Category Archives: education

Sharing the Journey with Jane Honikman

Jane Honikman was one of the first people I reached out to while  researching PPD support groups prior to starting my own. She very graciously sent me her books and even included a handwritten note of support (which I still have!)
And that’s the kind of woman Jane is… caring, understanding, compassionate, everything a mother with PPD would ever want to find in their time of desperation and need. She truly embodies what PSI stands for and I consider it to be a true honor to post this interview. I emailed Jane the questions a couple of days in advance but the interview was conducted via phone. The following is what I managed to capture so “listen” in and I hope you enjoy what Jane has to say.

 

 1) In your book, I’m Listening: A Guide to Supporting Postpartum Families, you mention the practice of Mothering the Mother. How important is this concept and why do you think this practice has vastly disappeared from our society?
I think what people have done is found subsitutes because immediate family is not as available as it has been in the past due to geographic separation. My generation subsituted friendship as mothering. We need to be more vocal about the need for mothering the mother and more organizational about it. Mothering is the essence of life – we can’t do anything alone, life is all about connection and partnerships.

 2) What did you find (and continue to find) to be most challenging about Motherhood? The least?

 The most challenging aspect of motherhood is keeping communication flowing. Making sure you are able to make your own wants known and yet listening at the same time to the needs of those around you. I feel that finding a balance between these is the key to successful communication.

 The least challenging is falling in love with your children.

3) How did you develop the Postpartum Mantra (You are not alone, You are not to blame, You will be well with help)?

 When I started getting educated about this in the early 80’s – listening to what was being said through the grassroots & research, it was clear that there were three simple messages. I’ve always tried to take the complex and simplify it. A lot of advocates have used this concept for other purposes as well. I have been involved with self help in the 60’s and 70’s and those experiences fed into this mantra. Blaming and being well is something also used by Alcoholics Anonymous.

4) What advice would you give to partners and families of women with Postpartum Depression? What can they do to best help the mother?

 Hanging in there as with any illness -stay mindful that it is not the person’s fault, just like the person with cancer didn’t get it on their own. With any mental illness, when the behaviour changes and it is harsh and alienating, it is hardest because you don’t want to be there for them. Encourage them to get help and be there for them. Never give up on them or yourselves.

5) When you started PEP (Parents Educating Parents), what was the primary motivating factor?

 We were a group of girlfriends providing support to each other and realized we were motivated to share the support we were experiencing in our small group with all the families in our surrounding community.

 6) Has PSI’s success in supporting women and families with PPD experiences surprised you?

 No, I knew eventually it was a matter of staying committed and patient and given my previous experience of working in communities, I knew it would just take time. I always felt that this was the right thing to do.

It didn’t surprise me – it delights me.

7) What activity refreshes you the most when you’ve had a rough day?

 Most important to me is to not allow intrusions into family life. I will turn off the computer after five o’clock then go start dinner and focus on family. I also enjoy music and play the flute. Another thing that refreshes me is friendship, including my friendship with my husband.

8 ) As a woman who has experienced PPD, what has it been like to guide your children through their parenting experiences?

 We were very mindful and the absolute most important thing is the supportive stuff. Our oldest married someone who had no idea what depression was and the most important thing was finding a simple book (english was not his first language) for him to read to educate himself about this. Once he read about depression, it was amazing to see the light go on and see him grasping an understanding of depression. We focused on getting educated, increasing awareness, and providing a lot of mothering through the child-birthing process. I am grateful that there is improved support for my children’s generation because there certainly wasn’t the same level of support when I experienced PPD.

9) Any advice for other women who want to pay their experience forward and help women with PPD?

  Take care of yourself first. The issues will still be there but you absolutely must get yourself to a strong place first. Delegate, don’t do things alone. Set up an organization so you don’t have to go it alone.

10) If there was one piece of advice you could give to an expectant mother (new or experienced), what would it be and why would this be important for her to hear?

 Listen to your body and enjoy it…every pregnancy is different. You have to focus on staying well and get help when you need it – you can’t do this alone.

 

Petition in Support of the MOTHER’S Act

Yes, we had a blog day.

Yes, we’ve called our Senators, written them, and speak out daily about the NEED for improved care for women just like us.

BUT… we’re not being heard. Instead, the voices of those who would argue that the MOTHER’S Act will force new mothers to take medication and submit to screening are the ones being heard. The MOTHER’S Act will not force medication on anyone – what it will do is provide the opportunity for every mother to have access to treatment for a PMD if she has one. The method of treatment is up to the mother and her physician (and frankly, if my physician wasn’t on the same page as I was or at least willing to back up his reasoning with some pretty strong fact, I’d find another physician!) and drugs may not be the best route for every mother – but EVERY MOTHER WHO SUFFERS DESERVES ACCESS TO TREATMENT.

Please sign the petition from the Depression & Bipolar Support Alliance in support of the MOTHER’S Act.

It’s urgent that your voice be heard NOW.

A Little Nervous

I have my first “big” speaking engagement on Friday and I can feel myself starting to get nervous. I know I’ll be fine. I’m really looking forward to meeting Katherine Stone and Dr. Jeffrey Newport. I am more in awe that I have been asked to speak along with them than anything else and it speaks volumes to me as to how far I have come since giving birth to my first daughter and struggling through those first dark days of Postpartum OCD all alone. I have found immense comfort in the knowledge that I will never be alone again and that has made all the difference this time around. (Ok, that, and the meds. I can’t forget about the meds.)

I’d like to take this opportunity to again thank everyone who believed in me and has supported me through this endeavor – especially my husband who lived through it all with me and is still here (although snoring at the moment) and as strong as ever. Amazement really doesn’t do this justice – the journey I’ve been on has been such a treacherous and yet fantastically awe-inspiring one at the same time. I can’t wait to share it on Friday and hopefully educate and light the way for other women to emerge from their PPD coccoon with as much strength and energy and support as I have.

MOTHER’S Act Rumors – Breaking the Silence

I consider this post to possibly be one of the most emotionally charged and important posts that I have written to date. Katherine Stone recently addressed this issue and having received a comment here at Unexpected Blessing, I am following suit.

On February 11, 2008, I received notification of a comment in response to one of my MOTHER’S Act posts. This comment blatantly challenged and negated the necessity for the bill and raised an alarmist point of view by claiming that new mothers would become trapped by the system and forced to take anti-depressants, masking the “root” of the problem. This comment also claimed that there is no “valid or concrete evidence proving the existence of such a disorder…” going on to point out that the disorders in the DSM-IV are “voted on….” (see: http://www.acnp.org/g4/GN401000082/CH081.html)

Infuriated with this comment and feeling first hand the ignorance of the individual that wrote this, I remained silent until I could calmly and rationally respond.

First, let me assure you, I have LIVED the valid and concrete evidence that proves the existence of this very disorder. It has disrupted my life, it has disrupted my family’s life, and it has changed me as a person. Through this challenge, I have found my way out of the rabbit hole and I have found many others who have also found their way out or are currently working their way out.

I have also suffered without treatment – because my first doctor decided that I didn’t fit the criteria for PPD – and was refused treatment based on this and the fact that I refused to stop nursing – something I was asked to do WHILE MY INFANT WAS SCREAMING TO BE NURSED! I knew from research and contact with others that I could be treated with medication. I also know now that I needed medication – because I tried to recover on my own but was unable to so, resulting in Progressive Postpartum Depression that continued into my second pregnancy, leading to early delivery and ultimately to my hospitalization when I was unable to do anything but curl up in the fetal position and rock back and forth, staring out my window, praying that I wouldn’t do anything to my children.

I believe in this bill because I have lived through the very depths of the condition it is fighting to uncover and remove the stigma of so that the next mother who suffers will not have to suffer in silence, will not have to go to her doctor and be rejected and told to “suck it up” and that this is a normal part of motherhood, something that she should get over, something that shouldn’t be happening because she is more than 6wks postpartum and therefore all her hormones should be back to normal by now. Clearly if a woman is seeking treatment (which by the way, is the HARDEST step), she has a reason to do so. And anti-depressants are not always the answer – there are plenty of other therapies that can be explored and may work for certain individuals.

The point is that mothers should feel as if they can work with their physicians as part of a team and not be disregarded nor dismissed when they finally push the tears and anxiety far enough away to make that plea for help. And let’s not forget that these are innocent victims – the mothers, the infants, the fathers, the families that are plagued by this tragic disease every day. It turned our world completely upside down and does even more to other families. I know I was lucky – I got help, I encountered physicians who were open to my plight and willing to lend a hand to help me climb out of my dystopia, encouraging me to turn and fight, making me believe that I could beat this. And I did beat it. I refuse to let anyone fight this alone as a result. If my story saves just one life, it will all have been worth it. I will fight for women and families to have access to fair and non-judgemental care until the day I die.

Ultimately I am pleading the case FOR the MOTHER’S Act. But I will tell you what I tell any woman in the midst of a postpartum crisis I come in contact with. Educate yourself. Get the facts, get them straight, verify them, and then speak. This is a free country and everyone is entitled to their own opinion, but everyone should also be entitled to fair and just healthcare and not be afraid to make that phone call for fear of being dismissed or shrugged off. Postpartum Depression IS real. I have been there. I know a LOT of other women who have been there – it has been with us for thousands of years and yet we still live with the stigma. It is only with openness and research that acceptance and fair treatment will come. Please don’t deny new mothers the access to proper care that they deserve and so desperately need. So many times I have heard of doctors passing on bad advice or being dismissive, even in my hometown I have heard stories of women being told “Well if you’re not suicidal or thinking about hurting your baby, you’re fine” Excuse me??? So you want me to call you back AFTER I’ve done something. NO!!!! Preventive care is the best care – any cardiologist or oncologist would tell you that if this were heart disease or cancer we were discussing. But it’s not. It’s a mental illness. A DISEASE of the mind that these new moms did NOT ask for and want to be free from so they can enjoy their new babies and roles as mothers. Trust me, if we could free ourselves from these bonds on our own, we would.

So go forth, educate yourselves, read the text of the MOTHER’S Act, contact your Senator, ask questions, contact Senator Menendez. Contact PSI (who, by the way is NOT funded in any way shape or form by the pharmaceutical industry!), contact your local mental health advocacy group. But please, before you buy into what these naysayers have to cry from their mountaintops, check out the facts for yourself.

Atlanta Lunch & Learn

3_28_08_community_ed_flyer.pdf

Well Dear Readers, I have agreed to my first BIG speaking engagement and it will be happening on March 28th in Atlanta. I will be speaking about my story as well as how I came to found my organization, PACE. The small details are in the attached PDF flyer but I will be speaking alongside Dr. Jeffrey Newport from Emory University and Katherine Stone of Postpartum Progress. I am very honored to be a part of this event. Registration is required but the event is free. MHA and Skyland Trail are co-sponsoring this event.

Even if you can’t attend, please pass the information on to someone who may be able to or post it at your place of employment.