Tag Archives: PKU

A Little Brag

This morning I had a surprise in my email.

A notice about a link to my blog. From a pediatrician website I think the WORLD of!!!!!

Yeah, that’s right, good ol’ Dr. Greene’s website links to ME now! (WOW!)

Ms. Greene noticed my post regarding Cameron’s PKU test and today she wrote a response in their “Sightings” blog which focuses on interesting tidbits found here and there on the net. Woooeeeeee!!!

You can read the entire post here.

How AWESOME is this?

One-two punch

Punch No. 1:

I’d been hoping Cameron and I would avoid thrush; that our sore nursing sessions were due to his tight frenulum but alas; yesterday morning he had white spots on his tongue that I could NOT wipe away. So I put in a call to his ped, my OB, and we started our medicine last night. He’s on Nystatin after every feed and I took Diflucan yesterday with another dose to follow on Saturday. I am also using a vinegar solution on my nipples (it’s supposed to change the pH level and make things rather uncomfortable for yeast) as well as changing my nursing pads at every feeding. We bought Medela microwavable sterilization bags and I have Medela sterilization wipes as well and also had hubby pick up a couple more paci’s. Yesterday was really rough with Cameron – he pretty much nursed from 9pm Tuesday evening until 9pm or so last night. I seemed to be the ONLY comfort for him. Ah, the joys of breastfeeding! (I am SO grateful I can do it this time around though – so so grateful. To read what I went through with Charlotte, go here)

Punch No. 2:

Cameron’s ped’s office called Chris this morning and left a message that they need to do his PKU test again. Ugh. From what I’ve read, PKU is rare but requires very close watch on diet, etc. 1 in 10,000 people have it and retesting is more common than thought and *usually* comes out negative even with a previous positive or borderline of the newborn screening that is done at birth. I know typing I seem calm but I am a little worried because it’d just be one more thing I’d have to worry about and frankly, I don’t need anything else to worry about. I keep telling myself not to worry about it unless I need to – but putting that into practice is SO much harder than it sounds, especially when it comes to your own family! Chris is going to call the ped’s office back and find out why they need to retest and schedule the retest for tomorrow. Those of you who believe in the power of prayer as I do, please send some up for us.

Emotionally I am doing ok, considering. I’ve had a couple of intrusive thoughts but they’ve been so fleeting I couldn’t even tell you what they were about. And today I noticed some OC behaviour but it was after I found out about the need to retest for PKU so I’m pretty sure it’s related to that stress. As long as things don’t get worse and I stay on the same path I’m on now, I’ll be ok. Chris has been checking in on me, as have my mother and his mom has also been asking how I’ve been doing. Alli asked me a few days after I had been home when I was going to get sad. I laughed at her and said that hopefully I wouldn’t get sad this time around. We’ve been having wonderful ladies from the Newborn Ministry at our church delivering meals and their timing has been perfect – one of the meals was delivered yesterday and  I was SO grateful for a delicious hot meal that I hadn’t cooked! We are somewhat developing a routine but as with everything involving children, it’s flexible with little changes here and there day to day. Although I must say, I am impressed by the fact that I can get up with Cameron while he’s nursing, not break the latch, take Alli potty, and return to the couch with him still latched on; oblivious to the fact that he just traversed the house with me. Guess that’s my trick this time around. With Alli, it was eating spaghetti left handed while nursing and not dropping a single smidge of sauce. With Charlotte – well – it was pumping and getting her to nurse at all; even if just for a few seconds.

Gotta run, time for Cameron to nurse.