Category Archives: #PPDChat

To be Anonymous or Not…

Tonight I participated in the #hcsm chat over at Twitter. I love this chat. It’s full of passionate healthcare providers and patient advocates discussing the role of Social Media in Healthcare. It’s moderated via the account @HealthSocMed and lately by the wonderful @danamlewis.

The topic tonight debated the existence of anonymous doctors as well as patients within the Social Media world. Is an anonymous source authentic? Credible? In choosing to be anonymous, do we have to work harder to earn credibility? What is the motive for remaining anonymous? Can opening up about your condition as a patient hurt you when you seek employment? Why would a patient choose to not be anonymous?

As a patient who has chosen to be authentic in my presence online, I am here to tell you I do not regret the decision at all. My audacity in revealing my identity from the beginning has emboldened other mothers and families. It’s provided an honest insight into my journey, given a face to Postpartum Mood Disorders. If I had chosen to remain anonymous, the results may have been the same but if, down the road, would everything I worked for be instantly discredited if it were discovered I had used a pseudonym? What if I had done so but had been honest about my reasons for doing so from the start? What then?

Sure, I risk a LOT by using my real identity. I risk future employers reading about my experience in a psych ward. I risk judgment. I risk labeling. I risk my identity. But it’s all worth it when my authentic boldness saves lives. When a mom knows I am REAL and have been through the hell she is experiencing. When a dad knows I understand where his wife is and can offer invaluable insight into her journey. When a sister seeks me out on Twitter because she’s at her wit’s end.

Authenticity is the biggest stigma-buster in the world.

Can you be authentic and anonymous?

YES.

Some of the most authentic journeys shared here at My Postpartum Voice were submitted by those who wished to remain anonymous. Anonymity lends an empowering shield when it comes to mental health patients. It allows us to speak up with such detail and courage we may otherwise shun if we were forced to stand on a stage with a spotlight trained upon us, knowing our words will be broadcast to thousands upon thousands, forever memorialized on the Internet.

My refusal to be anonymous has saved lives. My compassion, respect, and understanding of those who wish to remain anonymous has also saved lives.

Anonymity can be a good thing. Authenticity can be achieved within the realm of anonymity. Credibility – possibly, but you have to work for it as well as be prepared for future fall out if you’re not honest about your desire to be anonymous from the start.

When it comes down to it, we can only decide for ourselves how comfortable we are with letting our stories out of the bag. We can only decide if WE choose to be anonymous or fling our true identity into the ring.

I’m in the heart of the ring. I love it here and wouldn’t leave for the world.

What about you? Are you anonymous in sharing your story? Or have you also thrown yourself into the ring of authenticity?

Guest Post: Contentiously Pregnant, Traumatically Delivered

The following was submitted some time ago by a reader who asked to have this published anonymously. Although this is a quick read, it covers so much – the fear and denial of a new pregnancy, the shock and self blame surrounding a delivery gone horribly wrong, and the anxiety enveloping all of these things. Postpartum Post-Traumatic Stress Syndrome is a very real disorder on the Postpartum Mood Disorder Spectrum. If you think you may struggle with this disorder, there is hope, there is help, and you are not alone. I strongly suggest you check out Solace for Mothers for support or reach out to the #PPDChat community on Twitter. Don’t walk the dark path alone. 

This post contains some imagery toward the end which may be triggering for you if you’ve suffered/or are suffering with PPTSD.

If you are still easily triggered, you may want to skip this piece.

The big day had finally arrived. The day I was to meet this little boy I still don’t want. Let’s go back a year and a half….

I was sent for a biopsy because of an abnormal pap. I was put on progesterone because I have Polycystic Ovary Syndrome (PCOS). My body was not making enough of this hormone to have a monthly “friend”. I started taking progesterone and within seven days I had a “friend” come to visit, only it was really bad.

I was hemorrhaging. After fifteen days, my wonderful OB decided to perform a D & C. Everything went well; the bleeding and cramping was finally manageable. I was supposed to take the progesterone the first seven days of each month until my body did what it was supposed to do. I lost 65 lbs!

I went to my four month post D & C check up and all was well. I received a clean bill of health and was good to go. My OB said if I wasn’t pregnant by Spring, we would discuss our options (little did either one of us know, at the time of my check-up, I was already pregnant.)

I was under instructions not to take progesterone in November. My OB wanted to see if my body would do what it was supposed to without it. She did say if December 1st came around with no “friend”, I was to take a pregnancy test. If it was negative, start the hormones all over again.

Black Friday came. I am one of those crazy people that is at the stores shopping at an ungodly hour so I bought a test. While at work, I peed on the little stick and before I could blink, two lines appeared. I took six more tests throughout the week at different times, just to verify what the first one said.

I was in complete and utter shock and even denial. It wasn’t Spring and I wasn’t ready to be pregnant. I had just lost a ton of weight, I was a full time student, I worked full time, and I already had a child who was in school full time. I wasn’t ready to have another baby.

The pregnancy was what every pregnant woman wanted, perfect and smooth. As I entered the second trimester, I was still in denial that I was even having a baby. I tried to ignore the movements and the baby’s hiccups. I tried to deny I was carrying in my belly this perfect round shape beneath my clothes.

I wasn’t happy. My days are grew darker and darker. Family and friends said I was aglow and looked wonderful. They couldn’t get enough of my belly. I resented their excitement over this new life I was bringing into the world.

Finally, the end was near. One month before I delivered, I was in a car accident. I was rushed to the hospital because of the cramps, but I wasn’t concerned for the life growing inside me. I just wanted him out. I hadn’t fallen in love with him. I didn’t even want him. I was still not ready. The cramping and contractions stopped. My OB said I would be induced in three weeks.

The day of induction came and family and friends hovered all day long. Labor wasn’t bad. Everything went smoothly. The pain was there, but tolerable. At 9cm, I said fuck this, I am pushing. No more waiting. Maybe that was shame on me, but I was done.

I went from 9cm to crowning in about a minute! My OB arrived and changed when the pain suddenly hit. I couldn’t breathe. I couldn’t think. Why the hell didn’t anyone take this kid out of me?

After five minutes of pushing, he was stuck on my pelvic bone and they were losing him and I wasn’t cooperating. I declined the pain medications earlier on. The next thing I could remember was the look between my OB and nurse. The nurse pressed the “Code Red” button and I still couldn’t breathe. All these nurses came running in and pushing everyone out of their way to get to me. They jump up and on the count of three I am to give one good push, while they push on my stomach, 1…2…3…he is out.

I didn’t want him on me. I didn’t want to see or touch him. He wasn’t breathing and was rushed to the incubator. Everyone was crying with joy around me, but I was disgusted that I sucked so badly at this delivery. I hated and blamed myself.

Because of all the commotion surrounding my son’s birth, the time he was born is a bit foggy; no one was paying attention to the clock. He was born not breathing, the cord around his neck and moderate shoulder dystocia. As his mother I felt as though I had already failed!

Most of this is a blur. I wish I could say that I am over this experience and that after a couple of hours all was well and I was smitten with this new baby. However, my hell was really just beginning, but that story is for another time….