Today’s post is fabulously crafted by Jess Arias Cooper from Mama’s Got Flair. Jess is a saucy chick and someone I am proud to call a friend in this land called the Internet. We can be ourselves with each other – sharing things we rarely share with others yet somehow feel comfortable enough sharing with each other. Every woman deserves at least one friend like Jess on the Interwebs. Someone they can share their secrets with and yet laugh at something inane as a multi-colored, multi-shaped mullet the very next second. She’s a heartfelt snark, this one. I was beyond thrilled when Jess agreed to write a post for Faith & Motherhood here. Her post is moving beyond words.
Today’s post may be triggering for some of my more sensitive and fragile readers as it deals with infant loss. So if you’re feeling fragile today, you may want to skip this one and read it another day.
Jess’ post truly exemplifies living in God’s grace and finding faith even in the darkest of corners. I am so blessed to have this amazing woman call me friend. Now I’ll stop writing and let her words fill your mind and heart.
I didn’t understand or appreciate faith, miracles and mercy until I lost my infant son in 2004.
My son, Aiden, was born 11 weeks premature by emergency cesarean. The second half of my pregnancy had been a rough one, to put it mildly, and my life was literally on the line. Though the doctors gave us as much time “together” as they could, my liver was failing and a tough decision had to be made.
Because I’d been so sick with preeclampsia and HELPP syndrome, my darling Aiden was born at an astonishing one pound, five ounces. In fact, he wasn’t much larger than a Barbie doll. Besides his miniature stature, he was also born with a rare condition known as Townes-Brocks Syndrome.
Townes-Brocks is generally a genetic condition, but in our case, it was one of those one in a billion flukes that randomly occurs in nature. My son had a wide variety of physical differences from the average baby, but I refuse to call them “birth defects.” In my eyes, despite his extra thumb, unusually shaped head and ears and disconnected digestive system, he was the absolute vision of perfection.
My husband and I tried for years to get pregnant, and Aiden was the beautiful answer to an unfathomable number of prayers.
I thanked God for every day Aiden grew bigger, stronger and more alert. I sat beside his little bed in the NICU, day in and day out, paced waiting rooms during his surgeries and loved that boy more with every beat of his heart.
Still, as he grew stronger, new things were being added to his list of diagnoses nearly every day. Hearing impairments. Brain damage. The list of Aiden’s differences continued to grow, and I prayed even harder for God to bring us a miracle and heal my poor sick, little boy.
It became clearer every day, that a few surgeries wouldn’t “fix” the problems that Aiden was bound to face for the rest of his life. And when my boy would become a man, with even the best outcomes to all the treatments that modern medicine had to offer, he would have to tell the women in his life that there was a strong possibility that, should they have a child together, he or she would endure the effects of Townes-Brocks Syndrome as well.
I had faith in God. I never felt that Aiden or my family was being punished. I trusted in his mercy. I had faith that he would reach out to my son and ease his suffering.
And He did.
Though, not how my heart had prayed for. On April 24, 2004, Aiden went to heaven.
I, of course, didn’t see the miracle and mercy at first. I was grief-stricken. The pain in my heart was heavy, yet I felt empty. I felt punished. My faith was tested in such an extreme way, I was angry.
But one day, as I was talking to God, asking to make sense of all the pain, I realized that the Lord had answered my prayers. He eased Aiden’s suffering. He was merciful. He reached out and made my son whole.
Aiden was spared a lifetime of painful struggle. His ears were spared the snickers and whispers of uninformed human cruelty. He wasn’t held captive in a body that wouldn’t do the things he longed to do. God is good. God is merciful.
I still struggle with grief and my arms continue to yearn for the embrace of my oldest son. I still find myself wondering what he’d be like if he were here with me. But that is a mother’s heart. I’m only human. I miss my son and look forward to the day when we’re united once again.
And, with my faith, I know that day will come. It will be a long time from now, as I have been blessed with three other sons to guide and care for. But, I know, someday, I’ll see my angel, Aiden, again.
Because God is good.
