Tag Archives: MOTHER’S ACT

Ahhh – the irony of it all

I have debated whether or not to post about this but I cannot keep it to myself any longer.

It would seem dear Amy Philo has a blog here at wordpress. Those of you who are fellow bloggers (and readers) know that at the bottom of a post WordPress now includes Possibly Related Posts. Enter irony.

Amy’s prime mission is to derail the passage of The MOTHER’S Act, legislation that if enacted, would mandate screening, education, and further research for Postpartum Depression. One of her posts regarding an article against the MOTHER’S ACT blockers has a link at the bottom. To my blog. To a Post which includes Susan Dowd Stone’s Statements regarding the MOTHER’S ACT.

Yeah.

I love the internet too.

Correction to MOTHER’S Act Update

Apparently I missed an important fact last night – Motion to proceed to consideration of measure was withdrawn in Senate. (consideration: CR S7554) Click on S7544 to read the text of the proceedings as they played out yesterday afternoon on the Senate floor.

At this point in time, I am not sure what this means for The MOTHER’S Act. I am disappointed in the situation and sincerely hope that this will not dampen the drive for this bill that has been building for so long now.

Sharing the Journey with Adrienne Griffen

Meet Adrienne Griffen, an amazing woman, mother, PPD Survivor, and fellow PSI Coordinator.

Adrienne has been volunteering with PSI for about as long as I have and is located in VA. She recently launched her own non-profit, Postpartum Support Virginia.Not only is she one dedicated woman, she’s from my home state, VA. Gotta show the love, right?

Her first postpartum experience was awesome – she even held a dinner party for 40 people when her new daughter was just three months old! (YOU GO GIRL!) It was with her second child that events quickly spiraled out of control and Adrienne found herself struggling for someone, anyone, to listen compassionately to her and show her the way back out. Finally her husband located a physician who specialized in women’s mood disorders. Adrienne began to recover having finally located the correct help. Her third pregnancy was a lot like mine – she stayed on her meds, educated her doctors (even received an apology) and received a screening questionnaire at her 6 week checkup. (By the way, HAVE you written or called your Senator about the MOTHER’S ACT yet?) Impressed with how far the medical community had come, Adrienne felt great and was now fully dedicated to improving things even more. Read on to find out more…

Just like me, you’ve been driven to help other Moms struggling with PPD through an experience of your own. Would you mind sharing that experience with us and why it inspires you to help other mothers?

After my second child was born six years ago, I had a fairly significant episode of postpartum depression and anxiety. I knew something was wrong because everything about this birth and postpartum period was the opposite of my first experience with childbirth two years earlier. My second delivery was rather traumatic (emergency C-section); my second baby ate more, slept less, and cried more than my first; I had a toddler AND a newborn (which I believe is the hardest stage thus far of parenting); I was totally sleep deprived; and I just couldn’t imagine how I was going to survive the next 18 years until this baby went off to college, never mind the next 5 minutes. Compounding my misery was the fact that my next-door-neighbor had just had her second, and my sister just had her fourth, and they made it look so easy.

The hardest part was finding help. Despite realizing that something was terribly amiss, I couldn’t find the help I needed — or at least the help I wanted. At my 6-week postpartum, I told the OB/GYN that I wasn’t feeling well, and without any discussion she offered me Prozac. When I called the Behavioral Medicine branch of my HMO, I was hoping for a verbal hug from someone who could reassure me that others had felt like this and that help was available. Instead, I was told to call back during normal business hours, overheard the intake nurse tell her supervisor I was “homicidal”, was told that they would report me to Child Protective Services if I had hurt my children, and was charged two co-pays since I saw a nurse AND a doctor. The psychiatrist recommended sleeping pills — I wasn’t sure if he meant for me or for my baby. I called mental health providers but couldn’t find anyone accepting new patients. I called about support groups, only to be told that they were now defunct. I saw a psychologist for several months who never understood how desperate I was. I felt like I was banging my head on a brick wall. Finally, when my son was six months old, my husband located a psychiatrist who specializes in women’s mood disorders and gave me the reassurance and care I needed.

I vowed during this time that I would someday do something so that others could find help more easily. This isn’t rocket science. PPD is relatively easily diagnosed and treated. The hard part is getting information to new mothers and connecting them to health care resources.

Tell us about your organization, Postpartum Support VA. How long has this been in the works and what does it feel like to finally have it up and running?

Postpartum Support Virginia is a not-for-profit organization providing hope and help for new mothers through:

  • support for new and expectant mothers (one-on-one and group support)
  • information and resources for new mothers and their families
  • outreach and education

I think of it as an umbrella covering all the activities ongoing in Virginia dealing with postpartum depression. The website (www.postpartumva.org) lists telephone and email volunteers, support groups, and mental health professionals who treat women with postpartum depression and other perinatal mood disorders.

I’ve been thinking about creating an organization like Postpartum Support Virginia for about three years, ever since I started to volunteer with mothers experiencing postpartum issues. But with three young children (they are now 8, 6 1/2, and 3) I couldn’t devote the time and energy until now. My approach has been to build the infrastructure first, then put the superstructure in place.

In other words, I’ve spent the last few years laying the foundation — helping other volunteers get started, speaking to maternal/child health care providers, leading support groups, networking with others involved with PPD throughout Virginia, attending PSI conferences. The past six months have been about formalizing these operations — creating a not-for-profit organization, building a website, creating a board of directors. The next few months will be focused on fund raising. Postpartum Support Virginia is still in its infant stage, and I really feel like I’ve given birth to my fourth child.

What do you find to be the most rewarding about helping other PPD Moms and families?

There is such joy in helping these new mothers who are swirling around in the whirlpool of depression and anxiety. To see the change after they get the help they need is so rewarding. In particular, seeing a new mother fall in love with her baby is amazing. And to receive feedback like this email from a mom who attended one of our support groups makes it all worthwhile:

“Thank you from the bottom of my heart. The knowledge and encouragement that you all gave me in only 2 visits put me on the path to a better life than I ever could have imagined. I went from the worst time in my life to the happiest I have ever been so I am very grateful. Thank you so very much.”
How did your husband handle your PPD? Any advice for dads struggling to cope with their partner’s PPD?

My husband kept our little family going while I had PPD. He researched this illness and found the psychiatrist who finally helped me. He would come home from work at a moment’s notice when I was falling apart. Whenever I feel guilty about how he carried me through this time, he reminds me that is what marriage is all about. Spouses who see their partners suffer PPD, please remember that this is not her fault, you are not alone, and with help she will be well again.
What is the most challenging thing about motherhood?

The most challenging thing about motherhood is being mentally present for each of my children. They are each so special and unique, requiring different parenting skills from me, that it takes time and energy to give each what s/he deserves.
What is your most favorite thing about motherhood?

The same as all other mothers – BEDTIME! Just kidding.

Three things:

  1. I love making my children smile.
  2. I love seeing the progression towards independence, which is bittersweet but the goal of good parenting.
  3. I love watching the sibling relationship develop.

How long have you been a PSI Coordinator and how did you first find out about PSI?

I have been a PSI coordinator for two years. I heard about PSI from another PPD survivor and volunteer, Benta Sims, who raved about the conference she attended a few years ago. Joining PSI gave me the sense of connectedness and credibility that I needed to do this type of volunteer work.

What do you do when you take time for YOU?

Oh, I take LOTS of time for me to ensure I have time and energy for my family. On a daily basis I exercise and nap — in fact, I have taken a nap virtually every day since I was pregnant with my first child almost 10 years ago. I go to bed at 10:00 every night (except tonight while I am answering these questions!). I see a therapist, go to a chiropractor, get monthly therapeutic massages, and practice yoga. I host coffee once a week with three great neighbors — we solve each other’s problems and keep each other on track. And I have terrific in-laws who take my children for a few days once a year so I can revel in being alone in my own home. This is the best gift ever — and usually when I fall into a novel and read non-stop for two days.

How do you balance motherhood and work?

Balancing motherhood and work is extremely difficult, as most mothers know. I don’t really consider what I do as “work” because I find it so fulfilling — and because I don’t get paid (yet). The way I balance it is being my own boss. I know that at this stage of life I wouldn’t be happy with someone telling me what to do, answering to someone else’s demands or expectations or schedule, and forcing my children into my work schedule. So with my own organization, I can do what I want when I want.

Practically speaking, it means working while my children are at school or at night so I can be fully present for them while they are at home. During the summer I hire a babysitter a few mornings a week to take my children to their swim team or the park while I work from home. I’ve been ramping up slowly, but this year will be a big turning point as my youngest starts half-day preschool.
Finally, if you had a chance to pass on just one piece of advice to a new mom (experienced or not), what would you share with her?

Take care of yourself so you can take care of your family.

Sharpen those keyboards and use those phones!

Ladies! (And gentlemen!)

Get those advocate attitudes revving!

The MOTHER’S Act is set to see action THIS WEEK in the Senate.

So pick up your phone, email your Senator. Let them know that supporting the MOTHER’S Act is a brave first step towards battling this illness that affects thousands of American Families each year. Give these families a voice!

Here’s a clip from what Susan Dowd Stone, immediate past President of PSI has to say:

Today, America’s mothers, infants and families have reason to be encouraged and to reach out to their state senators to again request their support of The Melanie Blocker Stokes MOTHERS Act in its final push to passage.YOU HAVE BEEN HEARD and this morning, Majority Leader Reid introduced a package of bills called Advance America’s Priorities Act which now includes The Melanie Blocker Stokes MOTHERS Act. Senators Robert Menendez (NJ) and Richard Durbin (IL) have been working very hard with Majority Leader Harry Reid and Chairman Edward Kennedy to pass this legislation.
These initiatives will be considered over the next week.

Your renewed advocacy and attention is especially welcome RIGHT NOW! We need to continue make it deafeningly clear how important this bill is to women and families all across America.  The online petition in support of The Melanie Blocker Stokes MOTHERS Act has been reintroduced and we invite your signature and call to your state senators office. If you wish to write a personal letter, this would also offer welcome support. By clicking on this link you will be connected to the petition and information on how you can reach your senator and sign the petition.  http://capwiz.com/ndmda/issues/alert/?alertid=11668371

We are almost there!! After years of unfathomable and needless suffering, American women may finally get the relief offered through increased research into the causes of perinatal mood disorders, better education of healthcare professionals to identify and treat these disorders, and grants for programs and services to help women to recovery. Thanks for the tremendous efforts which have brought us to this point and your steadfast participation in this final effort.

MOTHER’S Act Rumors – Breaking the Silence

I consider this post to possibly be one of the most emotionally charged and important posts that I have written to date. Katherine Stone recently addressed this issue and having received a comment here at Unexpected Blessing, I am following suit.

On February 11, 2008, I received notification of a comment in response to one of my MOTHER’S Act posts. This comment blatantly challenged and negated the necessity for the bill and raised an alarmist point of view by claiming that new mothers would become trapped by the system and forced to take anti-depressants, masking the “root” of the problem. This comment also claimed that there is no “valid or concrete evidence proving the existence of such a disorder…” going on to point out that the disorders in the DSM-IV are “voted on….” (see: http://www.acnp.org/g4/GN401000082/CH081.html)

Infuriated with this comment and feeling first hand the ignorance of the individual that wrote this, I remained silent until I could calmly and rationally respond.

First, let me assure you, I have LIVED the valid and concrete evidence that proves the existence of this very disorder. It has disrupted my life, it has disrupted my family’s life, and it has changed me as a person. Through this challenge, I have found my way out of the rabbit hole and I have found many others who have also found their way out or are currently working their way out.

I have also suffered without treatment – because my first doctor decided that I didn’t fit the criteria for PPD – and was refused treatment based on this and the fact that I refused to stop nursing – something I was asked to do WHILE MY INFANT WAS SCREAMING TO BE NURSED! I knew from research and contact with others that I could be treated with medication. I also know now that I needed medication – because I tried to recover on my own but was unable to so, resulting in Progressive Postpartum Depression that continued into my second pregnancy, leading to early delivery and ultimately to my hospitalization when I was unable to do anything but curl up in the fetal position and rock back and forth, staring out my window, praying that I wouldn’t do anything to my children.

I believe in this bill because I have lived through the very depths of the condition it is fighting to uncover and remove the stigma of so that the next mother who suffers will not have to suffer in silence, will not have to go to her doctor and be rejected and told to “suck it up” and that this is a normal part of motherhood, something that she should get over, something that shouldn’t be happening because she is more than 6wks postpartum and therefore all her hormones should be back to normal by now. Clearly if a woman is seeking treatment (which by the way, is the HARDEST step), she has a reason to do so. And anti-depressants are not always the answer – there are plenty of other therapies that can be explored and may work for certain individuals.

The point is that mothers should feel as if they can work with their physicians as part of a team and not be disregarded nor dismissed when they finally push the tears and anxiety far enough away to make that plea for help. And let’s not forget that these are innocent victims – the mothers, the infants, the fathers, the families that are plagued by this tragic disease every day. It turned our world completely upside down and does even more to other families. I know I was lucky – I got help, I encountered physicians who were open to my plight and willing to lend a hand to help me climb out of my dystopia, encouraging me to turn and fight, making me believe that I could beat this. And I did beat it. I refuse to let anyone fight this alone as a result. If my story saves just one life, it will all have been worth it. I will fight for women and families to have access to fair and non-judgemental care until the day I die.

Ultimately I am pleading the case FOR the MOTHER’S Act. But I will tell you what I tell any woman in the midst of a postpartum crisis I come in contact with. Educate yourself. Get the facts, get them straight, verify them, and then speak. This is a free country and everyone is entitled to their own opinion, but everyone should also be entitled to fair and just healthcare and not be afraid to make that phone call for fear of being dismissed or shrugged off. Postpartum Depression IS real. I have been there. I know a LOT of other women who have been there – it has been with us for thousands of years and yet we still live with the stigma. It is only with openness and research that acceptance and fair treatment will come. Please don’t deny new mothers the access to proper care that they deserve and so desperately need. So many times I have heard of doctors passing on bad advice or being dismissive, even in my hometown I have heard stories of women being told “Well if you’re not suicidal or thinking about hurting your baby, you’re fine” Excuse me??? So you want me to call you back AFTER I’ve done something. NO!!!! Preventive care is the best care – any cardiologist or oncologist would tell you that if this were heart disease or cancer we were discussing. But it’s not. It’s a mental illness. A DISEASE of the mind that these new moms did NOT ask for and want to be free from so they can enjoy their new babies and roles as mothers. Trust me, if we could free ourselves from these bonds on our own, we would.

So go forth, educate yourselves, read the text of the MOTHER’S Act, contact your Senator, ask questions, contact Senator Menendez. Contact PSI (who, by the way is NOT funded in any way shape or form by the pharmaceutical industry!), contact your local mental health advocacy group. But please, before you buy into what these naysayers have to cry from their mountaintops, check out the facts for yourself.