Category Archives: cleft palate

Sharing the Journey with ME!

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Here’s a twist on the typical Thursday Interview fare around here.

I asked my husband to email me 10 questions. He sent 11. I figured it was only fair to allow him to interview me being that he was kind enough to do the same.

Enjoy getting to know me even better!

Tell me about the first time that you thought you might be suffering from PPD. How did you cope with it?

We were living in South Carolina and miles away from any family or support when our first daughter was born. Just a few months prior to her birth I discovered the online community at iVillage.com and became quite active there as I did not have any friends or family nearby and was practically bedridden due to severe pelvic misalignment issues. Allison’s birth was quite the traumatic experience (the doctor is very lucky I had a moment of sanity and decided NOT to kick him) and no one really seemed to offer any help after she was born. It was kind of an in and out experience, which, unfortunately, is the norm nowadays.

Once we got her home, the first thing that happened was an employee of yours stopping by the house with her son who was sick and sneezing. He proceeded to touch all of the baby stuff and I totally freaked out. At the time I did not see this as the beginning but the level of anxiety I felt that day took a very long time to dissipate. I really started to sink lower when you went back to work and remember standing over Alli’s crib and apologizing to her because I had no idea what to say to her. I thought she was judging me for not knowing how to be a good mommy. I was also very upset with myself because motherhood was what I wanted – even more than being a wife – I grew up wanting to be a mommy more than anything and here I was, finally a mom, and felt I was failing.

I realized it might be PPD through the online community at iVillage and reading things other women had posted. At three months postpartum and after some serious soul searching, I finally made an appointment with my OB. I was tired of the intrusive thoughts, the anxiety, the anger, I was tired of not being myself. So I went online, took a screening test and scored severely depressed having answered the questions about self-harm and harming my infant with a yes. I took this to my OB and he refused to acknowledge the possibility of PPD but did admit something was going on – PPD, no – because I was more than 6 weeks PP and my “hormones should be back to normal by now” Calm down now – it gets worse. Alli was screaming to be nursed as we discussed things (crying is my WORST trigger) and my OB brazenly asked how important it was to continue breastfeeding. What he said next shocked me. He refused to medicate me because I refused to quit nursing. His precise words were that I refused to stop nursing for trial therapy. I have my medical records to prove it. Because I was clean, had applied make-up, and was well-spoken, I couldn’t be depressed. Because I didn’t “look” the part, that couldn’t be what was wrong with me. He admitted something was going on but refused to admit that it was PPD. I was referred to the in-house counselor but they kept changing my appointment which made things worse so I refused to go and canceled my appointment.

Just two months later we moved back to Georgia and things started to improve because we were able to leave Alli with your parents and I started to get some time to myself. I thought I was recovered but sadly we discovered after I gave birth to Charlotte that I had not and things were worse than ever.

After giving birth to three children, how did your pregnancies differ in relation to your PPD experiences?

My first pregnancy was the easiest but I think all Moms say that – after all, you don’t have other little ones to chase around or keep up with. My first round of PPD was also mild compared to the second time around.

The second pregnancy was a bit easier physically because I knew what to expect but harder in the aspect that I had a toddler to run around after which is the last thing you feel like doing when your stomach is revolting against well, the world. The postpartum period after Charlotte’s birth was the most intense – her cleft palate, my depression and subsequent hospitalization, her multiple surgeries, Alli’s terrible two’s, your stressful and exhaustive job, pumping full time for Charlotte… you name it, there wasn’t a roadblock we didn’t face. But we made it through, clutching the bar holding us down into the roller coaster until our knuckles were transparent.

Honestly, how supportive was I when you were going through such a terrible time? What do you wish I had done differently?

Wow. Hard question. I think you were as supportive as you could be given the existential circumstances of each situation (no support system, birth defect & NICU, unexpected pregnancy), the information available to you at the time, and the irritability that you were constantly ducking from me. I am sure you probably felt as if you were walking on eggshells most of the time, not knowing if the next word out of your mouth would set off an “episode.”

Knowing what we now know as a couple about PPD, obviously there are some things we would have done differently like gone for a second opinion, pushed for better treatment, worked together instead of drifting apart into our own worlds which I think led to the path on which we found ourselves after Charlotte’s birth. I wasn’t able to be there for you and you felt as you couldn’t show any emotion when all I wanted was for you to show something – to let know that I wasn’t alone in feeling so lost about her cleft palate and the NICU stay. Of course I didn’t say this to you – I expected you to read my mind and got pissed when you didn’t. That’s just not fair at all (and is hallmark behavior of a postpartum woman)

Overall, you did a great job keeping us together as a family even if it meant putting on a show for me and for everyone else. As for having done something differently, hindsight is 20/20 and there’s nothing we can do to change our past behavior. I believe strongly that our marriage can now withstand anything anyone wishes to toss our way. We’ve certainly been through quite a bit in six short years.

You have certainly turned some very tragic events into ammunition to help other women fight PPD? How have your PPD experiences helped you help others?

I have found my inner strength, beauty, and grace as a result of the darkness of PPD. The same strength with which I battled my own PPD energizes me each and everyday to help other women who are in the same place I used to be. I will NOT let another woman suffer alone if there is anything I can do to change that for her. Each day I wake up with the goal of helping at least one woman. Small contribution but it goes back to a quote I fell in love with while in college by Ghandi: “Be the change you wish to see in the world.”

What role has your faith and belief in God played in your battles with PPD?

Raised Christian and having given my heart to the Lord at the tender age of 6, I had fallen away from the Lord and had really not been close with him for quite some time when Alli was born. I started to pray more and continued with this throughout my pregnancy with Charlotte. After Charlotte’s birth, I could feel His presence and let myself lean on Him although not as much as I should have, looking back. God knew he wasn’t done with me yet so He sent us Cameron to show me how much of a miracle He was capable of making. And He made a cute one!

When I first started helping others with PPD, I was uncomfortable talking about faith and God. Now it’s one of the easiest things to talk about. God has truly taken me into his Arms and blessed me. And I figure – if Jesus died for our sins, what a small price PPD is compared to His sacrifice. It’s taken me nearly four years of intense growth and molding to come to that conclusion and is not something I have come to believe lightly. My faith is stronger than ever and is still growing.

On the other side of the coin, have your PPD experiences affected your faith? How?

My PPD experiences have certainly brought me closer to God. I have come to realize that He has big plans for me and I have learned to quietly listen to his voice and truly lean on Him during times of need. In fact, if I start to worry now, I instantly pray rather than let it spiral out of control. I can’t even begin to express how grateful I am for all the growth He has allowed in my life over the past few years!

Life can be busy. Ours certainly is. You are a mother of three, homemaker, PPD advocate and wife. It almost seems impossible what you do. So I have to know, how do you do it?

I have no idea. If you figure it out, let me know.

Seriously though – I grew up watching (and helping) my mother around the house. She was a Stay at home mom too and I picked up a lot of tips from her too. I still call every day (HI MOM) well, almost every day as I’m much busier now and she gives me lots and lots of tips.

A lot of the PPD work I do is online so I can do bits and pieces here and there. I’ve also got the housework down to a science and can have that going while I’m working on PPD stuff in the living room.

One rule I’m working on is that when the girls are awake, I am all theirs unless I have to cook or clean. Even then I try to get them involved so they don’t feel left out or get them playing with play-doh at the dining room table so they’ll at least be having fun. I love my times with the girls as it’s what keeps me sane – well, along with time with you too!

What do you find most challenging about motherhood?

It never ends. My mom has a cartoon on her fridge at her house that I would LOVE to have – a census worker is at the door and a woman is standing there. She is saying, “Work? I just wake up and there it is.” I am never off – I am on call 24/7. Just today I was mother, nurse, friend, poopy cleaner, fan fixer, chef, linguist, wife, writer, brain-stormer, dishwasher, laundry lady, pie maker, dog walker, hand-holder, singer, and most importantly, ME.

What is your favorite thing about motherhood?

Bedtime.

Seriously though – I would have to go with getting the kids to laugh and have a good time. There is NOTHING more heartwarming and uplifting than allowing myself to be a total kid right along with them. I know this is not something you’ve seen terribly often but I’m working on it. At least I’m singing more in front of you more, right?

And last, but not least. What is it like being married to such a hunk and amazing man?

I’ll let you know when that happens. 😉

It’s like the way the Earth smells right after an afternoon rain shower. No matter how many times you experience it, it’s always new, refreshing, and uplifting even though the storm that brought you there may have been the most difficult storm you’ve ever experienced.

Sharing the Journey with My Husband

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As I sit here having just read this interview, I am blown away by how far we have truly come since the birth of our first child. We have overcome so much and I know it is because neither one of us is afraid of staring adversity in the eye. Chris and I met November 2000 while we worked at the same company. We’ve been inseparable ever since, no matter what the storm brought to our world. Relying on each other’s strengths and shoring up each other’s weaknesses, we’ve managed to build an extremely strong marriage that has been tested time and again in the short six years of wedded partnership. And you know what? We’ve come out of each storm stronger and closer than before. There’s a quote by Louisa Alcott:  “I am not afraid of the storm for I am learning to sail my ship.” Together we are not afraid of the storm and have slowly begun to master sailing our ship through whatever mighty waves come our way. I hope you enjoy this honest and compassionate look into my PPD experience from my husband’s perspective.

Would you share your experience of watching the woman you love suffer from Postpartum Depression? What were some of the emotions you went through as you watched me spiral downward and what was the hardest part for you?

Wow, thats tough. I guess it is hard because I have blocked that out of my mind. I think the best way to answer that question is to just explain what PPD looks like from the outside from the perspective of someone who is uneducated in the signs, because that is where I was when it all began. Honestly I really didn’t know what to think. All I knew is that the woman that I married and loved was gone. You were reclusive and moody most of the time. All I really wanted to do is just tell you to snap out of it, and I think that I did a couple of times. I thought you had become lazy and selfish. I knew something was wrong, but I thought it was more of a problem with lack of motivation and lack of discipline. It made me angry. After our second daughter was born, I had educated myself. I found that even though I got frustrated with you, I understood. I probably didn’t show it all the time, because I had my own stresses going on with sixty hour work weeks and the hospitalization of our daughter. The hardest part of it all though was watching you hurt. I just wanted so bad for you to be happy and it just didn’t seem to happen.

Looking back, would you agree that the lack of diagnosis/treatment of my first episode compounded my second episode?

Definitely. I actually believe that it just carried over into the second pregnancy. You never really recovered from the first episode. It wasn’t until nearly a year after the birth of Charlotte that I even began to recognize you as the same woman that I married.

You recognized my PP OCD the second time around well before I was able to admit there was a problem. In fact, you even made the call to my OB’s office for initial treatment. What were some of the warning signs that alerted you to the beginnings of this episode?

You had become anti-social. You were sad most of the time. You did a lot of cleaning, and please don’t take this the wrong way because you really are a great housewife, but neither one of us is Mary Poppins when it comes to keeping the house clean. What really tipped me off though was that you just didn’t seem well. You wanted to sleep a lot and you also seemed to snap very easily at the smallest things.

My hospitalization absolutely frightened me but ultimately became the turning point in my recovery. Would you share your memories and feelings surrounding my hospitalization?

Honestly, I was scared to death as well. I didn’t know what I was going to do. I was working sixty hour work weeks with a two year old and newborn at home and I didn’t know how I was going to take care of them. And how would I juggle having to make the hour drive back and forth to the hospital that you were in to bring you the things that you would need and to get milk for Charlotte? I didn’t know how long you would be there. I was really scared. I was also concerned for you. I love you and didn’t want to see you hurting. I was also thankful for the fact that you were getting the help you needed. When you called me at work and told me that you were having intrusive thoughts, I couldn’t get home fast enough. Who knows what the outcome would have been had you not gone to the hospital that day? That thought still crosses my mind today. I am so grateful that you understood the severity of your problem and took the help that was given to you. I think it all goes back to education.

We worked very hard together to prevent PPD after Cameron’s birth. What were some of the differences in how we approached the postpartum period this time around?

Well, I know that you took antidepressants during your pregnancy, but we also had a set of written guidelines as to what to look for and for how we would respond if certain events took place. We tried to educate (there’s that word again) our families about the signs to look for and also what were the right and wrong things to say and do in the event that PPD reared it’s head again. During your second bout with PPD I really think that we were better educated, but our families were not. This caused a lot of tension and strife. With the whole family knowing what to look for, it helped make everyone sympathetic to the situation. Boy do I wish we had that in place when in the throes of your second episode.

What is the biggest lesson you feel you’ve learned from my PP OCD episodes?

I always viewed mental illness as something that happened to other people. I viewed people with mental illness as weird or abnormal. The biggest thing I learned is that mental illness can strike anyone, at any time. I suffer from ADHD, depression and anxiety and would have never sought help with my issues had I not educated myself about yours.

What has it been like to watch me grow from mother suffering from PPD to the PPD Advocate I am today?

First I would like to say how proud I am of you. You have turned adversity into triumph. I have been amazed at the transformation. Most people just take their hard knocks and then move on, but you have taken up a cause and have made a difference in other peoples lives. I am inspired and in awe. I love you and encourage to keep up the great work that you are doing.

Share with us what you find to be most challenging about fatherhood. The Least challenging.

I have always been a rather impatient person. Fatherhood is teaching me patience. That is a challenge since I tend to want instant results. Maybe that is just the ADHD in me. Kids sort of move at their own pace, and I have learned that they are learning all along the way. To rush them along is not only detrimental to their growth and development, but it is also unfair to steal those learning experiences away from them. The least challenging is loving those precious kids. I just can’t seem to get enough of them and can’t give enough hugs and kisses. That is not a challenge at all.

How important do you feel it is to hold onto a sense of self once you become a parent? What are some ways a father can provide some much needed alone time?

You must know who you are before you can help someone else, namely your children, discover who they are. The best way to do that is to have some “me time”. It is very difficult to get when you are a parent between diaper changes and cleaning mud (or other mud like substances) off the walls, but is essential. Sometimes I will stay up late to get some alone time or will go to the store. Don’t forget though that you and your spouse need some time together too. Also, it is ok to ask your wife to take the kids for a few hours while you go get some coffee. Just remember though that you need to provide her with that same luxury as well. Ask the Grandparents to take the kids too. Even if it is just for an hour or two, you and your spouse can have a nice dinner or just go home and work on some of those household projects that you have on your “honey do” list.

And last but not least, if you had one piece of advice to give an expectant father (new or experienced), what would it be?

Educate, educate and when it’s all through educate some more. You can never fully prepare yourself for everything that fatherhood throws at you, but knowing some of what to expect takes a lot of the anxiety away and relieves a lot of the stress on you and your spouses relationship

Ebb and Flow

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A cold snuck up on me this past weekend. Friday morning I had the sniffles. Chalked it up to allergies. By the end of the day I had phoned my OB’s office to find out what medicines I could take. I felt myself slipping into the downward spiral of the severe blah’s. My eyes hurt, I could hardly keep my them open, my throat was scratchy and sore. And the giveaway of imminent illness – a craving for Chicken noodle soup. I HATE chicken noodle soup and absolutely do not eat the stuff unless I’m sick. I even visited Progresso’s website to make sure they had a decent version. Couldn’t tell though – they just had the names listed, not pictures. Chris picked me up a can on the way home from work. I downed the soup once he got home and went straight to bed at 830p. I should mention that I had been awake since 5a that morning with a runny nose and severe pelvic pain on top of everything else. He also brought me some medicine which I took even before I ate my soup.

I felt better Saturday morning but still had a craving for Chicken Noodle Soup. Odd for me – I never crave anything other than breakfast food in the morning. I even thought about eating the chicken and rice soup we had but I dislike that even more than chicken noodle soup. Took medicine all day Saturday and didn’t really eat much but did keep hydrated. Had a huge italian dinner though. Would have been better if I had cooked it at home but hey, when you’re sick – taste isn’t really a huge factor.

I’m much better now, off cold meds, and the sniffles are mostly gone.

Charlotte started to self-feed over the weekend. It’s been exciting and bittersweet at the same time. I’m starting to go through the emotions of what I felt when I stopped pumping for her. She’s been sitting on my lap in the living room while I feed her so it’s been our “bonding” time. She is still on my lap but as soon as I get the dining room table cleaned off, we’ll start eating at the table. I knew she’d be growing up and I know this is a good thing but it’s still hard. I am so proud of her for how far she’s come – from a cleft palate &  being on an NG tube to a g-tube and now, less than a year after having her g-tube removed, she’s thriving and feeding herself. I couldn’t really ask for a bigger miracle. As for cuddle time, she has taken to picking up books, bringing them to me, slamming them in my lap, and then waiting for me to pick her up and read the book to her. Sometimes we make it through the entire book, sometimes just the first page. Depends on how tired she is when she brings the book to me. *sighs* Motherhood – full of ebb and flow…..

On another note, I purposefully recorded two episodes of Oprah last week. Halle Berry’s interview and Sinead O’Connor’s interviews both got snatched up by the TiVo. Both women said something that really stuck with me and probably wouldn’t have hit me the way they did had I not just experienced the past year and a half I did.

Halle Berry commented on how once you’ve been down in a valley, you learn the way out and when you go there again, you’re able to find the way out faster.  A lightbulb popped on in my head when she said that. Makes SO much sense and was very comforting to hear.

Sinead O’Connor’s comment that struck me was about medications. She stated that her medication provided the scaffolding that allowed her to recover. That when she was sick, it was like a brick here or there would just go missing and crumble. She kept saying that she probably wasn’t describing her experience to the best of her ability but I thought she did a rather fantastic job at making the mental illness journey a concrete image. (She also said that after taking meds the first time, she felt “concrete” filling in the holes…. Sinead has been diagnosed as bipolar)

I’m amazed at how differently I interpret and analyze things now. I am starting to put more of a positive spin on things and when I say something positive to someone in a day-to-day situation, I am somewhat surprised at myself but joyfully so. I am loving laughing more and being sillier with my kids and husband. My mom sometimes doesn’t know what to do with me because I’m even joking with her too now. She’s so not used to that. She’s used to me being serious and sarcastic which is funny to me now because I GOT my sense of humor from HER. She’s always been the one to emphasize trying to find the funny side of a situation. If you can laugh at it, then laugh. And I do try to laugh. If I didn’t, I’d cry, I think. Never been much of a crier though. I tend to hold things in and lash out with anger and irritability. Working on that though – have a feeling that will be a constant work in progress but I’m a LOT better than I used to be – and everyone around me will tell you so.

Gotta run, I hear Alli calling me.

Facing Your Giant

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This was the title of our church’s sermon this morning. We hadn’t been to church in awhile due to Chris being sick, both of us being exhausted, yada yada yada… I know, excuses, I  excuses!

 This sermon focused on the battle between…yup, you guessed it…. David and Goliath. (Which if you’re curious, can be found in 1 Sam Chapt. 17, and yes, I remembered that all on my own! I’m impressed!)

As the preacher was talking, I thought of this past year and how many Giants I’ve overcome –

  • PP OCD
  • Discovering our daughter’s cleft palate & PRS diagnoses
  • Surviving her surgeries & NICU Stay
  • Starting a PPD Support Group
  • Unexpected Pregnancy
  • Husband’s Car Wreck & Ankle injury

And I am still here. Kicking, and HAPPY. Thriving in my new normal, in fact. You know who I have to thank for that? GOD. Early on, I handed everything to Him and He has shown me just how well He can care for me. He truly carried us through this past year because there is just no other explanation. Yes, I had to do a lot of climbing too, but he was there with me – my Coach, my Support, my Strength.

This past year and a half has been one of the hardest years of my life. But it’s also been a year and a half of strength and growth – I have grown and matured more this past year than ever before in my life. And it’s all because, just like David, I put my trust in God and let him handle everything. I truly learned how to hand things to God – something my mom has been trying to get me to do for ages now… but I had to learn on my own. Not only have I learned a truly worthy lesson, but I am passing the strength I found onto others because I feel that God is calling me to do just that. And I know it is because God is in my heart and at the heart of my PPD work that everything has happened the way it has – PACE continues to thrive, I continue to help women, and I have a peace within my heart that only God could create.

Things with PACE and my PPD work have just fallen into place and I attribute that as a sign from God that what I am doing is right and just. Speaking of that, PACE’s website was just reviewed and accepted by www.psychcentral.com, one of the oldest and most reliable mental health resource sites on the web, run by mental health professionals. Again, just a sign that I am finally walking the right path.

Praise God for His Strength, His Blessings, and His Love. Without it, I would not have survived this past year… and be thriving – in life, marriage, motherhood – and my PPD work. HE is to be honoured in all that I do!

Have to share this…

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I know that I’ve mentioned our second daughter was born with a cleft palate and spent some time in the NICU. While she is now free of most artificial attachments (she still has tubes in her ears), every day is a new day with her – she will be 18 months old this month and is still not speaking. Babbling, yes, but not talking. I also still have to feed her because if we let her feed herself, she will eat entirely too much and gag/choke. I also have to balance the fine line between too much food and not enough food. She is a bottomless pit, something I attribute to her being primarily tube fed for the first six months of her life. And this is beyond the normal baby care. Alot of mothers do more, and a lot do less. But for me, it’s my new normal. I check her mouth whenever she is teething to make sure there’s not one popping through the roof of her mouth.

All that being said, I still belong to an email group for parents of children with PRS (Pierre Robin Sequence/syndrome). Today, one of the moms sent a precious email. I will warn you – it made me cry. And I am not a crier. This one really hit home with me and I needed to read it. I LOVE how things like this that you need to read pop up right when you need them to!

So this is for mothers of handicapped/special needs kids – Know that you are amazing.

Some women become mothers by accident, some by choice, a few by social pressure and a couple by habit.This year, nearly 100,000 women will become mothers of handicapped children. Did you ever wonder how mothers of handicapped children are chosen? Somehow I visualize God hovering over earth selecting His instruments for propagation with great care and deliberation.As He observes, He instructs His angels to make notes in a giant ledger. “Armstrong, Beth, son… Patron Saint, Matthew” “Forrest, Marjorie, daughter… Patron Saint, Cecillia” “Rudledge, Karen, Twins… Patron Saint… give her Gerard, he is used to profanity.”

Finally, He passes a name to an angel and smiles, “Give her a handicapped child.” The angel is curious, “Why this one, God? She is so happy.” “Exactly,” smiled God. “Could I give a handicapped child to a mother who does not know laughter? That would be cruel.” “But has she got patience?” asked the angel. “I don’t want her to have too much patience or she will drown in a sea of self-pity and despair. Once the shock and resentment wear off, she’ll handle it. I watched her today. She has that feeling of self and independence that is so rare and so necessary in a mother.

You see, the child I am going to give her has his own world. She has to make the child live in her world and that is not going to be easy.” “But Lord, I don’t think she even believes in You.” God smiled, “No matter. I can fix that. This one is perfect. She has just enough selfishness.” The angel gasped, “Selfishness? Is that a virtue?” God nods. “If she can’t seperate herself from the child ocassionally, she will never survive. Yes, here is a woman I will bless with a child less than perfect. She doesn’t realize it yet, but she is to be envied. She will never take for granted a “spoken word.” She will never consider a “step” ordinary. When her child says “Momma,” for the first time, she will be present at a miracle and know it! When she describes a tree or sunset to a blind child, she will see it as few people ever see my creation. I will permit her to see clearly the things I see… ignorance, cruelty, prejudice… and allow her to rise above them. She will never be alone. I will be at her side every minute of every day of her life because she is doing My work as surely as if she were here by My side.” “And what about her Patron Saint?” asked the angel, his pen poised in mid air. God smiles, “A mirror will suffice.”