

The point is that mothers should feel as if they can work with their physicians as part of a team and not be disregarded nor dismissed when they finally push the tears and anxiety far enough away to make that plea for help. And let’s not forget that these are innocent victims – the mothers, the infants, the fathers, the families that are plagued by this tragic disease every day. It turned our world completely upside down and does even more to other families. I know I was lucky – I got help, I encountered physicians who were open to my plight and willing to lend a hand to help me climb out of my dystopia, encouraging me to turn and fight, making me believe that I could beat this. And I did beat it. I refuse to let anyone fight this alone as a result. If my story saves just one life, it will all have been worth it. I will fight for women and families to have access to fair and non-judgemental care until the day I die.

Ultimately I am pleading the case FOR the MOTHER’S Act. But I will tell you what I tell any woman in the midst of a postpartum crisis I come in contact with. Educate yourself. Get the facts, get them straight, verify them, and then speak. This is a free country and everyone is entitled to their own opinion, but everyone should also be entitled to fair and just healthcare and not be afraid to make that phone call for fear of being dismissed or shrugged off. Postpartum Depression IS real. I have been there. I know a LOT of other women who have been there – it has been with us for thousands of years and yet we still live with the stigma. It is only with openness and research that acceptance and fair treatment will come. Please don’t deny new mothers the access to proper care that they deserve and so desperately need. So many times I have heard of doctors passing on bad advice or being dismissive, even in my hometown I have heard stories of women being told “Well if you’re not suicidal or thinking about hurting your baby, you’re fine” Excuse me??? So you want me to call you back AFTER I’ve done something. NO!!!! Preventive care is the best care – any cardiologist or oncologist would tell you that if this were heart disease or cancer we were discussing. But it’s not. It’s a mental illness. A DISEASE of the mind that these new moms did NOT ask for and want to be free from so they can enjoy their new babies and roles as mothers. Trust me, if we could free ourselves from these bonds on our own, we would.

So go forth, educate yourselves, read the text of the MOTHER’S Act, contact your Senator, ask questions, contact Senator Menendez. Contact PSI (who, by the way is NOT funded in any way shape or form by the pharmaceutical industry!), contact your local mental health advocacy group. But please, before you buy into what these naysayers have to cry from their mountaintops, check out the facts for yourself.

A Dark Place

Last night, I slid a little further towards that dark hole those of us who have had PPD know a little too well. I felt as if it reached out and grabbed me, sucking me down until only a glimmer of light remained. I called my husband in tears about 10 minutes before he got off work. Not only had Cameron been nursing non-stop, he had been spitting up non-stop. When I went to get him up, his sheet was drenched and so was he. I cleaned him up best I could – in between our one and a half year old running in and out of his room and not minding me at all. In addition, as I changed Cameron’s sheets, he vomited at least three times. Alli was a charmer all day yesterday. I can’t imagine how much worse things would have been had she been misbehaving too. I let myself get angry – angry about the Nyastatin, angry that Charlotte wasn’t listening, angry that every time I called the pizza place either Cameron or Charlotte would scream. I finally called my husband and had him call in our order for us. I had already started swirling downwards by that point though – way down – and I knew it – and part of me wanted to stop it yet another part of me wanted to submit. Once my husband called in our pizza order, fresh air seemed to surround me and things started to look up. I managed to cling to the side of the dark hole and not fall too far. Once I got the girls to bed, things started to calm down. Cameron was up until 1130 – spitting up and nursing, poor thing. But he did sleep in my arms for a bit and that was blissful. In fact, it’s what calmed me down the most. Well, that and knowing Chris was here to attend to anything else that might happen. I now had support here and that was a HUGE relief.

 Today, after Chris gets off work, I will be taking the car and going to get myself  a coffee and either picking up a few groceries or getting a NY Giants shirt. (Maybe both!) I told Chris I needed some time alone today to recover from yesterday and he quickly agreed. I am going to try and pump a little bit later – there’s already 3oz in the fridge but Cameron is a hungry baby in the afternoons so I need to try and leave more than he will need.

Even though I am having bad days, the good days have outnumbered them by far – and when I have a bad day, I am able to recognize that it is nothing more than that – a bad day. I am also able to balance that with a plan to improve the next day.

My husband shared something with me today. He found an interesting tip on the internet about achieving your goals. Take a blank index card. Write positive affirmations or notes to yourself on it. Carry it with you wherever you go – look at it as needed. I think I’m going to do that – after all, writing here has helped me tremendously. I can’t imagine what carrying little positive affirmations will do for me.

A note on Cameron’s spitting up:  

Cameron’s pediatrician finally called in his Nyastatin prescription and he started it on Wednesday. Yesterday he spent most of the day spitting up and vomiting. I stopped the Nyastatin and will be using diluted Grapefruit Seed Extract instead. I have no intention of calling his pediatrician’s office because according to them, “Nyastatin shouldn’t make him spit up.” Um, well, it does, and no thanks to the nurse who actually told my husband “It shouldn’t make him spit up, just hold his mouth shut so it all stays in” Yes, we are writing a letter of complaint. Not only for that, but for the fact that we called the ped’s office on MONDAY about thrush and it took them until WEDNESDAY to call something in – and even then, they couldn’t remember what they were supposed to call in. UGH!

One-two punch

Punch No. 1:

I’d been hoping Cameron and I would avoid thrush; that our sore nursing sessions were due to his tight frenulum but alas; yesterday morning he had white spots on his tongue that I could NOT wipe away. So I put in a call to his ped, my OB, and we started our medicine last night. He’s on Nystatin after every feed and I took Diflucan yesterday with another dose to follow on Saturday. I am also using a vinegar solution on my nipples (it’s supposed to change the pH level and make things rather uncomfortable for yeast) as well as changing my nursing pads at every feeding. We bought Medela microwavable sterilization bags and I have Medela sterilization wipes as well and also had hubby pick up a couple more paci’s. Yesterday was really rough with Cameron – he pretty much nursed from 9pm Tuesday evening until 9pm or so last night. I seemed to be the ONLY comfort for him. Ah, the joys of breastfeeding! (I am SO grateful I can do it this time around though – so so grateful. To read what I went through with Charlotte, go here)

Punch No. 2:

Cameron’s ped’s office called Chris this morning and left a message that they need to do his PKU test again. Ugh. From what I’ve read, PKU is rare but requires very close watch on diet, etc. 1 in 10,000 people have it and retesting is more common than thought and *usually* comes out negative even with a previous positive or borderline of the newborn screening that is done at birth. I know typing I seem calm but I am a little worried because it’d just be one more thing I’d have to worry about and frankly, I don’t need anything else to worry about. I keep telling myself not to worry about it unless I need to – but putting that into practice is SO much harder than it sounds, especially when it comes to your own family! Chris is going to call the ped’s office back and find out why they need to retest and schedule the retest for tomorrow. Those of you who believe in the power of prayer as I do, please send some up for us.

Emotionally I am doing ok, considering. I’ve had a couple of intrusive thoughts but they’ve been so fleeting I couldn’t even tell you what they were about. And today I noticed some OC behaviour but it was after I found out about the need to retest for PKU so I’m pretty sure it’s related to that stress. As long as things don’t get worse and I stay on the same path I’m on now, I’ll be ok. Chris has been checking in on me, as have my mother and his mom has also been asking how I’ve been doing. Alli asked me a few days after I had been home when I was going to get sad. I laughed at her and said that hopefully I wouldn’t get sad this time around. We’ve been having wonderful ladies from the Newborn Ministry at our church delivering meals and their timing has been perfect – one of the meals was delivered yesterday and  I was SO grateful for a delicious hot meal that I hadn’t cooked! We are somewhat developing a routine but as with everything involving children, it’s flexible with little changes here and there day to day. Although I must say, I am impressed by the fact that I can get up with Cameron while he’s nursing, not break the latch, take Alli potty, and return to the couch with him still latched on; oblivious to the fact that he just traversed the house with me. Guess that’s my trick this time around. With Alli, it was eating spaghetti left handed while nursing and not dropping a single smidge of sauce. With Charlotte – well – it was pumping and getting her to nurse at all; even if just for a few seconds.

Gotta run, time for Cameron to nurse.

Introducing our Unexpected Blessing

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He’s here! Our unexpected blessing arrived on December 18th at 419am after a short labor, tipping the scales at 8lbs 7ozs, measuring 20in long.

We checked into the hospital at 630p, Pitocin was administered at 8pm, water was broken at 11pm, epidural at about 1am or so, short nap (thank GOD), awoken by epidural fading, feeling like I needed to push, and 45 minutes later Cameron was born. He had to be suctioned and received some blow by oxygen due to his short trip down the birth canal but his palate is intact and he is a champion nursing baby boy!!! He looks just like the girls except that he has brownish green eyes. Chris and I have to keep reminding ourselves he’s a boy! LOL.

I am doing well. Already feeling great, moving around, still sore a bit physically. Mentally I am doing well. I thoroughly enjoyed cuddling with Cameron today and really bonded with him. I spent most of the day with him in bed with me just staring at his gorgeous little face. He nursed quite a bit today and as I said earlier, definitely knows what’s going on in that department.

Chris and I feel that Cameron has been blessed to us as a reward for all our hard work with Charlotte. We truly survived the fire with her and feel so blessed to have her as part of our lives. … and now to have Cameron as well. We already felt  blessed to have Alli as well but now we definitely feel that God has smiled upon us and for this we are grateful.

Last PACE meeting of the 2007!

Here I sit, grateful to be out of the house, and grateful to the folks who have allowed me to sit here in their conference room, free of charge, for the entire past year in order to provide support to women in need. It’s been a terrific year, even with the ups and downs and frazzled moments in between. Hmmmm. Sounds like life!

I wouldn’t dare begin to count how many women I’ve touched with my story and support. All I know is what I’ve been doing has been precisely what I AM supposed to be doing.

On the way here, desperate for some blissful distraction, I was scanning my SIRIUS radio for some good music and came across Bon Jovi’s Livin on a Prayer. Yeah, it’s an oldie but God chose that song to speak to me. This past year has been just that – I’ve been livin on a prayer. A prayer to uplift my family and allow us to give back and help others get through what we’ve been through. It’s been a prayer for increased faith, increased trust, and increased strength. And our prayer has been answered over and over again. I know it is just not possible for us to have gotten through the past year without His hand guiding our lives.